Re: PLEASE HELP! Letters to The American Autonomic Society

[Guest guest]

--

Hi Don.

and I will try to put together something. He has only been

home from the hosp. a week now, and starting to make some gains

on the loss of strength.

When is the AAS meeting here in Hilton Head? Is it something we

could attend? Hilton Head is where we have lived since 1995 and if

you have never been here your in for a pleasant time. It is a

beautiful Island. It will nice to get a chance to meet you while you

are here. Let me know more about the AAS meeting. I will encourage

all our Docs to attend.

and Hanson (Hilton Head Is.)

- In shydrager@y..., " Don Summers " <donsums@c...> wrote:

>

> Hi Everyone,

> I'm resending this to make sure that I have your attention.

> I really need your help with this!

>

> At the Chicago meeting, I mentioned that I would like a number of

people in the

> Support Group to write letters to be delivered to the Physicians at

the AAS

> meeting this year at Hilton Head S.C. Sylvia and I will be

attending this meeting.

> Each year I have the opportunity to speak for a few minutes to the

physicians

> who are in attendance at that meeting. For the past several years

my main

> message to them has been to express our whole-hearted support for

their

> work and our deep appreciation for their dedication and diligence

in the

> research and treatment of patients with SDS/MSA.

> This year, I would likle to go a step farther by taking a packet

of letters from

> patients, caregivers and family members to the meeting.

> Would you all be willing to help me with this? If so, please

send me an

> e-mail with the subject " Letter to AAS " in the body of the

message, please type:

>

> Dr. Felicia Axelrod

> President, American Autonomic Society

>

> In your message, please join me in voicing our appreciation

> (in your own words of course) of their collective work.

>

> ( These are the people who are at the forefront in research,

medication testing,

> patient counseling, Clinical trials etc.)

>

> You may either use your full name or only your first name. Your

location,

> e-mail address or mailing address is not necessary.

>

> When I receive these messages, I will " copy " and " paste " the

contents

> onto a sheet of SDS/MSA letterhead and will present the packet to

> Dr. Axelrod when I speak to the doctors later this month.

>

> Please, lets encourage these people! Write and send your letter

today!

>

> Thank You!

> Don Summers

> Pres. SDS/MSA Support Group

[Guest guest]

--

Hi Don.

and I will try to put together something. He has only been

home from the hosp. a week now, and starting to make some gains

on the loss of strength.

When is the AAS meeting here in Hilton Head? Is it something we

could attend? Hilton Head is where we have lived since 1995 and if

you have never been here your in for a pleasant time. It is a

beautiful Island. It will nice to get a chance to meet you while you

are here. Let me know more about the AAS meeting. I will encourage

all our Docs to attend.

and Hanson (Hilton Head Is.)

- In shydrager@y..., " Don Summers " <donsums@c...> wrote:

>

> Hi Everyone,

> I'm resending this to make sure that I have your attention.

> I really need your help with this!

>

> At the Chicago meeting, I mentioned that I would like a number of

people in the

> Support Group to write letters to be delivered to the Physicians at

the AAS

> meeting this year at Hilton Head S.C. Sylvia and I will be

attending this meeting.

> Each year I have the opportunity to speak for a few minutes to the

physicians

> who are in attendance at that meeting. For the past several years

my main

> message to them has been to express our whole-hearted support for

their

> work and our deep appreciation for their dedication and diligence

in the

> research and treatment of patients with SDS/MSA.

> This year, I would likle to go a step farther by taking a packet

of letters from

> patients, caregivers and family members to the meeting.

> Would you all be willing to help me with this? If so, please

send me an

> e-mail with the subject " Letter to AAS " in the body of the

message, please type:

>

> Dr. Felicia Axelrod

> President, American Autonomic Society

>

> In your message, please join me in voicing our appreciation

> (in your own words of course) of their collective work.

>

> ( These are the people who are at the forefront in research,

medication testing,

> patient counseling, Clinical trials etc.)

>

> You may either use your full name or only your first name. Your

location,

> e-mail address or mailing address is not necessary.

>

> When I receive these messages, I will " copy " and " paste " the

contents

> onto a sheet of SDS/MSA letterhead and will present the packet to

> Dr. Axelrod when I speak to the doctors later this month.

>

> Please, lets encourage these people! Write and send your letter

today!

>

> Thank You!

> Don Summers

> Pres. SDS/MSA Support Group

[Guest guest]

Hi ,

Thanks for the note! The meeting in Hilton Head is from Oct. 24-27th.

Sylvia and I will attend on behalf of the

Support Group. They allow us to have a booth there with our brochures etc.

The meetings are composed of serious physician and researcher presentations.

I think that two or three of the presentations this year are directed

towards

MSA. I don't know how helpful it would be for you and to attend or

whether you would enjoy it at all. The medical terms used by the doctors in

presentations to other doctors is generally so far over my head that I am

very quickly lost. This is a meeting of doctors speaking to doctors and I

find myself being pretty much on the sidelines!

The main reason for us being there is to meet the doctors outside of the

conference and continue to make each of them aware of the Support Group,

express to them how much they are appreciated and remind them to refer

patients and family members who are dealing with SDS/MSA to our Support

Group. We carry brochures with us, give them to the attendees and ask for

permission to send a supply of them to their offices where they can be

displayed.

Do you still live there in Hilton Head? Maybe we could get together and

have dinner or something. Please stay in touch.

I'd love to get together with y'all while we're there.

Best regards to you both,

Don Summers

Re: PLEASE HELP! Letters to The American Autonomic Society

> --

> Hi Don.

> and I will try to put together something. He has only been

> home from the hosp. a week now, and starting to make some gains

> on the loss of strength.

>

> When is the AAS meeting here in Hilton Head? Is it something we

> could attend? Hilton Head is where we have lived since 1995 and if

> you have never been here your in for a pleasant time. It is a

> beautiful Island. It will nice to get a chance to meet you while you

> are here. Let me know more about the AAS meeting. I will encourage

> all our Docs to attend.

>

> and Hanson (Hilton Head Is.)

>

>

>

>

>

>

> - In shydrager@y..., " Don Summers " <donsums@c...> wrote:

> >

> > Hi Everyone,

> > I'm resending this to make sure that I have your attention.

> > I really need your help with this!

> >

> > At the Chicago meeting, I mentioned that I would like a number of

> people in the

> > Support Group to write letters to be delivered to the Physicians at

> the AAS

> > meeting this year at Hilton Head S.C. Sylvia and I will be

> attending this meeting.

> > Each year I have the opportunity to speak for a few minutes to the

> physicians

> > who are in attendance at that meeting. For the past several years

> my main

> > message to them has been to express our whole-hearted support for

> their

> > work and our deep appreciation for their dedication and diligence

> in the

> > research and treatment of patients with SDS/MSA.

> > This year, I would likle to go a step farther by taking a packet

> of letters from

> > patients, caregivers and family members to the meeting.

> > Would you all be willing to help me with this? If so, please

> send me an

> > e-mail with the subject " Letter to AAS " in the body of the

> message, please type:

> >

> > Dr. Felicia Axelrod

> > President, American Autonomic Society

> >

> > In your message, please join me in voicing our appreciation

> > (in your own words of course) of their collective work.

> >

> > ( These are the people who are at the forefront in research,

> medication testing,

> > patient counseling, Clinical trials etc.)

> >

> > You may either use your full name or only your first name. Your

> location,

> > e-mail address or mailing address is not necessary.

> >

> > When I receive these messages, I will " copy " and " paste " the

> contents

> > onto a sheet of SDS/MSA letterhead and will present the packet to

> > Dr. Axelrod when I speak to the doctors later this month.

> >

> > Please, lets encourage these people! Write and send your letter

> today!

> >

> > Thank You!

> > Don Summers

> > Pres. SDS/MSA Support Group

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi ,

Thanks for the note! The meeting in Hilton Head is from Oct. 24-27th.

Sylvia and I will attend on behalf of the

Support Group. They allow us to have a booth there with our brochures etc.

The meetings are composed of serious physician and researcher presentations.

I think that two or three of the presentations this year are directed

towards

MSA. I don't know how helpful it would be for you and to attend or

whether you would enjoy it at all. The medical terms used by the doctors in

presentations to other doctors is generally so far over my head that I am

very quickly lost. This is a meeting of doctors speaking to doctors and I

find myself being pretty much on the sidelines!

The main reason for us being there is to meet the doctors outside of the

conference and continue to make each of them aware of the Support Group,

express to them how much they are appreciated and remind them to refer

patients and family members who are dealing with SDS/MSA to our Support

Group. We carry brochures with us, give them to the attendees and ask for

permission to send a supply of them to their offices where they can be

displayed.

Do you still live there in Hilton Head? Maybe we could get together and

have dinner or something. Please stay in touch.

I'd love to get together with y'all while we're there.

Best regards to you both,

Don Summers

Re: PLEASE HELP! Letters to The American Autonomic Society

> --

> Hi Don.

> and I will try to put together something. He has only been

> home from the hosp. a week now, and starting to make some gains

> on the loss of strength.

>

> When is the AAS meeting here in Hilton Head? Is it something we

> could attend? Hilton Head is where we have lived since 1995 and if

> you have never been here your in for a pleasant time. It is a

> beautiful Island. It will nice to get a chance to meet you while you

> are here. Let me know more about the AAS meeting. I will encourage

> all our Docs to attend.

>

> and Hanson (Hilton Head Is.)

>

>

>

>

>

>

> - In shydrager@y..., " Don Summers " <donsums@c...> wrote:

> >

> > Hi Everyone,

> > I'm resending this to make sure that I have your attention.

> > I really need your help with this!

> >

> > At the Chicago meeting, I mentioned that I would like a number of

> people in the

> > Support Group to write letters to be delivered to the Physicians at

> the AAS

> > meeting this year at Hilton Head S.C. Sylvia and I will be

> attending this meeting.

> > Each year I have the opportunity to speak for a few minutes to the

> physicians

> > who are in attendance at that meeting. For the past several years

> my main

> > message to them has been to express our whole-hearted support for

> their

> > work and our deep appreciation for their dedication and diligence

> in the

> > research and treatment of patients with SDS/MSA.

> > This year, I would likle to go a step farther by taking a packet

> of letters from

> > patients, caregivers and family members to the meeting.

> > Would you all be willing to help me with this? If so, please

> send me an

> > e-mail with the subject " Letter to AAS " in the body of the

> message, please type:

> >

> > Dr. Felicia Axelrod

> > President, American Autonomic Society

> >

> > In your message, please join me in voicing our appreciation

> > (in your own words of course) of their collective work.

> >

> > ( These are the people who are at the forefront in research,

> medication testing,

> > patient counseling, Clinical trials etc.)

> >

> > You may either use your full name or only your first name. Your

> location,

> > e-mail address or mailing address is not necessary.

> >

> > When I receive these messages, I will " copy " and " paste " the

> contents

> > onto a sheet of SDS/MSA letterhead and will present the packet to

> > Dr. Axelrod when I speak to the doctors later this month.

> >

> > Please, lets encourage these people! Write and send your letter

> today!

> >

> > Thank You!

> > Don Summers

> > Pres. SDS/MSA Support Group

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>