Re: OK so now I belong here!

[Guest guest]

Hi Gretchen,

knowing what is the matter with you is a great relief. The big

search " What is wrong with me " has ended. Now you can treat the

symptoms without troubling the tests. At least, that is what Anne

went through. Finally after her dx she was allowed to take florinef

and midodrine and she also gets injections with epofirine.

Again welcome and we hope to be of great help to you.

Timo

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was

being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know

I

> was here...On a personal note...Ann I lost your number please call

me!

>

>

> Peace and Light,

> Gretchen in Tennessee

[Guest guest]

Hi Gretchen,

knowing what is the matter with you is a great relief. The big

search " What is wrong with me " has ended. Now you can treat the

symptoms without troubling the tests. At least, that is what Anne

went through. Finally after her dx she was allowed to take florinef

and midodrine and she also gets injections with epofirine.

Again welcome and we hope to be of great help to you.

Timo

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was

being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know

I

> was here...On a personal note...Ann I lost your number please call

me!

>

>

> Peace and Light,

> Gretchen in Tennessee

[Guest guest]

Gretchen,

Welcome, sorry you have to be here.

If you suddenly start going downhill rapidly, ask your doctors to check

you for all types of infection. With MSA you often do not run a high

temperature (above 99 deg) until you have a fullblown blood infection.

Take care, Bill Werre

-----------------------------------------------------

antillesg2 wrote:

>Hi All, This is Gretchen from Tennessee...

>About a few months ago I joined this group as the MSA word was being

>mentioned in my case. I am 36 and was diagnosed with Young Onset

>parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

>is no long just a mere mention it is an official diagnosis. I have

>been going down hill for the past many months and not responding to

>the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

>have kept up with ALL my emails but now, I think I need to be more

>active in this wonderful support network. I think it will take some

>time for my family and I to adjust...we had just gotten adjusted to

>the PD... Anyway, just thought I would say hi and let you all know I

>was here...On a personal note...Ann I lost your number please call me!

>

>

>Peace and Light,

>Gretchen in Tennessee

>

>

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Gretchen,

Welcome, sorry you have to be here.

If you suddenly start going downhill rapidly, ask your doctors to check

you for all types of infection. With MSA you often do not run a high

temperature (above 99 deg) until you have a fullblown blood infection.

Take care, Bill Werre

-----------------------------------------------------

antillesg2 wrote:

>Hi All, This is Gretchen from Tennessee...

>About a few months ago I joined this group as the MSA word was being

>mentioned in my case. I am 36 and was diagnosed with Young Onset

>parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

>is no long just a mere mention it is an official diagnosis. I have

>been going down hill for the past many months and not responding to

>the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

>have kept up with ALL my emails but now, I think I need to be more

>active in this wonderful support network. I think it will take some

>time for my family and I to adjust...we had just gotten adjusted to

>the PD... Anyway, just thought I would say hi and let you all know I

>was here...On a personal note...Ann I lost your number please call me!

>

>

>Peace and Light,

>Gretchen in Tennessee

>

>

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Gretchen

I have been sick so have not called. My number is 332-3844. Think of

you and family often.

Ann from Soddy, TN

[Guest guest]

Gretchen

I have been sick so have not called. My number is 332-3844. Think of

you and family often.

Ann from Soddy, TN

[Guest guest]

Hi Gretchen,

I am from Tullahoma, TN. I would love to be able to assist you, if you are

any where near. There are others in TN as well.

Marilyn in TN

>

> Reply-To: shydrager

> Date: Tue, 15 Oct 2002 01:12:23 -0000

> To: shydrager

> Subject: OK so now I belong here!

>

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know I

> was here...On a personal note...Ann I lost your number please call me!

>

>

> Peace and Light,

> Gretchen in Tennessee

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi Gretchen,

I am from Tullahoma, TN. I would love to be able to assist you, if you are

any where near. There are others in TN as well.

Marilyn in TN

>

> Reply-To: shydrager

> Date: Tue, 15 Oct 2002 01:12:23 -0000

> To: shydrager

> Subject: OK so now I belong here!

>

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know I

> was here...On a personal note...Ann I lost your number please call me!

>

>

> Peace and Light,

> Gretchen in Tennessee

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi Gretchen,

Oh how so familiar your story sounds to us! We are going through exactly the

same as you have. Al just turned 58 on September 11th this year and had only

just learnt in August that he didn't have PD but a new disease to us called

MSA! Wow just when you think you can cope with one thing, another very

unexpected problem arises with its big ugly head!

Al feels like " death " everyday nothing he has been given in PD meds works!

No one seems to be able to answer our questions to date, but we do need to

give our new Doctors some grace as Al is a very new client of theirs. I just

thank the Lord that we are all able to communicate by E-mail's through our

Computers.

Gretchen you can contact me on algernon@...

Thanking you,

Ann

OK so now I belong here!

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know I

> was here...On a personal note...Ann I lost your number please call me!

>

>

> Peace and Light,

> Gretchen in Tennessee

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi Gretchen,

Oh how so familiar your story sounds to us! We are going through exactly the

same as you have. Al just turned 58 on September 11th this year and had only

just learnt in August that he didn't have PD but a new disease to us called

MSA! Wow just when you think you can cope with one thing, another very

unexpected problem arises with its big ugly head!

Al feels like " death " everyday nothing he has been given in PD meds works!

No one seems to be able to answer our questions to date, but we do need to

give our new Doctors some grace as Al is a very new client of theirs. I just

thank the Lord that we are all able to communicate by E-mail's through our

Computers.

Gretchen you can contact me on algernon@...

Thanking you,

Ann

OK so now I belong here!

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know I

> was here...On a personal note...Ann I lost your number please call me!

>

>

> Peace and Light,

> Gretchen in Tennessee

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi Gretchen.

Pablito here...

Or :-)

I'm a youngun too. Just turned 40.

I still don't have the formal MSA Dx, but the docs can do that when

they can find the time to see me :-)

Anyway, welcome.

I probably haven't been around here near as long as you have

been " watching " - but wanted to welcome you.

All for now.

I should try to see if I can get a wee bit more sleep.

Pablito

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was

being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know

I

> was here...On a personal note...Ann I lost your number please call

me!

>

>

> Peace and Light,

> Gretchen in Tennessee

[Guest guest]

Hi Gretchen.

Pablito here...

Or :-)

I'm a youngun too. Just turned 40.

I still don't have the formal MSA Dx, but the docs can do that when

they can find the time to see me :-)

Anyway, welcome.

I probably haven't been around here near as long as you have

been " watching " - but wanted to welcome you.

All for now.

I should try to see if I can get a wee bit more sleep.

Pablito

> Hi All, This is Gretchen from Tennessee...

> About a few months ago I joined this group as the MSA word was

being

> mentioned in my case. I am 36 and was diagnosed with Young Onset

> parkison's 2 1/2 years ago. Well.... as of last week...the MSA word

> is no long just a mere mention it is an official diagnosis. I have

> been going down hill for the past many months and not responding to

> the PD meds, doing all the MSA stuff on top of it. SO, here I am. I

> have kept up with ALL my emails but now, I think I need to be more

> active in this wonderful support network. I think it will take some

> time for my family and I to adjust...we had just gotten adjusted to

> the PD... Anyway, just thought I would say hi and let you all know

I

> was here...On a personal note...Ann I lost your number please call

me!

>

>

> Peace and Light,

> Gretchen in Tennessee