Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 Hi there can anyone help us out there with their experience of MSA disease? My husband has only recently been given confirmation that he has MSA and not Parkinson's Disease as he was told late in 2000. He constantly suffers from severe headaches (Panadeine Forte & Panamax) which nothing he takes relieves the pain. The dizziness he finds unbearable. His other problem is the constant "hot burning" in his legs which is aggreviated more with the summer weather. Presently he is taking Madopar, Zoloft, Florinef, Alepam, Bio Mangnesium, Vit E, Pluravit and just recently Slow K (salt tablets). His deterioration has been very rapid over the past 18 months and he will soon require more medical equipment to help him around the home. After a visit to hospital earlier this year he was taken off the drug called "Minipress" which was causing him to have several blackouts, resulting in his body becoming rigid. The ataxia is making it more and more difficult for him to walk around safely. Visits away from home has ceased - he generally suffers from phobia especially in crowded places. Depression sometimes is managed very well with Zoloft - but other times its just not strong enough. Loss of appetite is a constant worry and menus always have to be changed - eating is becoming much slower. His body is already showing signs of wasting away which is typical of this disease dispite his attempts at exercising. He suffers from very low blood pressure which his present medication isn't helping him to cope with this condition. We have recently changed our local GP, neurologist and urologist and have found that they are all very supportive, understanding caring individuals who were shocked to hear our story about the past treatment my husband had received. If anyone else is experiencing the same problem - please don't hestitate in seeking a second or third opinion on your loved ones condition. Our past doctors knew nothing about my husbands condition nor were they really interested in listening to our concerns. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 Hi there can anyone help us out there with their experience of MSA disease? My husband has only recently been given confirmation that he has MSA and not Parkinson's Disease as he was told late in 2000. He constantly suffers from severe headaches (Panadeine Forte & Panamax) which nothing he takes relieves the pain. The dizziness he finds unbearable. His other problem is the constant "hot burning" in his legs which is aggreviated more with the summer weather. Presently he is taking Madopar, Zoloft, Florinef, Alepam, Bio Mangnesium, Vit E, Pluravit and just recently Slow K (salt tablets). His deterioration has been very rapid over the past 18 months and he will soon require more medical equipment to help him around the home. After a visit to hospital earlier this year he was taken off the drug called "Minipress" which was causing him to have several blackouts, resulting in his body becoming rigid. The ataxia is making it more and more difficult for him to walk around safely. Visits away from home has ceased - he generally suffers from phobia especially in crowded places. Depression sometimes is managed very well with Zoloft - but other times its just not strong enough. Loss of appetite is a constant worry and menus always have to be changed - eating is becoming much slower. His body is already showing signs of wasting away which is typical of this disease dispite his attempts at exercising. He suffers from very low blood pressure which his present medication isn't helping him to cope with this condition. We have recently changed our local GP, neurologist and urologist and have found that they are all very supportive, understanding caring individuals who were shocked to hear our story about the past treatment my husband had received. If anyone else is experiencing the same problem - please don't hestitate in seeking a second or third opinion on your loved ones condition. Our past doctors knew nothing about my husbands condition nor were they really interested in listening to our concerns. Ann Quote Link to comment Share on other sites More sharing options...
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