Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Hi Caycee, Glad to hear from you again! I'm sorry your nerve problems are still there, I guess I was hoping for better for you over time. I do know that some things can take years to return to normal. It's pretty awful when you have to arm yourself with your own evidence to get your surgeon to recognize your pain, though. It's not the first time I've heard that - my friend is an RN, and had trouble getting her surgeon or ortho to acknowledge her pain as well. I think Cammie says it best (or perhaps it was one of her surgeons who said it) " the patient knows pain best " . Hopefully the recent surgery will improve things for you - I have my fingers crossed. Best wishes always, > Hi Robbin, > > Caycee here...people who have been around here forever will remember me (Hi, > Cammie and !!) I am 2 1/2 years post op. I had upper and lower. You > aren't alone in the problems you are having. I have had problems for the whole > two + years since my surgery. My problems have been a little different....but > I sure understand your frustration. > > I had/have a lot of problems with tingling and nerve pain (I also have > numbness in my upper gums and upper lip...but compared to the pain and intense > tingling...I am thankful for numbness). I have been back and forth with my surgeon > trying to get him to address my problems. I had no luck for the longest > time. Last month I went to see him armed with Internet printouts regarding skull > base surgery to fix trigeminal nerve pain. I had already been through the MRI > that the skull base surgeon prescribed but hadn't gone for an initial > consultation. My orthognathic surgeon must have thought " Gee, she must be serious > that she is in pain...she's threatening brain surgery! " Finally, he (well > actually it was his partner) told me that some of my pain might be from my upper > plate. I had it removed on Monday, August 2, 2004. I'm still recovering from > the plate removal so I don't know the long term results. I can tell you that > in my case, there was soft tissue that had grown into my sinus as a result of > my original jaw surgery. My surgeon thinks that was the source of some of my > pain. Sinus involvement might explain your nasal discharge. My surgeon > thinks that the plate removal (plus he removed the soft tissue that wasn't supposed > to be near my sinus) combined with antibiotics will heal the opening in the > sinus with no additional surgery. > > I am still pretty unsatisfied with the results of my surgery when I factor in > the pain, tingling and disturbing sensation changes I have. (plus, I didn't > get any cosmetic benefits from my surgery...actually I came out looking worse > than when I went in) I started joking with my family that I am going to start > referring to my original jaw surgery as " the accident " > > Disclaimer for those who are reading this. My results are not the typical. > Don't let me scare you out of surgery. First, I am older than most patients > (50 yrs old when I had the surgery). I had the surgery to correct a breathing > problem that caused sleep apnea. I also had an earlier lower jaw surgery 35 > years ago to correct an underbite. The vast majority of orthognathic surgery > patients do not have long term distressing results. I'm just one of the very > unlucky few who did. > > In a message dated 8/5/2004 8:25:14 PM Pacific Standard Time, > no_reply writes: > > > Subj: Year Post Op..Problems > > Date: 8/5/2004 8:25:14 PM Pacific Standard Time > > From: no_reply > > Reply-to: orthognathicsurgerysupport > > To: orthognathicsurgerysupport > > Sent from the Internet > > > > > > > > I really need to talk with someone about my situation and I know > > someone here can help me. You all were so helpfull pre-op, so I'm > > back I had U/L jaw surgery 1 yr ago. I have four plates and 15 > > screws holding everything. Before my surgery I had no TMJ or sinus > > problems. I had the surgery due to an anterior open bite that was so > > large that when my teeth were together I could stick my ring finger > > through the space. Couldn't bite anything apart like lettuce, > > chicken, etc. My bite was off and they said I will have crowns on > > all my molars here soon due to the pressure I was putting on only > > those teeth. Now that I've had the surgery I'm having problems and > > questioning everything. My left jaw pops all the time and gets very > > sore. I can hear the bones rubbing at times. I'm still completly > > numb on the upper gums, nose and part of Upper lip. (No numbness on > > lower) and my nose constantly is running clear (ecspecially when I > > eat). I went to my surgeon last week and he wants to remover the > > plates and screws for whatever reason. Also my left condile (bone in > > jaw) is flat on top from the popping and rubbing. I was in such shock > > cause I thought I was done with the whole surgery thing. Has anyone > > else had problems similiar to mine? The doctor is just not a real > > people person and didn't go into every detail, so I want to know if > > this stuff is normal. Their office has already called wanting to > > schedule the removale of everything surgery. I told them I had to > > wait and take all this is and would get back to them. I'm thinking > > of seeing another surgeon for a second opinion. Let me know what you > > think and I hope someone has news to ease my stress on this. > > Thanks, > > Robbin > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Hi Caycee, Glad to hear from you again! I'm sorry your nerve problems are still there, I guess I was hoping for better for you over time. I do know that some things can take years to return to normal. It's pretty awful when you have to arm yourself with your own evidence to get your surgeon to recognize your pain, though. It's not the first time I've heard that - my friend is an RN, and had trouble getting her surgeon or ortho to acknowledge her pain as well. I think Cammie says it best (or perhaps it was one of her surgeons who said it) " the patient knows pain best " . Hopefully the recent surgery will improve things for you - I have my fingers crossed. Best wishes always, > Hi Robbin, > > Caycee here...people who have been around here forever will remember me (Hi, > Cammie and !!) I am 2 1/2 years post op. I had upper and lower. You > aren't alone in the problems you are having. I have had problems for the whole > two + years since my surgery. My problems have been a little different....but > I sure understand your frustration. > > I had/have a lot of problems with tingling and nerve pain (I also have > numbness in my upper gums and upper lip...but compared to the pain and intense > tingling...I am thankful for numbness). I have been back and forth with my surgeon > trying to get him to address my problems. I had no luck for the longest > time. Last month I went to see him armed with Internet printouts regarding skull > base surgery to fix trigeminal nerve pain. I had already been through the MRI > that the skull base surgeon prescribed but hadn't gone for an initial > consultation. My orthognathic surgeon must have thought " Gee, she must be serious > that she is in pain...she's threatening brain surgery! " Finally, he (well > actually it was his partner) told me that some of my pain might be from my upper > plate. I had it removed on Monday, August 2, 2004. I'm still recovering from > the plate removal so I don't know the long term results. I can tell you that > in my case, there was soft tissue that had grown into my sinus as a result of > my original jaw surgery. My surgeon thinks that was the source of some of my > pain. Sinus involvement might explain your nasal discharge. My surgeon > thinks that the plate removal (plus he removed the soft tissue that wasn't supposed > to be near my sinus) combined with antibiotics will heal the opening in the > sinus with no additional surgery. > > I am still pretty unsatisfied with the results of my surgery when I factor in > the pain, tingling and disturbing sensation changes I have. (plus, I didn't > get any cosmetic benefits from my surgery...actually I came out looking worse > than when I went in) I started joking with my family that I am going to start > referring to my original jaw surgery as " the accident " > > Disclaimer for those who are reading this. My results are not the typical. > Don't let me scare you out of surgery. First, I am older than most patients > (50 yrs old when I had the surgery). I had the surgery to correct a breathing > problem that caused sleep apnea. I also had an earlier lower jaw surgery 35 > years ago to correct an underbite. The vast majority of orthognathic surgery > patients do not have long term distressing results. I'm just one of the very > unlucky few who did. > > In a message dated 8/5/2004 8:25:14 PM Pacific Standard Time, > no_reply writes: > > > Subj: Year Post Op..Problems > > Date: 8/5/2004 8:25:14 PM Pacific Standard Time > > From: no_reply > > Reply-to: orthognathicsurgerysupport > > To: orthognathicsurgerysupport > > Sent from the Internet > > > > > > > > I really need to talk with someone about my situation and I know > > someone here can help me. You all were so helpfull pre-op, so I'm > > back I had U/L jaw surgery 1 yr ago. I have four plates and 15 > > screws holding everything. Before my surgery I had no TMJ or sinus > > problems. I had the surgery due to an anterior open bite that was so > > large that when my teeth were together I could stick my ring finger > > through the space. Couldn't bite anything apart like lettuce, > > chicken, etc. My bite was off and they said I will have crowns on > > all my molars here soon due to the pressure I was putting on only > > those teeth. Now that I've had the surgery I'm having problems and > > questioning everything. My left jaw pops all the time and gets very > > sore. I can hear the bones rubbing at times. I'm still completly > > numb on the upper gums, nose and part of Upper lip. (No numbness on > > lower) and my nose constantly is running clear (ecspecially when I > > eat). I went to my surgeon last week and he wants to remover the > > plates and screws for whatever reason. Also my left condile (bone in > > jaw) is flat on top from the popping and rubbing. I was in such shock > > cause I thought I was done with the whole surgery thing. Has anyone > > else had problems similiar to mine? The doctor is just not a real > > people person and didn't go into every detail, so I want to know if > > this stuff is normal. Their office has already called wanting to > > schedule the removale of everything surgery. I told them I had to > > wait and take all this is and would get back to them. I'm thinking > > of seeing another surgeon for a second opinion. Let me know what you > > think and I hope someone has news to ease my stress on this. > > Thanks, > > Robbin > > > > Quote Link to comment Share on other sites More sharing options...
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