Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi Gretchen, This is Maciejewski, and welcome to the group. I am so sorry you have to be here, but glad you found us all the same! My husband, Jeff has been dx'd with MSA. He is 37, so I can relate to your feelings right now. Just wanted to tell you to hang in there. Some days will be good, some not so good. It may take your family some time to accept and understand all of this. We have been dealing with it for several years, and our families are just now beginning to understand the enormity of the situation. Anyway, welcome again! M. Hi All, This is Gretchen from Tennessee... > About a few months ago I joined this group as the MSA word was being > mentioned in my case. I am 36 and was diagnosed with Young Onset > parkison's 2 1/2 years ago. Well.... as of last week...the MSA word > is no long just a mere mention it is an official diagnosis. I have > been going down hill for the past many months and not responding to > the PD meds, doing all the MSA stuff on top of it. SO, here I am. I > have kept up with ALL my emails but now, I think I need to be more > active in this wonderful support network. I think it will take some > time for my family and I to adjust...we had just gotten adjusted to > the PD... Anyway, just thought I would say hi and let you all know I > was here...On a personal note...Ann I lost your number please call me! > > > Peace and Light, > Gretchen in Tennessee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi Gretchen, This is Maciejewski, and welcome to the group. I am so sorry you have to be here, but glad you found us all the same! My husband, Jeff has been dx'd with MSA. He is 37, so I can relate to your feelings right now. Just wanted to tell you to hang in there. Some days will be good, some not so good. It may take your family some time to accept and understand all of this. We have been dealing with it for several years, and our families are just now beginning to understand the enormity of the situation. Anyway, welcome again! M. Hi All, This is Gretchen from Tennessee... > About a few months ago I joined this group as the MSA word was being > mentioned in my case. I am 36 and was diagnosed with Young Onset > parkison's 2 1/2 years ago. Well.... as of last week...the MSA word > is no long just a mere mention it is an official diagnosis. I have > been going down hill for the past many months and not responding to > the PD meds, doing all the MSA stuff on top of it. SO, here I am. I > have kept up with ALL my emails but now, I think I need to be more > active in this wonderful support network. I think it will take some > time for my family and I to adjust...we had just gotten adjusted to > the PD... Anyway, just thought I would say hi and let you all know I > was here...On a personal note...Ann I lost your number please call me! > > > Peace and Light, > Gretchen in Tennessee Quote Link to comment Share on other sites More sharing options...
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