Re: ATTN: Timo and Anne, looking for decent neurologist in NL

[Guest guest]

Hoi Marcel,

thanks for your support and thoughts.

The Neuro we are seeing is Dr. Berendse in the VU hospital in

Amsterdam. Wether he is skilled enough to set diagnose we don't know,

since we did all the investigations on the internet and we were

suggestion it could be MSA. After that we suggested it might be PAF

because of some symptoms that are not common with MSA. And he also

agreed. Also he said he had no other patients with MSA. Also about

medication to treat the symptoms we had to ask wether Anne could use

florinef and gutron (midodrine).

Taking in consideration the city your father lives (Maastricht), I

suggest you contact the hospital in Nijmegen. I was told that a neuro

overthere booked some good results concerning MSA-patients.

Having problems with her bowels, we heard of a professor in Utrecht

who is specialised in MSA and bowels.

I hope I was able to help you,

Timo

> I was wondering if you could give me the name of the neurologist

you are

> seeing and the hospital he works at. When early this year the

neurologist

> at the Maastricht University hospital had concluded that based on

the

> symptoms my father had then (low BP, swaying) he did not have MSA,

he had

> also said that no further tests were needed.

> Now, however, with his current symptoms, we think he should be

seeing a

> neurologist again. We will get the results from the tests the

Internist

> (Dutch word, is that the same in English?) ordered Nov. 7th, and

based on

> that maybe he will already be referred back to a neurologist, but

the fact

> is that there is no neurologist at that hospital with any

experience

> whatsoever with MSA, and seeing the initial reaction of the one my

father

> did see, we were thiking a second opinion might be needed. So we

wondered

> where in The Netherlands we would be able to find a neurologist

with some

> experience with MSA, and that's when I thought of you.

>

> Apart from that I just wanted to wish you all the best. I had

replied to

> your e-mail earlier (update on a dutch girl) but it turns out I've

been

> happily sending mail from an account not subscribed to the list.

Doh.

> Anyway, just wanted to let you know you're both in my thoughts and

I wish

> you well.

>

> Marcel Abraas

> Rotterdam

[Guest guest]

Hoi Marcel,

thanks for your support and thoughts.

The Neuro we are seeing is Dr. Berendse in the VU hospital in

Amsterdam. Wether he is skilled enough to set diagnose we don't know,

since we did all the investigations on the internet and we were

suggestion it could be MSA. After that we suggested it might be PAF

because of some symptoms that are not common with MSA. And he also

agreed. Also he said he had no other patients with MSA. Also about

medication to treat the symptoms we had to ask wether Anne could use

florinef and gutron (midodrine).

Taking in consideration the city your father lives (Maastricht), I

suggest you contact the hospital in Nijmegen. I was told that a neuro

overthere booked some good results concerning MSA-patients.

Having problems with her bowels, we heard of a professor in Utrecht

who is specialised in MSA and bowels.

I hope I was able to help you,

Timo

> I was wondering if you could give me the name of the neurologist

you are

> seeing and the hospital he works at. When early this year the

neurologist

> at the Maastricht University hospital had concluded that based on

the

> symptoms my father had then (low BP, swaying) he did not have MSA,

he had

> also said that no further tests were needed.

> Now, however, with his current symptoms, we think he should be

seeing a

> neurologist again. We will get the results from the tests the

Internist

> (Dutch word, is that the same in English?) ordered Nov. 7th, and

based on

> that maybe he will already be referred back to a neurologist, but

the fact

> is that there is no neurologist at that hospital with any

experience

> whatsoever with MSA, and seeing the initial reaction of the one my

father

> did see, we were thiking a second opinion might be needed. So we

wondered

> where in The Netherlands we would be able to find a neurologist

with some

> experience with MSA, and that's when I thought of you.

>

> Apart from that I just wanted to wish you all the best. I had

replied to

> your e-mail earlier (update on a dutch girl) but it turns out I've

been

> happily sending mail from an account not subscribed to the list.

Doh.

> Anyway, just wanted to let you know you're both in my thoughts and

I wish

> you well.

>

> Marcel Abraas

> Rotterdam

[Guest guest]

Thanks Timo,

this definitely helps, I'll be calling the Nijmegen hospital this week. If

I find out anything, I'll let you know.

Marcel

At 08:07 PM 11/1/2002 +0000, you wrote:

>Hoi Marcel,

>

>thanks for your support and thoughts.

>The Neuro we are seeing is Dr. Berendse in the VU hospital in

>Amsterdam. Wether he is skilled enough to set diagnose we don't know,

>since we did all the investigations on the internet and we were

>suggestion it could be MSA. After that we suggested it might be PAF

>because of some symptoms that are not common with MSA. And he also

>agreed. Also he said he had no other patients with MSA. Also about

>medication to treat the symptoms we had to ask wether Anne could use

>florinef and gutron (midodrine).

>

>Taking in consideration the city your father lives (Maastricht), I

>suggest you contact the hospital in Nijmegen. I was told that a neuro

>overthere booked some good results concerning MSA-patients.

>

>Having problems with her bowels, we heard of a professor in Utrecht

>who is specialised in MSA and bowels.

>

>I hope I was able to help you,

>

>Timo

[Guest guest]

Thanks Timo,

this definitely helps, I'll be calling the Nijmegen hospital this week. If

I find out anything, I'll let you know.

Marcel

At 08:07 PM 11/1/2002 +0000, you wrote:

>Hoi Marcel,

>

>thanks for your support and thoughts.

>The Neuro we are seeing is Dr. Berendse in the VU hospital in

>Amsterdam. Wether he is skilled enough to set diagnose we don't know,

>since we did all the investigations on the internet and we were

>suggestion it could be MSA. After that we suggested it might be PAF

>because of some symptoms that are not common with MSA. And he also

>agreed. Also he said he had no other patients with MSA. Also about

>medication to treat the symptoms we had to ask wether Anne could use

>florinef and gutron (midodrine).

>

>Taking in consideration the city your father lives (Maastricht), I

>suggest you contact the hospital in Nijmegen. I was told that a neuro

>overthere booked some good results concerning MSA-patients.

>

>Having problems with her bowels, we heard of a professor in Utrecht

>who is specialised in MSA and bowels.

>

>I hope I was able to help you,

>

>Timo