Re: Ray: any oldies had pretty numb tongue 5 months post op?

[Guest guest]

>

> Oh, do you have hope Ray? I do, but ..... hmmmmm. i know what you

> mean about the retainer, i am not there yet, but have had braces

> twice before this and remember how hard it was to talk WITH ALL

> FEELING in tongue. i am not looking forward to that in regards to

> our numb tongue situation. does your OS say anything that is

> encouraging? my OS just said that he would never recommend me for

> nerve repair as long as i had a tingle. i don't think i would want

> to go through that anyway, but i so want the feeling back. is yours

> your whole tongue? mine is just the left. bothersome. Congrats on

> getting your top braces off.

>

The surgeon told me that since there was no improvement, what

so ever, for the passed 5 months, chances were very little that my

tongue would fully return to its healthy state. Little chances,

but still, there is hope. She saw patients having spontaneous

nerve regeneration 18 months after the surgery. She refused

to discuss alternate treatments before the 2 year mark.

As for the state it's in actually, I can't feel a thing on the left,

except for a small thin line. Palate and upper gums are still totally

numb. There is one advantage though... I have no need for

injection when I go to the dentist

All this to say, I knew what I was getting in, and I understood the

risks.. So, I kind of learned to live with it since.

Ray

[Guest guest]

>

> Oh, do you have hope Ray? I do, but ..... hmmmmm. i know what you

> mean about the retainer, i am not there yet, but have had braces

> twice before this and remember how hard it was to talk WITH ALL

> FEELING in tongue. i am not looking forward to that in regards to

> our numb tongue situation. does your OS say anything that is

> encouraging? my OS just said that he would never recommend me for

> nerve repair as long as i had a tingle. i don't think i would want

> to go through that anyway, but i so want the feeling back. is yours

> your whole tongue? mine is just the left. bothersome. Congrats on

> getting your top braces off.

>

The surgeon told me that since there was no improvement, what

so ever, for the passed 5 months, chances were very little that my

tongue would fully return to its healthy state. Little chances,

but still, there is hope. She saw patients having spontaneous

nerve regeneration 18 months after the surgery. She refused

to discuss alternate treatments before the 2 year mark.

As for the state it's in actually, I can't feel a thing on the left,

except for a small thin line. Palate and upper gums are still totally

numb. There is one advantage though... I have no need for

injection when I go to the dentist

All this to say, I knew what I was getting in, and I understood the

risks.. So, I kind of learned to live with it since.

Ray

[Guest guest]

Hang in there, Ray. I had my surgery in February (2003), and it

wasn't until October that year that I regained a tiny bit of

feeling - and that was only after taking a tremendous bit out of my

tongue.

So far for me, the feeling is coming back from the " inside out " .

With my chin and lip the first thing I could feel was a very light

touch. I couldn't feel a harder touch at all initially, but a light

brushing with a q-tip came through. With my tongue it's the

opposite - even now 18 months post-op I can't feel much on the

surface, but if I give my tongue a good hard poke I can now feel it.

The feeling also isn't coming back in all areas at once - it seems

to be returning from the very back and migrating slowly towards the

tip, and also from the side towards the center.

This is a long-winded way of saying that the nerves might indeed be

recovering but you just can't feel it yet.

BTW, this may be in the realm of snake-oil, but I did start taking b-

12 at about 3 months post-op. I have no idea if it helped or not,

but it couldn't have made things worse, right? There's two forms of

b-12 out there. If you decide to try it, get the " Methyl B-12 " form.

If I'd done better research pre-op I would've started on it before

the surgery.

--Neil

> >

> > Oh, do you have hope Ray? I do, but ..... hmmmmm. i know what

you

> > mean about the retainer, i am not there yet, but have had braces

> > twice before this and remember how hard it was to talk WITH ALL

> > FEELING in tongue. i am not looking forward to that in regards

to

> > our numb tongue situation. does your OS say anything that is

> > encouraging? my OS just said that he would never recommend me

for

> > nerve repair as long as i had a tingle. i don't think i would

want

> > to go through that anyway, but i so want the feeling back. is

yours

> > your whole tongue? mine is just the left. bothersome. Congrats

on

> > getting your top braces off.

> >

>

>

> The surgeon told me that since there was no improvement, what

> so ever, for the passed 5 months, chances were very little that my

> tongue would fully return to its healthy state. Little chances,

> but still, there is hope. She saw patients having spontaneous

> nerve regeneration 18 months after the surgery. She refused

> to discuss alternate treatments before the 2 year mark.

>

> As for the state it's in actually, I can't feel a thing on the

left,

> except for a small thin line. Palate and upper gums are still

totally

> numb. There is one advantage though... I have no need for

> injection when I go to the dentist

>

> All this to say, I knew what I was getting in, and I understood the

> risks.. So, I kind of learned to live with it since.

>

> Ray

[Guest guest]

Hang in there, Ray. I had my surgery in February (2003), and it

wasn't until October that year that I regained a tiny bit of

feeling - and that was only after taking a tremendous bit out of my

tongue.

So far for me, the feeling is coming back from the " inside out " .

With my chin and lip the first thing I could feel was a very light

touch. I couldn't feel a harder touch at all initially, but a light

brushing with a q-tip came through. With my tongue it's the

opposite - even now 18 months post-op I can't feel much on the

surface, but if I give my tongue a good hard poke I can now feel it.

The feeling also isn't coming back in all areas at once - it seems

to be returning from the very back and migrating slowly towards the

tip, and also from the side towards the center.

This is a long-winded way of saying that the nerves might indeed be

recovering but you just can't feel it yet.

BTW, this may be in the realm of snake-oil, but I did start taking b-

12 at about 3 months post-op. I have no idea if it helped or not,

but it couldn't have made things worse, right? There's two forms of

b-12 out there. If you decide to try it, get the " Methyl B-12 " form.

If I'd done better research pre-op I would've started on it before

the surgery.

--Neil

> >

> > Oh, do you have hope Ray? I do, but ..... hmmmmm. i know what

you

> > mean about the retainer, i am not there yet, but have had braces

> > twice before this and remember how hard it was to talk WITH ALL

> > FEELING in tongue. i am not looking forward to that in regards

to

> > our numb tongue situation. does your OS say anything that is

> > encouraging? my OS just said that he would never recommend me

for

> > nerve repair as long as i had a tingle. i don't think i would

want

> > to go through that anyway, but i so want the feeling back. is

yours

> > your whole tongue? mine is just the left. bothersome. Congrats

on

> > getting your top braces off.

> >

>

>

> The surgeon told me that since there was no improvement, what

> so ever, for the passed 5 months, chances were very little that my

> tongue would fully return to its healthy state. Little chances,

> but still, there is hope. She saw patients having spontaneous

> nerve regeneration 18 months after the surgery. She refused

> to discuss alternate treatments before the 2 year mark.

>

> As for the state it's in actually, I can't feel a thing on the

left,

> except for a small thin line. Palate and upper gums are still

totally

> numb. There is one advantage though... I have no need for

> injection when I go to the dentist

>

> All this to say, I knew what I was getting in, and I understood the

> risks.. So, I kind of learned to live with it since.

>

> Ray

[Guest guest]

>

> Hang in there, Ray. I had my surgery in February (2003), and it

> wasn't until October that year that I regained a tiny bit of

> feeling - and that was only after taking a tremendous bit out of my

> tongue.

>

> So far for me, the feeling is coming back from the " inside out " .

> With my chin and lip the first thing I could feel was a very light

> touch. I couldn't feel a harder touch at all initially, but a light

> brushing with a q-tip came through. With my tongue it's the

> opposite - even now 18 months post-op I can't feel much on the

> surface, but if I give my tongue a good hard poke I can now feel it.

> The feeling also isn't coming back in all areas at once - it seems

> to be returning from the very back and migrating slowly towards the

> tip, and also from the side towards the center.

>

> This is a long-winded way of saying that the nerves might indeed be

> recovering but you just can't feel it yet.

>

> BTW, this may be in the realm of snake-oil, but I did start taking b-

> 12 at about 3 months post-op. I have no idea if it helped or not,

> but it couldn't have made things worse, right? There's two forms of

> b-12 out there. If you decide to try it, get the " Methyl B-12 " form.

> If I'd done better research pre-op I would've started on it before

> the surgery.

>

> --Neil

>

Thanks for the nice story Neil... It's good to hear an happy ending to

all this

I know about B12, I took some a year ago when my nervous system was

feeling bizarre (I was tired and jumpy at the same time). B-12 helped.

Ray

[Guest guest]

>

> Hang in there, Ray. I had my surgery in February (2003), and it

> wasn't until October that year that I regained a tiny bit of

> feeling - and that was only after taking a tremendous bit out of my

> tongue.

>

> So far for me, the feeling is coming back from the " inside out " .

> With my chin and lip the first thing I could feel was a very light

> touch. I couldn't feel a harder touch at all initially, but a light

> brushing with a q-tip came through. With my tongue it's the

> opposite - even now 18 months post-op I can't feel much on the

> surface, but if I give my tongue a good hard poke I can now feel it.

> The feeling also isn't coming back in all areas at once - it seems

> to be returning from the very back and migrating slowly towards the

> tip, and also from the side towards the center.

>

> This is a long-winded way of saying that the nerves might indeed be

> recovering but you just can't feel it yet.

>

> BTW, this may be in the realm of snake-oil, but I did start taking b-

> 12 at about 3 months post-op. I have no idea if it helped or not,

> but it couldn't have made things worse, right? There's two forms of

> b-12 out there. If you decide to try it, get the " Methyl B-12 " form.

> If I'd done better research pre-op I would've started on it before

> the surgery.

>

> --Neil

>

Thanks for the nice story Neil... It's good to hear an happy ending to

all this

I know about B12, I took some a year ago when my nervous system was

feeling bizarre (I was tired and jumpy at the same time). B-12 helped.

Ray