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Hello there,

I am 5 weeks post op and still have numbness under my eyes, on my chin and on my

lips. The doc says not to worry.

I think each person is different. It could take up to 6 months or longer I have

heard to get your feeling back.

I am starting to get used to being numb. I know it will come back eventually,

but it is really weird.

I have heard that some people never get their feeling back in small areas of

their mouth. But I think most get it back.

Shauna

>

> From: violettamoon <no_reply >

> Date: 2004/11/30 Tue AM 01:32:29 GMT

> To: orthognathicsurgerysupport

> Subject: [Orthognathic Surgery Support ] Numbness

>

>

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Hello there,

I am 5 weeks post op and still have numbness under my eyes, on my chin and on my

lips. The doc says not to worry.

I think each person is different. It could take up to 6 months or longer I have

heard to get your feeling back.

I am starting to get used to being numb. I know it will come back eventually,

but it is really weird.

I have heard that some people never get their feeling back in small areas of

their mouth. But I think most get it back.

Shauna

>

> From: violettamoon <no_reply >

> Date: 2004/11/30 Tue AM 01:32:29 GMT

> To: orthognathicsurgerysupport

> Subject: [Orthognathic Surgery Support ] Numbness

>

>

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Not everyone, ... At least not from lower jaw surgery alone.

How do I know? I had lower advancement, and had no numbness at all.

I do know that I was extraordinarily fortunate in this matter, and

unusual. Believe me, I'm grateful. But numbness is not universal.

Cammie

>

> I have not had surgery yet but maybe my perspective will help. I

> have an underbite as well and experience some locking and clicking

> occasionally. It's not to the point where I can't bare it any

> longer though. From reading many posts and from speaking with

> various medical professionals, I am told that there's a good

chance

> I will develop problems with pain and function as I get older (I'm

> 20 too). It also seems that the earlier you have this surgery,

the

> easier the healing process will be. In my case, I don't want to

> wait until the pain and function of my jaw is so painful that I

> can't bare it - I'd rather just fix the problem now before it

> worsens. Like you said, your TMJ may not go away with this

surgery,

> but chances are it'll get better after they correct the bite. As

> for numbness: it seems like everyone experiences a delayed return

of

> feeling in some part of their face after surgery. For a select

few,

> part of their face is numb years later (places like the tip of

their

> nose, the right part of their chin). Even if an area of numbness

> persists, they've all learned to deal with it and it's not a

problem

> in their every day lives. For most, in the end, that little bit

of

> numbness is a small price to pay for the positive results. I hope

> this helps!

>

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Not everyone, ... At least not from lower jaw surgery alone.

How do I know? I had lower advancement, and had no numbness at all.

I do know that I was extraordinarily fortunate in this matter, and

unusual. Believe me, I'm grateful. But numbness is not universal.

Cammie

>

> I have not had surgery yet but maybe my perspective will help. I

> have an underbite as well and experience some locking and clicking

> occasionally. It's not to the point where I can't bare it any

> longer though. From reading many posts and from speaking with

> various medical professionals, I am told that there's a good

chance

> I will develop problems with pain and function as I get older (I'm

> 20 too). It also seems that the earlier you have this surgery,

the

> easier the healing process will be. In my case, I don't want to

> wait until the pain and function of my jaw is so painful that I

> can't bare it - I'd rather just fix the problem now before it

> worsens. Like you said, your TMJ may not go away with this

surgery,

> but chances are it'll get better after they correct the bite. As

> for numbness: it seems like everyone experiences a delayed return

of

> feeling in some part of their face after surgery. For a select

few,

> part of their face is numb years later (places like the tip of

their

> nose, the right part of their chin). Even if an area of numbness

> persists, they've all learned to deal with it and it's not a

problem

> in their every day lives. For most, in the end, that little bit

of

> numbness is a small price to pay for the positive results. I hope

> this helps!

>

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  • 4 weeks later...

Kim:

I had lower jaw surgery last March and I still have some residual

numbness around my chin. The OS said the numbness could take some time to go

away.

But one thing I learned on this medium is that each surgery is different. My

lower jaw was 20 millimeters longer then average. The surgeon had a

challenge in pulling my lower jaw back. I would consult with your OS on the

specifics

on how long your numbness would last.

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Kim:

I had lower jaw surgery last March and I still have some residual

numbness around my chin. The OS said the numbness could take some time to go

away.

But one thing I learned on this medium is that each surgery is different. My

lower jaw was 20 millimeters longer then average. The surgeon had a

challenge in pulling my lower jaw back. I would consult with your OS on the

specifics

on how long your numbness would last.

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I had upper surgery on November 16th and rest assured it does get

better. I felt like a faucet that would not turn off for about two

to three weeks. It started getting better and then all of a sudden

got worse. I somehow ended up with a sinus infection but since the

z-pak antibiotic things have gotten much better.

The numbness gets better as well. I started out numb from just

underneath my eyes down through my upper lip. Now it is just a

small cirle around my upper lip to my lower cheeks. This is also

where I still have swelling. I work in a hospital (no not a nurse)

and our Director of O/R told me that I would feel improvement in the

numbness as the swelling subsided and it has. I actually have

feeling in my nose now.

Don't know if it is cold where you are but I have found that keeping

my face covered with a warm scarf when I go outside helps

tremendously.

Good luck.

>

> I had a la forte done dec. 16th. I am so numb, my nose runs and i

> can't feel it. what is the average length of time the numbness

> lasts. thanks for any input.

> kim

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I had upper surgery on November 16th and rest assured it does get

better. I felt like a faucet that would not turn off for about two

to three weeks. It started getting better and then all of a sudden

got worse. I somehow ended up with a sinus infection but since the

z-pak antibiotic things have gotten much better.

The numbness gets better as well. I started out numb from just

underneath my eyes down through my upper lip. Now it is just a

small cirle around my upper lip to my lower cheeks. This is also

where I still have swelling. I work in a hospital (no not a nurse)

and our Director of O/R told me that I would feel improvement in the

numbness as the swelling subsided and it has. I actually have

feeling in my nose now.

Don't know if it is cold where you are but I have found that keeping

my face covered with a warm scarf when I go outside helps

tremendously.

Good luck.

>

> I had a la forte done dec. 16th. I am so numb, my nose runs and i

> can't feel it. what is the average length of time the numbness

> lasts. thanks for any input.

> kim

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I had le forte 1 Nov. 17 and am still numb in my upper lip and lower

nose, but I can actually feel my nose now. My nose ran for the

first couple of weeks, but I am fine now. When my swelling goes

down the feeling comes back. My swelling is worse every morning and

then gets better by evening and then the whole process starts over

again.

Hang in there it will get better soon,

>

> I had a la forte done dec. 16th. I am so numb, my nose runs and i

> can't feel it. what is the average length of time the numbness

> lasts. thanks for any input.

> kim

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I had le forte 1 Nov. 17 and am still numb in my upper lip and lower

nose, but I can actually feel my nose now. My nose ran for the

first couple of weeks, but I am fine now. When my swelling goes

down the feeling comes back. My swelling is worse every morning and

then gets better by evening and then the whole process starts over

again.

Hang in there it will get better soon,

>

> I had a la forte done dec. 16th. I am so numb, my nose runs and i

> can't feel it. what is the average length of time the numbness

> lasts. thanks for any input.

> kim

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  • 3 years later...

Pomy, this happens quit often to many of us. It is part of the neuropathy and I know that it can sure be painful.

A couple of things that you may want to try is to really concentrate on your breathing-- exhaling fully, then taking in a deep slow breath. Do this for several minutes-- and see if the numbness goes away. If it does, then what is probably happening is that you were breathing really shallowy-- and you ended up actually hyperventilating. When this happens-- your fingers, toes, feet and hands will go numb, because you aren't getting oxygen to them. What you are getting is carbon dioxide-- and since your vital organs need what little oxygen there is in your blood at that time-- it slows the circulation down to your extremities.

The other component to check is your blood sugar. Is it high when this happens. If so- you may want to get some protein down-- cheese, a boiled egg, a piece of meat- chicken, etc. That way your blood sugar will start to balance out, and you'll have less glucose running thru your blood stream-- and less neuropathy.

Additionally-- if you are dehydrated-- and most of us are since we run low grade fevers constantly from the systemic inflammation-- making sure that you've been drinking enough water or decaf tea-- stay away from caffeine, sodas and alcholol , they are dehydrators-- and that helps with the neuropathy also.

Part of the hydration issue is that when we are even slightly dehydrated-- our blood volume drops, and we don't have enough electrolytes travelling thru our bloodstream. Also, if you are anemic- you don't have the number of red blood cells (they carry the oxygen thru your body) so that too can effect the neuropathy.

These are simple ways to see if this numbness is one of these 3-- and I've learned from first hand experience that if any one of these problems is happening-- that I can generally get better control of my neuropathy with a few deep breaths.

BTW-- the ER would check your pulse oximetry (that little finger thing that tells them what your oxygen sats are) and they could tell you if you are hyperventilating. Then they'd tell you to take some deep breaths, and see if the problem goes away. They'd run some blood tests to see if you're electrolytes are out of sync-- and it would also check blood sugar. They'd bill you $6,000 for this info-- and you may be able to figure it out with the steps I listed above-- for free!

Love to you,

Tracie

NS Co-owner/moderator

Does anyone ever feel as if their hands, fingers or feet go numb? No feeling un them at all? What do you do? I asked my dr and he said he has to see me when it happens. But he's not always around! i don't want to go to the emergency because it usually lasts for 5 - 10 minutes.Who's never won? Biggest Grammy Award surprises of all time on AOL Music.

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Thanks Tracie

Pomy

To: Neurosarcoidosis From: tiodaat@...Date: Sun, 3 Feb 2008 03:48:00 -0500Subject: Re: numbness

Pomy, this happens quit often to many of us. It is part of the neuropathy and I know that it can sure be painful.

A couple of things that you may want to try is to really concentrate on your breathing-- exhaling fully, then taking in a deep slow breath. Do this for several minutes-- and see if the numbness goes away. If it does, then what is probably happening is that you were breathing really shallowy-- and you ended up actually hyperventilating. When this happens-- your fingers, toes, feet and hands will go numb, because you aren't getting oxygen to them. What you are getting is carbon dioxide-- and since your vital organs need what little oxygen there is in your blood at that time-- it slows the circulation down to your extremities.

The other component to check is your blood sugar. Is it high when this happens. If so- you may want to get some protein down-- cheese, a boiled egg, a piece of meat- chicken, etc. That way your blood sugar will start to balance out, and you'll have less glucose running thru your blood stream-- and less neuropathy.

Additionally-- if you are dehydrated-- and most of us are since we run low grade fevers constantly from the systemic inflammation-- making sure that you've been drinking enough water or decaf tea-- stay away from caffeine, sodas and alcholol , they are dehydrators-- and that helps with the neuropathy also.

Part of the hydration issue is that when we are even slightly dehydrated-- our blood volume drops, and we don't have enough electrolytes travelling thru our bloodstream. Also, if you are anemic- you don't have the number of red blood cells (they carry the oxygen thru your body) so that too can effect the neuropathy.

These are simple ways to see if this numbness is one of these 3-- and I've learned from first hand experience that if any one of these problems is happening-- that I can generally get better control of my neuropathy with a few deep breaths.

BTW-- the ER would check your pulse oximetry (that little finger thing that tells them what your oxygen sats are) and they could tell you if you are hyperventilating. Then they'd tell you to take some deep breaths, and see if the problem goes away. They'd run some blood tests to see if you're electrolytes are out of sync-- and it would also check blood sugar. They'd bill you $6,000 for this info-- and you may be able to figure it out with the steps I listed above-- for free!

Love to you,

Tracie

NS Co-owner/moderator

In a message dated 2/3/2008 12:11:45 A.M. Pacific Standard Time, moishpomeranc (AT) hotmail (DOT) com writes:

Does anyone ever feel as if their hands, fingers or feet go numb? No feeling un them at all? What do you do? I asked my dr and he said he has to see me when it happens. But he's not always around! i don't want to go to the emergency because it usually lasts for 5 - 10 minutes.

Who's never won? Biggest Grammy Award surprises of all time on AOL Music.

Express yourself instantly with MSN Messenger! MSN Messenger

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  • 3 weeks later...

Thanks

Pomy

To: Neurosarcoidosis From: mebramer@...Date: Sun, 10 Feb 2008 22:33:35 +0200Subject: Re: numbness

Pomy, That's how mine started, now it's pretty much all the time, my left side is numb all the time, there is nothing they can do, but try to slow the Sarc down, The ER doesn't really know what to do, I am losing the use of my left side too, not to scar you, but I know for me, it's trying to find a drug that will stop the progression, the Methotrexate worked great for me for years. Marla

On Feb 3, 2008 8:30 AM, Moish Pomeranc <moishpomeranc (AT) hotmail (DOT) com> wrote:

Hi to all, I asked this once, but I need some answers. Does anyone ever feel as if their hands, fingers or feet go numb? No feeling un them at all? What do you do? I asked my dr and he said he has to see me when it happens. But he's not always around! i don't want to go to the emergency because it usually lasts for 5 - 10 minutes. Thanks,Voiced Pomy

Express yourself instantly with MSN Messenger! MSN Messenger -- Marla BramerIndependent Beauty Consultant Kay mbramer (AT) marykay (DOT) comwww.marykay.com/mbramer Express yourself instantly with MSN Messenger! MSN Messenger

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Thanks,

Pomy

To: Neurosarcoidosis From: quiltenbe@...Date: Thu, 7 Feb 2008 10:26:27 -0500Subject: Re: numbness

Yeah, I have that problem too. My doctor sent me to a neurologist who tested me for many things and determined that I have glove/sock neuropathy (loss of sensation). I don;t have it all the time, but most days. You do get used to it and have to be careful to check your feet especially for cuts and what not, to make sure you haven't gone and damaged yourself without realizing it. I found out that something was wrong by ironing my hand one day and waiting for the pain that was sure to follow. I stood there looking at my blistered finger and felt absolutely nothing at all. That's when the light bulb went on and I said, hmmmm, something not right about this!!

Ask your primary to send you to a neurologist. That's who you need to see. I do not have a confirmed diagnosis of neurosarc, btw. They first thought I had ms. Don't, as a matter of testing showed, but no positive test for ns. either.Gets kind of frustrating. Don't let it. I still go out dancing most every other weekend, can't feel my feet, but I have fun!! Bonnie B.

Who's never won? Biggest Grammy Award surprises of all time on AOL Music.

Express yourself instantly with MSN Messenger! MSN Messenger

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  • 4 weeks later...
Guest guest

Sorry I am just reading this but I don't have regular

access to a good computer. I also have the feeling of

lying in a fire ant bed at times. I got the answer to

this torment by accident. My neurologist discovered I

have trigeminal neuralgia and put me on Lyrica. It

has been wonderful, not only did it top the trigeminal

but it stop the stinging neuropathy. Doctors have

found this medicine really works well for a couple of

things. And for all intents and purposes there really

haven't been any side affects. Connie

--- turtlesnap123 wrote:

> Hi Voiced Pomy,

>

> I have burning, numbness and tingling in my hands,

> arms, feet and legs

> for the better part of seven years. To this day,

> the doctors STILL

> have no clue what it is. I have been given the

> diagnosis of

> Sarcoidosis and Multiple Sclerosis, but still there

> is no concrete

> answer. Sometimes something that you think should

> be a simple answer,

> is no where near that.

>

> Hang in there and keep your chin up. The best I can

> say is see your

> doctor. Maybe for you it might be a simple answer!

> But don't get

> discouraged if it isn't! :)

>

>

>

>

> >

> >

> > Hi to all,

> >

> > I asked this once, but I need some answers.

> >

> > Does anyone ever feel as if their hands, fingers

> or feet go numb? No

> feeling un them at all? What do you do? I asked my

> dr and he said he

> has to see me when it happens. But he's not always

> around! i don't

> want to go to the emergency because it usually lasts

> for 5 - 10 minutes.

> >

> > Thanks,

> > Voiced Pomy

> >

>

_________________________________________________________________

> > Express yourself instantly with MSN Messenger!

> Download today it's FREE!

> >

>

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

> >

>

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

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Guest guest

Sorry I am just reading this but I don't have regular

access to a good computer. I also have the feeling of

lying in a fire ant bed at times. I got the answer to

this torment by accident. My neurologist discovered I

have trigeminal neuralgia and put me on Lyrica. It

has been wonderful, not only did it top the trigeminal

but it stop the stinging neuropathy. Doctors have

found this medicine really works well for a couple of

things. And for all intents and purposes there really

haven't been any side affects. Connie

--- turtlesnap123 wrote:

> Hi Voiced Pomy,

>

> I have burning, numbness and tingling in my hands,

> arms, feet and legs

> for the better part of seven years. To this day,

> the doctors STILL

> have no clue what it is. I have been given the

> diagnosis of

> Sarcoidosis and Multiple Sclerosis, but still there

> is no concrete

> answer. Sometimes something that you think should

> be a simple answer,

> is no where near that.

>

> Hang in there and keep your chin up. The best I can

> say is see your

> doctor. Maybe for you it might be a simple answer!

> But don't get

> discouraged if it isn't! :)

>

>

>

>

> >

> >

> > Hi to all,

> >

> > I asked this once, but I need some answers.

> >

> > Does anyone ever feel as if their hands, fingers

> or feet go numb? No

> feeling un them at all? What do you do? I asked my

> dr and he said he

> has to see me when it happens. But he's not always

> around! i don't

> want to go to the emergency because it usually lasts

> for 5 - 10 minutes.

> >

> > Thanks,

> > Voiced Pomy

> >

>

_________________________________________________________________

> > Express yourself instantly with MSN Messenger!

> Download today it's FREE!

> >

>

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

> >

>

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

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Share on other sites

Guest guest

I am on Lyrica, and it is great, I find I am starting to have some of the nerve pain in my face on the L side, but I think it would be worse if I were not on this drug, as it is amazing! Marla

Sorry I am just reading this but I don't have regular

access to a good computer. I also have the feeling of

lying in a fire ant bed at times. I got the answer to

this torment by accident. My neurologist discovered I

have trigeminal neuralgia and put me on Lyrica. It

has been wonderful, not only did it top the trigeminal

but it stop the stinging neuropathy. Doctors have

found this medicine really works well for a couple of

things. And for all intents and purposes there really

haven't been any side affects. Connie

--- turtlesnap123 wrote:

> Hi Voiced Pomy,

>

> I have burning, numbness and tingling in my hands,

> arms, feet and legs

> for the better part of seven years. To this day,

> the doctors STILL

> have no clue what it is. I have been given the

> diagnosis of

> Sarcoidosis and Multiple Sclerosis, but still there

> is no concrete

> answer. Sometimes something that you think should

> be a simple answer,

> is no where near that.

>

> Hang in there and keep your chin up. The best I can

> say is see your

> doctor. Maybe for you it might be a simple answer!

> But don't get

> discouraged if it isn't! :)

>

>

>

>

> >

> >

> > Hi to all,

> >

> > I asked this once, but I need some answers.

> >

> > Does anyone ever feel as if their hands, fingers

> or feet go numb? No

> feeling un them at all? What do you do? I asked my

> dr and he said he

> has to see me when it happens. But he's not always

> around! i don't

> want to go to the emergency because it usually lasts

> for 5 - 10 minutes.

> >

> > Thanks,

> > Voiced Pomy

> >

>

__________________________________________________________

> > Express yourself instantly with MSN Messenger!

> Download today it's FREE!

> >

>

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

> >

>

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

-- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer

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Guest guest

I am on Lyrica, and it is great, I find I am starting to have some of the nerve pain in my face on the L side, but I think it would be worse if I were not on this drug, as it is amazing! Marla

Sorry I am just reading this but I don't have regular

access to a good computer. I also have the feeling of

lying in a fire ant bed at times. I got the answer to

this torment by accident. My neurologist discovered I

have trigeminal neuralgia and put me on Lyrica. It

has been wonderful, not only did it top the trigeminal

but it stop the stinging neuropathy. Doctors have

found this medicine really works well for a couple of

things. And for all intents and purposes there really

haven't been any side affects. Connie

--- turtlesnap123 wrote:

> Hi Voiced Pomy,

>

> I have burning, numbness and tingling in my hands,

> arms, feet and legs

> for the better part of seven years. To this day,

> the doctors STILL

> have no clue what it is. I have been given the

> diagnosis of

> Sarcoidosis and Multiple Sclerosis, but still there

> is no concrete

> answer. Sometimes something that you think should

> be a simple answer,

> is no where near that.

>

> Hang in there and keep your chin up. The best I can

> say is see your

> doctor. Maybe for you it might be a simple answer!

> But don't get

> discouraged if it isn't! :)

>

>

>

>

> >

> >

> > Hi to all,

> >

> > I asked this once, but I need some answers.

> >

> > Does anyone ever feel as if their hands, fingers

> or feet go numb? No

> feeling un them at all? What do you do? I asked my

> dr and he said he

> has to see me when it happens. But he's not always

> around! i don't

> want to go to the emergency because it usually lasts

> for 5 - 10 minutes.

> >

> > Thanks,

> > Voiced Pomy

> >

>

__________________________________________________________

> > Express yourself instantly with MSN Messenger!

> Download today it's FREE!

> >

>

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

> >

>

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

-- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer

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