Help! Need relief from blood clots, post-upper

[Guest guest]

Hi all,

I'm 4 days post-op of what was apparently a pretty rough surgery (I'm

a bleeder, it turns out -- so was in ICU for a few days) -- upper jaw

moved upwards about 5 mm with a genioplasty to move the chin

forward. I'm banded (not wired) shut. My breathing feels incredibly

labored due to to nasal congestion and all the horrible blood going

down the back of my throat and clotting (and staying there!). Now

that I am home I don't have the suction tube to pull all that blood

out, and breathing is hugely difficult (the little suction bulb that

I bought before hand doesn't really do the trick). Any suggestions?

It's driving me nuts, because it makes it so hard to sleep. Any help

greatly appreciated! (And happy new year, everyone!)

Sara

[Guest guest]

Hi all,

I'm 4 days post-op of what was apparently a pretty rough surgery (I'm

a bleeder, it turns out -- so was in ICU for a few days) -- upper jaw

moved upwards about 5 mm with a genioplasty to move the chin

forward. I'm banded (not wired) shut. My breathing feels incredibly

labored due to to nasal congestion and all the horrible blood going

down the back of my throat and clotting (and staying there!). Now

that I am home I don't have the suction tube to pull all that blood

out, and breathing is hugely difficult (the little suction bulb that

I bought before hand doesn't really do the trick). Any suggestions?

It's driving me nuts, because it makes it so hard to sleep. Any help

greatly appreciated! (And happy new year, everyone!)

Sara

[Guest guest]

Sara,

I don't really know what to tell you, but I totally feel your pain! I

was in that same situation post surgery about 3 weeks ago, and it

really isn't pleasant! I thought I was going to have to go back to

the hospital because I couldn't breath. I know how you feel. The

biggest trick for me was just not panicking. You'll be ok, and it

will go away.

Did they give you any nasal spray at the hospital? My dr. prescribed

two different ones and they helped a lot.

I also found that 12 hour sudafed helped, although not as quickly as

I had hoped. The 24 hour kind didn't seem as effective for me. But I

think I recall , my surgery buddy on the board, using a liquid

sudafed that he said helped, although he was fortunate to not have

too much congestion.

Also, do you have a humidifier going? That helped more than anything

else. If you don't, perhaps you could try turning the shower on and

just sitting in the bathroom with the door closed and the shower

running. The warm moist air was very helpful.

And, as hard as it is, don't cry! That was a huge mistake I made. I

was totally in a panic about not being able to breath from the clot

in my throat, so I started to cry, which just made my nose all

stuffy, which really didn't help.

You'll get through it...hang in there!!

[Guest guest]

Sara,

I don't really know what to tell you, but I totally feel your pain! I

was in that same situation post surgery about 3 weeks ago, and it

really isn't pleasant! I thought I was going to have to go back to

the hospital because I couldn't breath. I know how you feel. The

biggest trick for me was just not panicking. You'll be ok, and it

will go away.

Did they give you any nasal spray at the hospital? My dr. prescribed

two different ones and they helped a lot.

I also found that 12 hour sudafed helped, although not as quickly as

I had hoped. The 24 hour kind didn't seem as effective for me. But I

think I recall , my surgery buddy on the board, using a liquid

sudafed that he said helped, although he was fortunate to not have

too much congestion.

Also, do you have a humidifier going? That helped more than anything

else. If you don't, perhaps you could try turning the shower on and

just sitting in the bathroom with the door closed and the shower

running. The warm moist air was very helpful.

And, as hard as it is, don't cry! That was a huge mistake I made. I

was totally in a panic about not being able to breath from the clot

in my throat, so I started to cry, which just made my nose all

stuffy, which really didn't help.

You'll get through it...hang in there!!

[Guest guest]

Thanks so much for the encouragement . I haven't been running

the humidifier much, so I'll take that suggestion right now and get

it going. I did get a prescription for Nasonex nasal spray (plus I

can use all the plain saline nose spray I want), but unfortunately

for several different reasons I have a sensitivity to Sudafed and

other types of decongestants, so can't really take them (my heart

rate will go through the roof if I do). And so far I haven't really

cried... I don't think I have the energy to do it! ;-) Thanks again

for your support. Anyone else out there who wants to share the

yuckiness of blood clots, feel free -- I'm all ears! (And throat,

haha)

Sara

>

> Sara,

>

> I don't really know what to tell you, but I totally feel your pain!

I

> was in that same situation post surgery about 3 weeks ago, and it

> really isn't pleasant! I thought I was going to have to go back to

> the hospital because I couldn't breath. I know how you feel. The

> biggest trick for me was just not panicking. You'll be ok, and it

> will go away.

>

> Did they give you any nasal spray at the hospital? My dr.

prescribed

> two different ones and they helped a lot.

>

> I also found that 12 hour sudafed helped, although not as quickly

as

> I had hoped. The 24 hour kind didn't seem as effective for me. But

I

> think I recall , my surgery buddy on the board, using a liquid

> sudafed that he said helped, although he was fortunate to not have

> too much congestion.

>

> Also, do you have a humidifier going? That helped more than

anything

> else. If you don't, perhaps you could try turning the shower on and

> just sitting in the bathroom with the door closed and the shower

> running. The warm moist air was very helpful.

>

> And, as hard as it is, don't cry! That was a huge mistake I made. I

> was totally in a panic about not being able to breath from the clot

> in my throat, so I started to cry, which just made my nose all

> stuffy, which really didn't help.

>

> You'll get through it...hang in there!!

>

>

[Guest guest]

Thanks so much for the encouragement . I haven't been running

the humidifier much, so I'll take that suggestion right now and get

it going. I did get a prescription for Nasonex nasal spray (plus I

can use all the plain saline nose spray I want), but unfortunately

for several different reasons I have a sensitivity to Sudafed and

other types of decongestants, so can't really take them (my heart

rate will go through the roof if I do). And so far I haven't really

cried... I don't think I have the energy to do it! ;-) Thanks again

for your support. Anyone else out there who wants to share the

yuckiness of blood clots, feel free -- I'm all ears! (And throat,

haha)

Sara

>

> Sara,

>

> I don't really know what to tell you, but I totally feel your pain!

I

> was in that same situation post surgery about 3 weeks ago, and it

> really isn't pleasant! I thought I was going to have to go back to

> the hospital because I couldn't breath. I know how you feel. The

> biggest trick for me was just not panicking. You'll be ok, and it

> will go away.

>

> Did they give you any nasal spray at the hospital? My dr.

prescribed

> two different ones and they helped a lot.

>

> I also found that 12 hour sudafed helped, although not as quickly

as

> I had hoped. The 24 hour kind didn't seem as effective for me. But

I

> think I recall , my surgery buddy on the board, using a liquid

> sudafed that he said helped, although he was fortunate to not have

> too much congestion.

>

> Also, do you have a humidifier going? That helped more than

anything

> else. If you don't, perhaps you could try turning the shower on and

> just sitting in the bathroom with the door closed and the shower

> running. The warm moist air was very helpful.

>

> And, as hard as it is, don't cry! That was a huge mistake I made. I

> was totally in a panic about not being able to breath from the clot

> in my throat, so I started to cry, which just made my nose all

> stuffy, which really didn't help.

>

> You'll get through it...hang in there!!

>

>

[Guest guest]

A few suggestions that I hope will help. First go for the

humidifier. Second, drink plenty of water. Keep a bottle or cup

near at all times and drink, drink, drink. Third, use q-tips and a

solution of half warm water and half peroxide to clean your nose

out. It sounds gross and looks even more so when you clean things

but it does help tremendously.

I am six weeks post op from upper and the sinus congestion was the

only thing I found hard to live with. All of the above helped

though and after the first week I was able to breathe relatively

easy once again.

Good luck and hope your New Year is a great one.

>

> Hi all,

>

> I'm 4 days post-op of what was apparently a pretty rough surgery

(I'm

> a bleeder, it turns out -- so was in ICU for a few days) -- upper

jaw

> moved upwards about 5 mm with a genioplasty to move the chin

> forward. I'm banded (not wired) shut. My breathing feels

incredibly

> labored due to to nasal congestion and all the horrible blood

going

> down the back of my throat and clotting (and staying there!). Now

> that I am home I don't have the suction tube to pull all that

blood

> out, and breathing is hugely difficult (the little suction bulb

that

> I bought before hand doesn't really do the trick). Any

suggestions?

> It's driving me nuts, because it makes it so hard to sleep. Any

help

> greatly appreciated! (And happy new year, everyone!)

>

> Sara

[Guest guest]

A few suggestions that I hope will help. First go for the

humidifier. Second, drink plenty of water. Keep a bottle or cup

near at all times and drink, drink, drink. Third, use q-tips and a

solution of half warm water and half peroxide to clean your nose

out. It sounds gross and looks even more so when you clean things

but it does help tremendously.

I am six weeks post op from upper and the sinus congestion was the

only thing I found hard to live with. All of the above helped

though and after the first week I was able to breathe relatively

easy once again.

Good luck and hope your New Year is a great one.

>

> Hi all,

>

> I'm 4 days post-op of what was apparently a pretty rough surgery

(I'm

> a bleeder, it turns out -- so was in ICU for a few days) -- upper

jaw

> moved upwards about 5 mm with a genioplasty to move the chin

> forward. I'm banded (not wired) shut. My breathing feels

incredibly

> labored due to to nasal congestion and all the horrible blood

going

> down the back of my throat and clotting (and staying there!). Now

> that I am home I don't have the suction tube to pull all that

blood

> out, and breathing is hugely difficult (the little suction bulb

that

> I bought before hand doesn't really do the trick). Any

suggestions?

> It's driving me nuts, because it makes it so hard to sleep. Any

help

> greatly appreciated! (And happy new year, everyone!)

>

> Sara

[Guest guest]

Thanks for your suggestions too, Felicia -- I'm already getting some

relief from the peroxide and water solution. I'm officially more

grateful for this board than I could ever have imagined -- who'da

thought I could post a question on new year's eve and get some help

so quickly?! What a blessing!

>

> A few suggestions that I hope will help. First go for the

> humidifier. Second, drink plenty of water. Keep a bottle or cup

> near at all times and drink, drink, drink. Third, use q-tips and a

> solution of half warm water and half peroxide to clean your nose

> out. It sounds gross and looks even more so when you clean things

> but it does help tremendously.

>

> I am six weeks post op from upper and the sinus congestion was the

> only thing I found hard to live with. All of the above helped

> though and after the first week I was able to breathe relatively

> easy once again.

>

> Good luck and hope your New Year is a great one.

>

>

[Guest guest]

Thanks for your suggestions too, Felicia -- I'm already getting some

relief from the peroxide and water solution. I'm officially more

grateful for this board than I could ever have imagined -- who'da

thought I could post a question on new year's eve and get some help

so quickly?! What a blessing!

>

> A few suggestions that I hope will help. First go for the

> humidifier. Second, drink plenty of water. Keep a bottle or cup

> near at all times and drink, drink, drink. Third, use q-tips and a

> solution of half warm water and half peroxide to clean your nose

> out. It sounds gross and looks even more so when you clean things

> but it does help tremendously.

>

> I am six weeks post op from upper and the sinus congestion was the

> only thing I found hard to live with. All of the above helped

> though and after the first week I was able to breathe relatively

> easy once again.

>

> Good luck and hope your New Year is a great one.

>

>

[Guest guest]

Sara, WOW! My daughter has a bleeding disorder and when she get a bad bloody

nose she gets clotts down her throat(yuky I know). It seems to me that if

you are still bleeding that much for it to clott in your thraot you should

get ahold of your Dr. See what he had to say. How miserable. My Kid has

VonWillebrands disease. (clotting problem) Good luck!

>From: slcody@...

>Reply-To: orthognathicsurgerysupport

>To: orthognathicsurgerysupport

>Subject: [Orthognathic Surgery Support ] Help! Need relief from blood

>clots, post-upper

>Date: Sat, 01 Jan 2005 01:02:45 -0000

>

>

>Hi all,

>

>I'm 4 days post-op of what was apparently a pretty rough surgery (I'm

>a bleeder, it turns out -- so was in ICU for a few days) -- upper jaw

>moved upwards about 5 mm with a genioplasty to move the chin

>forward. I'm banded (not wired) shut. My breathing feels incredibly

>labored due to to nasal congestion and all the horrible blood going

>down the back of my throat and clotting (and staying there!). Now

>that I am home I don't have the suction tube to pull all that blood

>out, and breathing is hugely difficult (the little suction bulb that

>I bought before hand doesn't really do the trick). Any suggestions?

>It's driving me nuts, because it makes it so hard to sleep. Any help

>greatly appreciated! (And happy new year, everyone!)

>

>Sara

>

>

>

[Guest guest]

Sara, WOW! My daughter has a bleeding disorder and when she get a bad bloody

nose she gets clotts down her throat(yuky I know). It seems to me that if

you are still bleeding that much for it to clott in your thraot you should

get ahold of your Dr. See what he had to say. How miserable. My Kid has

VonWillebrands disease. (clotting problem) Good luck!

>From: slcody@...

>Reply-To: orthognathicsurgerysupport

>To: orthognathicsurgerysupport

>Subject: [Orthognathic Surgery Support ] Help! Need relief from blood

>clots, post-upper

>Date: Sat, 01 Jan 2005 01:02:45 -0000

>

>

>Hi all,

>

>I'm 4 days post-op of what was apparently a pretty rough surgery (I'm

>a bleeder, it turns out -- so was in ICU for a few days) -- upper jaw

>moved upwards about 5 mm with a genioplasty to move the chin

>forward. I'm banded (not wired) shut. My breathing feels incredibly

>labored due to to nasal congestion and all the horrible blood going

>down the back of my throat and clotting (and staying there!). Now

>that I am home I don't have the suction tube to pull all that blood

>out, and breathing is hugely difficult (the little suction bulb that

>I bought before hand doesn't really do the trick). Any suggestions?

>It's driving me nuts, because it makes it so hard to sleep. Any help

>greatly appreciated! (And happy new year, everyone!)

>

>Sara

>

>

>

[Guest guest]

There are portable suctioning machines, and here you can rent them

from home health care services. (My doc sends everybody home with

one, primarily so you can get rid of what you need to if you run

into trouble on the way home.) Some docs think that suctioning is a

bad idea, so check first. Mine cost something like $50 for a month,

and I never needed it. And oddly enough, that was the only expense

my insurance didn't cover.

C.

> Sara, WOW! My daughter has a bleeding disorder and when she get a

bad bloody

> nose she gets clotts down her throat(yuky I know). It seems to me

that if

> you are still bleeding that much for it to clott in your thraot

you should

> get ahold of your Dr. See what he had to say. How miserable. My

Kid has

> VonWillebrands disease. (clotting problem) Good luck!

>

> >From: slcody@y...

> >Reply-To: orthognathicsurgerysupport

> >To: orthognathicsurgerysupport

> >Subject: [Orthognathic Surgery Support ] Help! Need relief

from blood

> >clots, post-upper

> >Date: Sat, 01 Jan 2005 01:02:45 -0000

> >

> >

> >Hi all,

> >

> >I'm 4 days post-op of what was apparently a pretty rough surgery

(I'm

> >a bleeder, it turns out -- so was in ICU for a few days) -- upper

jaw

> >moved upwards about 5 mm with a genioplasty to move the chin

> >forward. I'm banded (not wired) shut. My breathing feels

incredibly

> >labored due to to nasal congestion and all the horrible blood

going

> >down the back of my throat and clotting (and staying there!). Now

> >that I am home I don't have the suction tube to pull all that

blood

> >out, and breathing is hugely difficult (the little suction bulb

that

> >I bought before hand doesn't really do the trick). Any

suggestions?

> >It's driving me nuts, because it makes it so hard to sleep. Any

help

> >greatly appreciated! (And happy new year, everyone!)

> >

> >Sara

> >

> >

> >

[Guest guest]

There are portable suctioning machines, and here you can rent them

from home health care services. (My doc sends everybody home with

one, primarily so you can get rid of what you need to if you run

into trouble on the way home.) Some docs think that suctioning is a

bad idea, so check first. Mine cost something like $50 for a month,

and I never needed it. And oddly enough, that was the only expense

my insurance didn't cover.

C.

> Sara, WOW! My daughter has a bleeding disorder and when she get a

bad bloody

> nose she gets clotts down her throat(yuky I know). It seems to me

that if

> you are still bleeding that much for it to clott in your thraot

you should

> get ahold of your Dr. See what he had to say. How miserable. My

Kid has

> VonWillebrands disease. (clotting problem) Good luck!

>

> >From: slcody@y...

> >Reply-To: orthognathicsurgerysupport

> >To: orthognathicsurgerysupport

> >Subject: [Orthognathic Surgery Support ] Help! Need relief

from blood

> >clots, post-upper

> >Date: Sat, 01 Jan 2005 01:02:45 -0000

> >

> >

> >Hi all,

> >

> >I'm 4 days post-op of what was apparently a pretty rough surgery

(I'm

> >a bleeder, it turns out -- so was in ICU for a few days) -- upper

jaw

> >moved upwards about 5 mm with a genioplasty to move the chin

> >forward. I'm banded (not wired) shut. My breathing feels

incredibly

> >labored due to to nasal congestion and all the horrible blood

going

> >down the back of my throat and clotting (and staying there!). Now

> >that I am home I don't have the suction tube to pull all that

blood

> >out, and breathing is hugely difficult (the little suction bulb

that

> >I bought before hand doesn't really do the trick). Any

suggestions?

> >It's driving me nuts, because it makes it so hard to sleep. Any

help

> >greatly appreciated! (And happy new year, everyone!)

> >

> >Sara

> >

> >

> >

[Guest guest]

Peroxide? as in... hydrogen peroxide?

Just wanted to be sure. =D

[Guest guest]

Peroxide? as in... hydrogen peroxide?

Just wanted to be sure. =D

[Guest guest]

Sorry. Yes, hydrogen peroxide.

>

> Peroxide? as in... hydrogen peroxide?

>

> Just wanted to be sure. =D

[Guest guest]

Sorry. Yes, hydrogen peroxide.

>

> Peroxide? as in... hydrogen peroxide?

>

> Just wanted to be sure. =D