Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 I feel that I have to comment on this because I too had a very difficult and painful recovery and I think it's important to know that although it's rare, difficult and painful recoveries do exist. I'd hate for people to feel like this site excludes or dismisses peoples pain when they say they had a lot of pain during recovery just because most people did not experience pain. I went into this with a positive outlook (although I was nervous of course), but I was one of the few that had unforseen complications. It's a great thing for everyone to list their experience whether good or bad, because it allows people to see that nobody can give you a guarantee of anything. If you're worried about doing this surgery, know that overall, I still believe the positive experiences outweigh the bad. But I will say that my recovery was the worst experience of my 27 years thus far. ( I have yet to give birth though, so we'll see how that goes) I was not prepared for my expreience due to the fact that so many people on this site and doctors emphasise that there is no real pain with this surgery, only discomfort, and any pain you would have is camoflauged by numbness. Well, let's just say that I had upper and lower jaw surgery and was horrified to wake up and find that I had no numbness from below my eyes, down through my cheeks and lower jaw. I woke up in recovery writhing in pain and could tell from the pain exactly where each cut and screw was placed in my jaw. My nose, upper jaw and chin were numb, but the area in the lower jaw where cuts were made to move it forward as well as my cheeks near my nose and below my eyes where the screws and plates where placed for the upper jaw were not numb at all. The pain was intense and the morphine and ice hardly minimized the pain. I literally didn't sleep for even a minute that night in the hospital. Now, the bright side would be that I would most definitely not have to worry about long term permanent numbness, but short term, the pain was excruciating. (My orhto saw me at my 4 week check up and was amazed at how much feeling I had. He said at 4 weeks, I was where many people would be at 3 to 6 months. So, of course it can be viewed as a positive thing now, but it wasn't pleasant or positive at the time) Needless, to say, I never even fathomed this scenario because everybody harps on the fact that there is no pain, only uncomfortable numbness. Well, I would have rather been uncomfortably numb than deal with that pain, but alas, it was beyond my control. I can't blame anybody because there is no way to know when or if this would happen. I then had allergic reactions to medications and a severe reaction called 's Syndrome due to the stress of the surgery combined with medication, which sent me to the ER 4 times- once by ambulance. It's a long story that I may elaborate more on once I get off my procrastinating arse and sit down and write my entire experience and post pictures. (A New Year's Resolution perhaps?) Anyhow, I was scheduled for 4 weeks off of work, which had to be entended to 6 weeks and finally 8 weeks and there is no way in hell I could have gone back to work any earlier. (I wasn't able to even walk on my own until the fourth week because of the 's thing) Anyhow, there are some positive changes since surgery like increased airflow and breathing through my nose, and there are some negative ones like worse TMJ pain on the right side and more limited opening than before surgery, but I'm hopeful that those things will resolve in time. Anyhow, I just wanted to say to Deidra, that you're not alone in your experience. I am not a point yet where I can say this is the best thing I've ever done, because I have to wait a while to see all of the results. ( I go back in 3 months to do a sleep study to see if it surgery " cured " my sleep apnea, which is the main reason I did this) But I also would never tell anyone to avoid doing the surgery because of my experience. I am unfortunately the one who people know as " If something is going to happen, it'll happen to " , so I am not the norm. Anyhow, just thought I'd post and say that pain can be a factor with this surgery, but this too shall pass. I am not bitter about my experience. I wouldn't wish it on anybody and I wouldn't want to experience it agian, but at least it makes for some good stories. -- > > I had upper jaw surgery Sept 2nd, they also put my upper in three > part and widen and expanded it. I was told I would eventually lose > my teeth too. So I went through it. I know everyone is trying to > be positive about the surgery. But I was upset because my OS said I > would be back to work in two weeks and by December my swelling would > be gone. I was back to work in seven weeks because my jobs md said > I was two weak to go any sooner. I am 31 and it was worse than > having my two children. It is a long healing process and you will > need a lot of help from family and friends. My husband had to stay > home from work to care for me because I lost a lot of blood and was > weak from that. The pain last around 3 weeks for me and its gone > now. I can still feel the screws under my nose where they screwed > it together. Everyone I know so far are happy with there bite. I > have'n't reached that point yet but its getting better. I hope to > get my braces off in a few months. I hope my swelling in > > my nose goes alll the way done. Which in time it should. I do > regret having the surgery because I fear not looking the same and > they healing process is sooo long for me. But time does fly and > maybe by next year and I will be able to say. I love it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 I feel that I have to comment on this because I too had a very difficult and painful recovery and I think it's important to know that although it's rare, difficult and painful recoveries do exist. I'd hate for people to feel like this site excludes or dismisses peoples pain when they say they had a lot of pain during recovery just because most people did not experience pain. I went into this with a positive outlook (although I was nervous of course), but I was one of the few that had unforseen complications. It's a great thing for everyone to list their experience whether good or bad, because it allows people to see that nobody can give you a guarantee of anything. If you're worried about doing this surgery, know that overall, I still believe the positive experiences outweigh the bad. But I will say that my recovery was the worst experience of my 27 years thus far. ( I have yet to give birth though, so we'll see how that goes) I was not prepared for my expreience due to the fact that so many people on this site and doctors emphasise that there is no real pain with this surgery, only discomfort, and any pain you would have is camoflauged by numbness. Well, let's just say that I had upper and lower jaw surgery and was horrified to wake up and find that I had no numbness from below my eyes, down through my cheeks and lower jaw. I woke up in recovery writhing in pain and could tell from the pain exactly where each cut and screw was placed in my jaw. My nose, upper jaw and chin were numb, but the area in the lower jaw where cuts were made to move it forward as well as my cheeks near my nose and below my eyes where the screws and plates where placed for the upper jaw were not numb at all. The pain was intense and the morphine and ice hardly minimized the pain. I literally didn't sleep for even a minute that night in the hospital. Now, the bright side would be that I would most definitely not have to worry about long term permanent numbness, but short term, the pain was excruciating. (My orhto saw me at my 4 week check up and was amazed at how much feeling I had. He said at 4 weeks, I was where many people would be at 3 to 6 months. So, of course it can be viewed as a positive thing now, but it wasn't pleasant or positive at the time) Needless, to say, I never even fathomed this scenario because everybody harps on the fact that there is no pain, only uncomfortable numbness. Well, I would have rather been uncomfortably numb than deal with that pain, but alas, it was beyond my control. I can't blame anybody because there is no way to know when or if this would happen. I then had allergic reactions to medications and a severe reaction called 's Syndrome due to the stress of the surgery combined with medication, which sent me to the ER 4 times- once by ambulance. It's a long story that I may elaborate more on once I get off my procrastinating arse and sit down and write my entire experience and post pictures. (A New Year's Resolution perhaps?) Anyhow, I was scheduled for 4 weeks off of work, which had to be entended to 6 weeks and finally 8 weeks and there is no way in hell I could have gone back to work any earlier. (I wasn't able to even walk on my own until the fourth week because of the 's thing) Anyhow, there are some positive changes since surgery like increased airflow and breathing through my nose, and there are some negative ones like worse TMJ pain on the right side and more limited opening than before surgery, but I'm hopeful that those things will resolve in time. Anyhow, I just wanted to say to Deidra, that you're not alone in your experience. I am not a point yet where I can say this is the best thing I've ever done, because I have to wait a while to see all of the results. ( I go back in 3 months to do a sleep study to see if it surgery " cured " my sleep apnea, which is the main reason I did this) But I also would never tell anyone to avoid doing the surgery because of my experience. I am unfortunately the one who people know as " If something is going to happen, it'll happen to " , so I am not the norm. Anyhow, just thought I'd post and say that pain can be a factor with this surgery, but this too shall pass. I am not bitter about my experience. I wouldn't wish it on anybody and I wouldn't want to experience it agian, but at least it makes for some good stories. -- > > I had upper jaw surgery Sept 2nd, they also put my upper in three > part and widen and expanded it. I was told I would eventually lose > my teeth too. So I went through it. I know everyone is trying to > be positive about the surgery. But I was upset because my OS said I > would be back to work in two weeks and by December my swelling would > be gone. I was back to work in seven weeks because my jobs md said > I was two weak to go any sooner. I am 31 and it was worse than > having my two children. It is a long healing process and you will > need a lot of help from family and friends. My husband had to stay > home from work to care for me because I lost a lot of blood and was > weak from that. The pain last around 3 weeks for me and its gone > now. I can still feel the screws under my nose where they screwed > it together. Everyone I know so far are happy with there bite. I > have'n't reached that point yet but its getting better. I hope to > get my braces off in a few months. I hope my swelling in > > my nose goes alll the way done. Which in time it should. I do > regret having the surgery because I fear not looking the same and > they healing process is sooo long for me. But time does fly and > maybe by next year and I will be able to say. I love it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 , I just wanted to say how sorry I am that your experience was so awful. I remember you because you are a fellow O' patient at Kaiser, and you kindly answered some of my questions this past summer. I had surgery on December 8 and for the first week I thought I was going to die, but looking back I see I had it so incredibly easy. I feel a little guilty actually! I agree with you that it's important to post all experiences, good and bad. We shouldn't generalize this surgery since so many people have such different outcomes. I hope ultimately this will work out for you. take care, Maddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 , I just wanted to say how sorry I am that your experience was so awful. I remember you because you are a fellow O' patient at Kaiser, and you kindly answered some of my questions this past summer. I had surgery on December 8 and for the first week I thought I was going to die, but looking back I see I had it so incredibly easy. I feel a little guilty actually! I agree with you that it's important to post all experiences, good and bad. We shouldn't generalize this surgery since so many people have such different outcomes. I hope ultimately this will work out for you. take care, Maddie Quote Link to comment Share on other sites More sharing options...
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