Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi everybody, Have not posted in a while now. There has been so much going on family wise. And I have been getting my tests and surgeon vists done because I go in Friday May 2 for my breast lift, am so nervous about it because all I went through with the surgery in Dec, but am hoping this will go better and a faster recovery. Asking prayers from all of you, I am reading only on the web now, so I do not get to it everyday. But will do better. I should only be in the hospital overnight, so if all goes well I will be home sometime on Saturday. I have lost the 5 lb I put on since my surgery in Dec. Thank God, I guess it was still all the swelling I had. The arms are ok now, I had the lymph nodes removed and that is why I kept the swelling a long time. I still am not where I should be with it, but is much better than before. Wish me luck, and pray for me, Rosemary Commisso 1/26/01 297-195 MGB Dr. Rutledge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi everybody, Have not posted in a while now. There has been so much going on family wise. And I have been getting my tests and surgeon vists done because I go in Friday May 2 for my breast lift, am so nervous about it because all I went through with the surgery in Dec, but am hoping this will go better and a faster recovery. Asking prayers from all of you, I am reading only on the web now, so I do not get to it everyday. But will do better. I should only be in the hospital overnight, so if all goes well I will be home sometime on Saturday. I have lost the 5 lb I put on since my surgery in Dec. Thank God, I guess it was still all the swelling I had. The arms are ok now, I had the lymph nodes removed and that is why I kept the swelling a long time. I still am not where I should be with it, but is much better than before. Wish me luck, and pray for me, Rosemary Commisso 1/26/01 297-195 MGB Dr. Rutledge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 hey rita!!! welcome back!!! have you ever seen dr h. before? if not where do you live, it would be worth the trip!!! if you cant get to nyc , maybe you could get to the convention. my son's chromosome test came up negative as well, but he is rss. good luck!!! jodie c. > > I began and temporarily ended with this support group in 2001. My > son Josh was 2 yrs old at the time and we were determined to get a > positive RSS diagnosis, but unfortunately Josh's chromosome test > came up negative, therefore, no syndrome. I sort-of " gave up " on the > notion that Josh had anything in common with any of the RSS kids and > was tired of researching, etc. and decided to " take a break " . I've > never stopped believing that Josh has RSS. Josh is now 5 1/2 yrs > old, weighs 32 lbs. and is 36 " tall. We still have issues with > developmental delays (speech, gross/fine motor skills), he has all > of the common characteristics of RSS, except for incurved 5th > finger, although is very double-jointed. Josh still has a private > speech therapist and an OT and ST (via IEP) at the public school > where he attends Kindergarten. I'm wondering if any of you have had > trouble with a diagnosis of RSS that could give me some good > pointers? > > Rita > Josh's mom Quote Link to comment Share on other sites More sharing options...
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