Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 F a m ily S u p p o r t N e w s l e t t e r o f t he S p i n a B i f i d a A s s o c i a t i o n o f t h e T r i - S t a t e R e g i o n The Empowerment Zone JANUARY-FEBRUARY 2008 Visit our website WWW.SBATSR.ORG The Empowerment Zone is a service of the Spina Bifida Association of the Tri-State Region (SBATSR) Family Support Program, funded in part by the New Jersey Division of Developmental Disabilities. Spina Bifida Association of the Tri-State Region 84 Park Avenue Flemington, NJ 08822 908.782.7475 phone 908.782.6102 fax 1.877.722.8774 toll free info@... www.sbatsr.org K. Holmes Chairman of the Board Jane Horowitz Executive Director Betty McLaughlin - 856.825.0838 Program Coordinator Shore - 908.247.0709 Family Support Coordinator Krul - 908.247.0620 Nursing Coordinator Roslyn Gleeson - 908-328-9196 Nursing Coordinator Marie Arieno Marketing & Event Coordinator Lea Plummer Editor Administrative Assistant Comments & suggestions are welcome! Contact: info@... Take Action! The information, and other materials contained in this newsletter individually and collectively, are provided for educational and informational purposes only and are not a substitute for legal, medical advice or treatment. Neither recommendations nor endorsements are implied. MAKE IT YOUR PERSONAL GOAL TO BE PART OF THE SOLUTION TO EVERY PROBLEM YOU ENCOUNTER JANUARY IS BIRTH DEFECTS PREVENTION MONTH. Once again, the Spina Bifida Association of the Tri-State Region has bookmarks available that are designed to inform the public of the importance of folic acid to help with the prevention of Spina Bifida, and to raise general awareness. If you participate in a public event and would like to be able to hand them out, call the office and we will supply you with an appropriate quantity. Ideas for distributing might include girl scout cookie sales, doctors' offices, book sales, libraries, community events, baby showers, and bridal showers. PROBLEM SOLVING & BEING PART OF THE SOLUTION Life is not very neutral. You can't really not take part and just watch the world go by. You are either part of the problem or part of the solution. Let's adopt the attitude for the new year to be part of our own solution. We don't have to solve the problem, just be part of the solution. How many people actually take a substantial portion of their day to be part of the solution to their own lives. Most people seem content to complain, endure and ignore instead of taking charge and making things better. That sentiment aside, what can you do and how much time are you willing to give to solve the problems in your life? Ten minutes, ½ hour, an hour, every day? Compare that to how much time you watch TV, talk on the phone, snack on junk food, or shop. Before you can be part of the solution though, you must understand and dissect the problem. That is actually the first step to being part of the solution: correctly identify the problem. And I just want to briefly mention that sometimes it is not about the solution, as Shimon Peres once said, " If a problem has no solution, it may not be a problem, but a fact - not to be solved, but to be coped with over time. " Also, most people don't realize that problem solving is not a one-action thing or a one-time attack. As the years have gone by, I have learned that you can approximate a solution the first time around and it is perseverance and patience which allows you to maybe fine tune it a little more the second time around and to keep trying until you get to the desired result.. Looking for an absolute or simple fix is a fast way to give up on problem solving. Being comfortable with approximations can help you go much farther and also get used to changes or new ideas. For example, let's say you have identified that you eat too much comfort food and it is contributing to your being overweight.. And upon examination, you have discovered that you do this because you are lonely and bored. So you come up with the solution of addressing your loneliness and boredom by participating in three social activities a week. You plan to sign up for a telegroup, participate in an adult-ed class and join an online chat room. Here is what happens: Week one: 1)Telegroup-You remember the date at the last minute. You dial-in half an hour late. You're too scared to talk to anyone. You listen for 15 minutes and you hang up. You didn't really accomplish what you had set out to do, but you didn't realize how difficult it might be and how shy you would feel, but you did make effort towards the solution. 2)Adult-Ed Class-You got lost on the way there. You found the room, but then chickened out and drove home. Again, all steps towards the goal. You now know where it is, and where the room is. It will be easier next time. 3)Online Chat Room-You went on the web. Your first investigation led you to a message board, not really what you wanted. Then you found some free chat rooms, but found the sign-in process confusing and overwhelming. Logged off. No great successes, but what you were doing was going towards the solution not adding to the problem. You snacked less and did some things out of your pattern. Week two: 1)Telegroup-This time you wrote on the calendar and had a sticky note on the refrigerator. You started on time, introduced yourself and then didn't say another word the entire time. Learned some interesting information. 2)Adult-Ed Class-You made a point of leaving early to get there on time. You found the room and said hello to three people. Sat in the back and didn't say another word the whole time. Got some great ideas and tips for a new hobby. 3)Online Chat Room-You went on the web and googled chat rooms. Read about how to sign up three times and managed to set yourself up on a chat room about movies. You hadn't seen the movie being discussed and gave up after 10 minutes. You didn't actually spend that much time in direct contact with others, but you did spend more time being around others. You learned a few new things and spent less time sitting around being lonely and feeling sorry for yourself. Week three: 1)Telegroup-You marked the calendar and used the sticky note again. You started on time and were determined to participate in some way. Someone else mentioned the very same pain issue you were experiencing. You spoke up, shared your feelings, and found out you weren't the only one. You also got some very good information on how to take action regarding your pain. 2)Adult Ed Class-You arrived early and were able to join in on a lively discussion while doing a project. You had short conversations with to new people. 3)Online Chat Room-You went to the movie chat room at a different time of day. You could just log on because you figured out how to sign-in previously. The discussion was about a movie you really liked and a very controversial actress with lots of interesting gossip. You had fun. Being part of the solution takes perseverance, patience, being comfortable with approximations, and effort. It does not necessarily require solving the problem, just helping to solve the problem. It is better to create a small step towards being part of the solution then doing nothing or adding to the problem. You can make it your goal to become conscious of all your actions and decide whether they further solutions or further problems. It is easy to complain that things stink and nothing is any good, but what can you do to make things better? Filling in the Gaps. by Lea Plummer HEALTH TIPS SELF-CARE Let's face it. Living with Spina Bifida, or any disability for that matter, isn't easy. There are more physical, emotional, neurological, pain, and mobility issues to contend with then the average person. But feeling sorry for yourself, or saying it is just too hard, or what difference does it make will only make life harder for you and the people around you. Everyone has a responsibility to take care of themselves to the best of their ability. To not do so is selfish and selfindulgent. To not do so is to be part of the problem, not the solution. It is a waste of what you do have. Individuals with Spina Bifida and the people who care for them, need to be stronger, more diligent, and exercise a lot more self-care. The truth is more time and investment is needed to take care of the body and mind just to avoid additional medical issues. This applies to caregivers too! Plan to do daily self-care. Build the time into your routine to take care of the required tasks to maintain good health. Write down a schedule that includes time for exercise, skin examinations, preparing nutritious food, bowel & urological care, stretching, proper rest, and relaxation. Listen & pay attention to your body. Our bodies give us information all the time. Pain is a signal that something needs attention. Skin color indicates oncoming infection or general health status. The color of urine can help determine level of hydration. Fatigue tells us we need rest. Communicate to others until they get the message. Tell your doctor, caregiver, and people close to you, what you need even if they don't think it is important. Discuss items that concern you. Don't be pushed around or dismissed. Don't be apathetic and give-up because it is hard. Listen to health-care providers and family even if you don't like what they have to say. Instead of resisting or being stubborn, try to step back and really consider what others are saying to you about your health. Try to accept and embrace the truth of the self-care required. Give up bad habits. If your system is already compromised, bad habits are just going to make things worse. The pitfalls of smoking, drinking alcohol, being stressed-out and eating processed high-fat or sugary junk food are all compounded by poor mobility and poor elimination. Don't be lazy. Laziness goes hand in hand with poor self-esteem and is probably the root of most poor self-care. You are worth the effort! You are worthy of being cherished, listened to, and cared for by the most important person in your life-you! Transition - the process of change from one form, state, style or place to another. Most parents prepare and anticipate their child transitioning from childhood and dependence to adulthood and independence. At first, we might think, " get a job and leave home " . But it is not as simple as that. Each child transitions differently and to a different extent. Some children never leave home. Some children never get a job. We might start out with black and white ideas, but the real world often forces us to see grey. The real world may constantly ask us to redefine our ideas and beliefs. Children with disabilities, both physical and cognitive, usually take a different path than many other children. More advanced planning and use of supports and resources is required. Transitioning can be a difficult process for any parent and child, but it is even more difficult for the family with a disability. Parents are used to providing so many of the needs of a child with a disability and for so long, that it is a more difficult process for the parent and child to separate and allow other people to perform various aspects of support. Nevertheless, it is a crucial step in transitioning to allow other people to be closely involved with the fostering of the child's independence. Advanced planning and use of supports and resources are key elements to increasing the chances of a child with a disability (or any child for that matter) reaching their full potential and transitioning to independence and adulthood. Planning is crucial and a parent can never start too early. Part of planning is to take a situation ,event or habit and expand it out several steps into the future. Take a look at the possible outcomes of what is going on now in the present. The question can be asked, " Is this habit or situation going to ultimately help or hinder my child's path towards independence? " For example, many parents want to compensate for a child's hardships or struggles and often want to " spare them the pain " . They want their child's life to be easier, so the parent might bend over backwards to assist the child. While most parents understand that children must endure some " bumps and bruises " to become more competent and independent, the parent of a child with disabilities is much more hesitant to allow this to take place. Awareness of their vulnerability can make a parent overprotective and over-helpful. This will do the exact opposite of fostering independence. And in addition, the child will sense the parents' fear and concern and will often embrace it to the point of becoming apathetic or immobilized. The parent must learn and plan for their child experiencing difficulty. They must develop an acceptance of seeing their child struggle and a commitment to fostering independence from early childhood. Learning to handle and overcome hardships is a skill that will help any child get through life. The earlier this process begins the easier it will be for a child to transition to adulthood. REAL LIFE STORIES: Dan, a member of SBATSR, is 21 years old and just started attending community college. Dan uses a wheelchair and has a service dog, Kisses. Dan stayed in high school until he was 21. He has always wanted to go to college and his dream is to be a sports announcer for radio or TV. Dan is eligible for services from the Division of Developmental Disabilities and it was decided that he would participate in the Real Life Choices program. For more information about this program, please contact the office at info@.... Tools that make a big difference to Dan while attending college include: *Kisses, his service dog, who is very helpful with reducing anxiety especially in public places, building social confidence, and companionship, in addition to helping with physical tasks. *A laptop computer, which helps with organization and comprehension by combining text with speech. *An aide, Andre, who helps with studying and also serves as a social intermediary. Dan's mother has noted that Dan has just blossomed since attending community college and Real Life Choices is a really important support structure that removes some of the pressure from the parent and also starts the process of parent separation, learning to get assistance from other people and developing more independence. TRANSITIONS REAL LIFE STORIES: If you would like to share your experiences or comments about transition in the EZ, please contact Lea at SBATSR. You can email at info@..., or call 908-782-7475. You can also write Lea at SBATSR, 84 Park Avenue, Suite G-106, Flemington, NJ 08822. We want to hear from you! RESOURCES KNOW YOUR RIGHTS AS AN AMERICAN WITH DISABILITIES http://www.usdoj.gov/crt/ada/adahom1.htm Information and technical assistance on the American with Disabilities Act. There is nothing like knowledge and education when it comes to self-care and self-advocacy. If we are well-informed we are more able to help ourselves and to teach others how to help us. Please see the resources listed below to assist you in becoming more informed on a variety of topics such as: legal rights, employment rights, health issues, education and more. NATIONAL ORGANIZATION OF DISABILITIES-EDUCATION SECTION http://www.nod.org/index.cfm?fuseaction=Page.ViewPage & PageID=21 & Includes articles, information, programs and links concerning education and disability. OFFICE OF DISABILITY EMPLOYMENT POLICY http://www.dol.gov/odep/ Offers information on employment policies, support for employment, and different programs. SELF MANAGEMENT: TAKING CHARGE OF YOUR HEALTH http://familydoctor.org/online/famdocen/home/healthy/prevention/785.html Information and how-to on managing chronic illness. KNOW THE SYMPTOMS OF SHUNT MALFUNCTION: HYDROCEPHALUS INFORMATION SHEET http://www.divideclassic.org/Documents/ShuntInfo.htm An extensive information sheet that discuss the symptoms and complications of shunt malfunction. KNOW THE SYMPTOMS OF URINARY TRACT INFECTIONS http://www.emedicinehealth.com/urinary_tract_infections/article_em.htm An informative article discussing causes, symptoms, treatment, and prevention. FAMILY SUPPORT CENTER OF NEW JERSEY http://www.fscnj.org:80/ Offers extensive up-to-date information on disabilities, support services and programs for families in New Jersey. INFORMATION & RESOURCE SERVICES FOR NYC FAMILIES THAT HAVE CHILDREN WITH SPECIAL NEEDS http://www.resourcesnyc.org/rcsn.htm NEW YORK STATE: Description of family support services to help families care for members with a disability. http://www.parenttoparentnys.org/PDFs/Family%20Support%20Services% 20through%20NYS%20OMRDD%20%20Dec%202005.pdf UNDERSTANDING STRESS: Signs, symptoms, causes, and effects. http://www.helpguide.org/mental/stress_signs.htm OTHER AVENUES.. Tune into DisabilityNation, an audio magazine by and for people with disabilities. The goal of DisabilityNation is to provide listeners with an alternative view other than mainstream media of disability issues. More information can be found at http://www.disabilitynation.net Inquiring Minds Want To Know. If you receive disability benefits from the Social Security Administration, and are interested in working or learning more about how working would affect your benefits, you can get help from a community organization known as a Work Incentive Planning and Assistance (WIPA) project. Go to http://www.socialsecurity.gov/work/ ServiceProviders/WIPADirectory.html#service and find out more. THE DANNY FUND: Help available for families of children who reside in Pelham, Rye Brook, the Bronx, or White Plains, New York and are living with a catastrophic illness or injury. The Danny Fund, a 100-percent volunteer Westchester-based non-profit organization, learns about potential Danny Kids through referrals from physicians, neighbors, healthcare organizations, social workers, etc. The group adopts a family for the long haul and provides ongoing support as it is needed. Typically, initial support is broad and represents significant expenditures. As time passes and the financial problems stabilize, the amount of support diminishes. To nominate a local child in need, please write to: The Danny Fund (Please note that nominations cannot be accepted through the website or over the phone) PO BOX 271 Pelham, NY 10803 FIND WAYS TO SERVE IN ADDITION TO RECEIVING SERVICES Comprehensive website for people with disabilities provides leading one-stop federal source for disability-related information. The 50 million Americans who are living with disabilities will have an easier time learning about and participating in national service and volunteer programs thanks to new initiatives implemented by the Corporation for National and Community Service. The Corporation is the latest partner in DisabilityInfo.gov, a collaborative effort among 22 federal government agencies. The site provides information on benefits, civil rights, community life, education, employment, housing, health, technology and other subjects. The Corporation will be providing content about service and volunteering opportunities, grants, special initiatives, and training resources geared to including people with disabilities in service. " Volunteer service connects people with disabilities to skills, networks, and career paths that can bring added value to their lives. " National Job Site Dedicated to Including Individuals with Disabilities into Today's Workforce The website, www.AccessibleEmployment.org, is designed to provide employers with one central place to post employment positions and search resumes of qualified candidates with disabilities. In addition, www.AccessibleEmployment.org allows potential job candidates to post resumes for prospective employers who are looking for qualified candidates and who are committed to building diversity in their workforce. OTHER AVENUES.. Small changes can make big differences. Oil prices are on the rise, but you can help your purse and the environment by installing a programmable thermostat. This little investment will pay for itself many times. Why pay for heating or cooling when you are not home or are asleep? A programmable thermostat can be set up to adjust the tempature according to your daily schedule. If you are not home, drop it down by a few degrees in winter and raise it up a few in summer. This winter, see if you can handle 1 or 2 degrees cooler than last year. Use a sweater, wear a hat, or do some physical activity before you turn up the thermostat. Remember we pollute not only by burning oil, but by transporting it from refinery to retailer to homeowner. HELP BIG MOMMA FREE HEALTHCARE RECORD-KEEPING NOTEBOOK In caring for your child with special health care needs you will receive information from many sources. This Health Care Notebook will help you organize information in one central place. It will help you track changes in medication/treatments and have a place where you can look up previously used health care professionals (i.e. speech therapist from Pre-K, first ENT, etc.). It will be a place to keep phone numbers, doctors, locations of testing, vendors of durable medical equipment, serial numbers, etc., authorizations/approvals in one place rather than in envelopes and boxes under beds. An easy to use notebook for parents to document an ongoing record of their child's medical and health care. See http://www.parenttoparentnys.org/Family2Family/Record%20Keeping/notebook.htm. This notebook is free and is downloadable in English or Spanish. To obtain: write or call Janice Fitzgerald PO Box 1296 Tupper Lake, NY 12986 518-359-3006 p2pnys@... A life lived of choice is a life of conscious action. A life lived of chance is a life of unconscious creation. - Neale Walsch Right Under My Nose is an online book created to help children with spina bifida understand their condition, discover new ways to enrich their lives and help their parents and caregivers answer many of the tough questions that arise. With a fully interactive story, activities, tips, and a printable version of the whole book, this site is intended to be educational and fun. English & Spanish Available. Enjoy! Go to http://www.childrenshospitalla.org/spinabifidabookeng/ LifeNets-The Wheelchair Project LifeNet's Wheelchair Project is for those living in the United States. The program is designed to facilitate the exchange of wheelchairs between individuals. The goal of LifeNet's Wheelchair Project is to put wheelchairs that are not currently being used into the needed hands of someone who cannot afford or qualify for them. This site is like the match.com of individuals and wheelchairs. Go to http://www.lifenets.org/wheelchair/ To donate your wheelchair or if you need a wheelchair please contact Alix Kubik at alix@... or call at 317-536-5219 (Monday through Friday 9 to 9 Eastern Time). Everything You Wanted to Know About Spina Bifida, But Didn't Know to Ask... When a person has Spina Bifida, it is almost always detectable that the he has a physical disability. This obviousness very often overshadows the important fact that Spina Bifida also usually includes cognitive or neurological issues which can impair the individual just as thoroughly as the physical impairment. Because of good verbal skills, the general public assumes that a person with Spina Bifida only has a physical impairment. Therefore expectations that the individual with Spina Bifida has specific consistent cognitive skills can be unrealistic and may lead to frustration, impatience, and an inappropriate assessment of the individual's abilities. The individual may begin to have poor self-esteem, anger, and frustration at not being able to perform at expected levels. " Individuals with meningomyelocele often have abnormalities such as Chiari type II malformation, hypoplasia (incomplete development) of the cranial nerve nuclei, thinning of the posterior cerebral cortex, and abnormal architecture of the corpus callosum and other midline structures. Most individuals (80%) with meningomyelocele have intelligence in the normal range, yet they often have specific learning disabilities. Typically they are stronger in language and weaker in perceptual and motor skills. Older research has documented that individuals with meningomyelocele have lower nonverbal than verbal IQ scores, with verbal IQ scores often in the average range. They have difficulty with pragmatic communication, e.g., they use and understand single words but have significant problems with language at the level of text and discourse. They demonstrate significant problems with short-term memory, especially list learning. They often appear to have problems with attention and executive function; however, evaluation of their memory, attention, and executive functions may reflect difficulties with other core processes. The neuropsychological challenges of meningomyelocele are present early in life, are comprehensive in nature, and are a significant impediment to academic learning, social competence, and adaptive functioning throughout the life span. Thus, they directly impact the long-term outcomes and level of independence of individuals with meningomyelocele. In school, math is commonly impaired more than word recognition skills, and problems with writing and reading comprehension are common. Neurological impairments can affect learning outside of school as well in areas such as self-care, social skills, and adaptive behavior skills. The relationships among learning, achievement, motivation, and learning outcomes appear to be complex. " 1 " Parents, observant teachers, and health care professionals have observed that individuals with Spina Bifida have problems with motor skills, attention, memory and organization. Research linking medical aspects of Spina Bifida and hydrocephalus to scores that test intelligence and academics concludes that children need to be evaluated psychologically and neuropsychologically to identify individual strengths and deficits. Even when not considered learning disabled by state or federal guidelines, learning weaknesses exist in individuals with Spina Bifida. The following eight areas describe some of these weaknesses and offer suggestions for helping persons with Spina Bifida: Comprehension Individuals with Spina Bifida sometimes have a hard time understanding concepts. Perceptual Motor Problems Often, individuals with shunted hydrocephalus have poor eye-hand coordination and ineffective motor skills among individuals with Spina Bifida, interfere with the ability to move, use tools, read and write. Attention Individuals with Spina Bifida often have trouble paying attention at school or work where they may miss assignments, complete work slowly or overlook social cues. If attention problems continue, it may be necessary to conduct evaluations for attention deficit and perhaps consider a therapeutic trial of medication. Hyperactivity/Impulsivity While physical impairment may mask the restlessness, children with Spina Bifida often appear fidgety and impulsive. This behavior can get the children into trouble because they end up doing things quickly and carelessly. As with inattention, if these behaviors continue, a psychologist, pediatrician or neurologist should evaluate the children. Memory Even when individuals with Spina Bifida understand what they see or hear, they often have difficulty remembering. Organization Individuals often have trouble keeping things organized and are likely to lose or misplace things. Sequencing Individuals with Spina Bifida often have trouble keeping ideas or doing activities in their proper order. Good stories that can be told in an orderly way may not easily be written down because children cannot organize ideas. Sequencing problems become obvious when doing math, telling time and counting change. Decision Making/Problem Solving Persons with Spina Bifida have trouble making decisions, which requires using what was learned in the past to solve a new problem now. If there comes a time when a child appears to not improve their problem solving or decision-making, contact professionals. " 2 " Despite patterns that individuals with meningomyelocele share in common, a great deal of variability occurs in individuals. These difficulties emerge early in development, can be modified by experience, persist across the life span, and are related to genetic factors, level of the lesion, and neurological abnormalities. The relationship between anomalies in brain structure and the core processing deficits, as well as the relationship between core processing deficits and functional outcomes over the course of development, are not well understood now. " 3 REFERENCES 1. " Neuropsychology and Learning " . Spina Bifida Association. http://www.sbaa.org/site/ c.liKWL7PLLrF/b.2700285/k.BD6D/Neuropsychology_and_Learning.htm 2. " Learning Among Children with Spina Bifida " . Spina Bifida Association. http://www.sbaa.org/ site/c.liKWL7PLLrF/b.2700281/k.E95C/Learning_Among_Children_with_Spina_Bifida.ht\ m 3. " Neuropsychology and Learning " . Spina Bifida Association. http://www.sbaa.org/site/ c.liKWL7PLLrF/b.2700285/k.BD6D/Neuropsychology_and_Learning.htm WHAT'S HAPPENING AT SBATSR SBATSR HOLIDAY PARTY WHAT'S HAPPENING AT SBATSR January Teleconferences *Golden Girls: 1/2 8PM with Krul *Men's Group: 1/22 8PM w/ Horowitz *Eclectic Women: 1/22 7:30PM with Carla Heath *Parents of Adults: 1/23 8:30PM with Jane Horowitz February Teleconferences *Golden Girls: 2/6 8PM with Krul *Parents of Adults: 2/26 8PM with Jane Horowitz *Men's Group: 2/26 8PM w/ Horowitz NO Eclectic women BELOVED SBATSR MEMBER PASSES AWAY On November 11, 2007, Eileen Lyden, resident of View Nursing Home and long-time member of SBATSR passed away. Eileen was a great inspiration to many. She was a vital person who never let anything keep her down. Her activities ranged from being a professor at several different colleges, a successful saleswoman and trainer of computer software and financial services, to a founding member of a small resident run convenience store at the nursing home where she lived. Her lively spirit and willingness to get involved made her a special person loved by many. SHOPRITE AND SBATSR ARE WORKING TOGETHER TO PROMOTE FOLIC ACID THRU COOKING CLASSES AT PARTICIPATING SHOPRITE LOCATIONS Clinton Shoprite January 10 and January 31 7PM Must call HMC's Hunterdon Nutrition and Diabetes Management Center for reserving a spot for the cooking class 908 237-6920 Greenwich/burg Shoprite January 24 7PM Call Shelia at the store to reserve your cooking class spot 908-454-8086 Thanks to all those members who sent in there 2008 membership dues! For those of you who haven't sent in their dues, don't lose out! Join now! Deadline is March 14. See the enclosed form or go to the following link: http://www.sbatsr.org/objects/ GeneralMembershipForm2008.pdf MEETING DATE FOR THE BRONX SPINA BIFIDA ADULT GROUP January 12, 10am-12pm THE KENNEDY CENTER 1410 Pelham Parkway South, NY For more info, call Lourdes 1-646-404-0864 WHAT'S HAPPENING AT SBATSR Name: ___________________________Phone: ________________________ E-mail: ______________ Address: __________________________ City: ___________________ State: _________ Zip:________ I am interested in joining the: _____________ committee and can commit to at least _________ hours for the year on planning. This includes conference call meetings and outside solicitation. SBATSR will be hosting a " Culinary Wine and Food Tasting " Event on October 23, 2008 at the Basking Ridge Country Club. We are looking for committee members to join our event planning committee. Committees Include: · Silent Auction · Registration · Vendor Logistics · Raffle Prizes This is a great opportunity to volunteer your time if you love food and wine events! For more information, please contact events@... Or call 908-782-7475 Please fill out this form and mail back to: Spina Bifida Association of the Tri-State 84 Park Ave, Ste. G-106 Flemington, NJ 08822 Att: Culinary Food and Wine Committee Save The Date! The Spina Bifida Association of the Tri-State Regional Conference 2008 When: Saturday, May 31st - Sunday, June 1st Where: The Lakeview School 10 Oak Drive Roosevelt Park, Edison New Jersey 08837 Join Us for a weekend of .. Workshops . Seminars .. Vendors and Demos . Networking · Make new friends! . Reception Party! Childcare programs will be available Bring the entire family for this two-day informative event Visit http://www.sbatsr.org/events/2008.html for more information Registration packets will be mailed out in March, 2008. Please save the date! WHAT'S HAPPENING AT SBATSR Customized cards for any occasion. You can pay by check or credit card. Just call-in the information at 908-782-7475 or email info@... and we will mail a customized donation card to the person of your choice. Gift amounts must be $20 or more and are tax deductible. MORE SAMPLES AVAILABLE Spina Bifida Association of the Tri-State Region 84 Park Avenue, Suite G-106 Flemington, NJ 08822 Each new day is a blank page in the diary of your life. The secret of success is in turning that diary into the best story you possibly can. Pagels (If you have sent in your 2008 membership form please disregard this notice) The EZ is always available in full color at http://www.sbatsr.org/living/newsletters.html. DO YOU WANT TO RECEIVE THIS PUBLICATION?______ DO YOU WANT TO RECEIVE IT VIA AN EMAIL ATTACHMENT? ______(in full color) DO YOU WANT TO RECEIVE IT IN THE MAIL?________ DO YOU WANT TO RECEIVE A LINK TO SEE IT ONLINE? ______(in full color) PLEASE PRINT SLOWLY AND CLEARLY SO WE HAVE THE CORRECT INFORMATION! Yes, I want to help support the production and distribution of this newsletter by making a donation in the enclosed envelope. I am unable to make a donation at this time, but I would like to remain on the EZ mailing list. EMAIL:______________________________PHONE:_____________________ If you or a family member does not have spina bifida, please check the label below, make any corrections necessary, add additional contact information, tear off this page and mail in the enclosed envelope. To use email go to info@... and send corrected information. If you or a family member has spina bifida, please fill out the inserted form and return in the enclosed envelope and we will keep you on the mailing list. For the online form go to http:// www.sbatsr.org/objects/GeneralMembershipForm2008.pdf and send email to info@.... Quote Link to comment Share on other sites More sharing options...
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