Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Although I don't have spina bifida, since my weight loss I'm having tail bone problems, too. I have similar problems sitting and laying down. I often have to position myself while sitting to avoid the pressure sensation on my tail bone. I wake up groaning in pain in the middle of the night. My problem is due to the excess skin which bunches and folds around the tail bone. I'm having a LBL- tummy tuck and butt lift in a few weeks and hopefully that will take care of it. Janet in No. California RNY- 8/8/01- Dr. Meyerowitz 337/140 LBL- 2/28/03- Dr. Baldwin > ---------- > > Sent: Wednesday, February 12, 2003 12:12 PM > To: Graduate-OSSG > Subject: SPINA BIFIDA > > I have spina bifida...in my case very minor...an invagination at the > base of my spine, but now causing me problems post WLS. I have NO > padding over the coxxyx, and the bone pushes on the bridge of skin > over the gluteal cleft. OUCH! Firm chairs are best for me...3 > different docs were no help. The consensus of opinion is to put a > pad of some kind in my underwear to cushion it?????, carry a gel pad > around to sit on?????? or ignore it. WEll, I ignore it and then > yelp at the strangest times... sleeping on my back is difficult > because I am lying on the bone, it hurts, and I awaken. Have known > 2 other adult women with spina bifida...much more serious than my > situation. One is a veterinarian..she need is on crutches, is not > able to void without manually manipulating her bladder...pushing on > it from the outside, and must use laxatives. The other is a > librarian, she has a slight limp, dribbles urine, wears incontinence > pads, and goes about her life. Severity of the deformity and > attitude determines the quality of life. 43 year old nephew had > spina bifida with myelmeningeocele...don't know if I spelled it > correctly. Now THAT is serious. Surgery to remove the lump at the > end of his spine containing fatty tissue and fluid, eventual > paralysis of lower extremities due to a tumor growing up his spine. > He is married to a woman whose physical problems are more extensive > than his. He is a machinist, only one of my sister's children to > leave home and mommy....moved from MN to TX. Corrine > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Although I don't have spina bifida, since my weight loss I'm having tail bone problems, too. I have similar problems sitting and laying down. I often have to position myself while sitting to avoid the pressure sensation on my tail bone. I wake up groaning in pain in the middle of the night. My problem is due to the excess skin which bunches and folds around the tail bone. I'm having a LBL- tummy tuck and butt lift in a few weeks and hopefully that will take care of it. Janet in No. California RNY- 8/8/01- Dr. Meyerowitz 337/140 LBL- 2/28/03- Dr. Baldwin > ---------- > > Sent: Wednesday, February 12, 2003 12:12 PM > To: Graduate-OSSG > Subject: SPINA BIFIDA > > I have spina bifida...in my case very minor...an invagination at the > base of my spine, but now causing me problems post WLS. I have NO > padding over the coxxyx, and the bone pushes on the bridge of skin > over the gluteal cleft. OUCH! Firm chairs are best for me...3 > different docs were no help. The consensus of opinion is to put a > pad of some kind in my underwear to cushion it?????, carry a gel pad > around to sit on?????? or ignore it. WEll, I ignore it and then > yelp at the strangest times... sleeping on my back is difficult > because I am lying on the bone, it hurts, and I awaken. Have known > 2 other adult women with spina bifida...much more serious than my > situation. One is a veterinarian..she need is on crutches, is not > able to void without manually manipulating her bladder...pushing on > it from the outside, and must use laxatives. The other is a > librarian, she has a slight limp, dribbles urine, wears incontinence > pads, and goes about her life. Severity of the deformity and > attitude determines the quality of life. 43 year old nephew had > spina bifida with myelmeningeocele...don't know if I spelled it > correctly. Now THAT is serious. Surgery to remove the lump at the > end of his spine containing fatty tissue and fluid, eventual > paralysis of lower extremities due to a tumor growing up his spine. > He is married to a woman whose physical problems are more extensive > than his. He is a machinist, only one of my sister's children to > leave home and mommy....moved from MN to TX. Corrine > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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