Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 In a message dated 10/9/2003 9:45:50 AM Eastern Daylight Time, jang33071@... writes: I read in your post that you have pancreas divisum. I have just been diagnosed with this and had my first stent put in two weeks ago, almost. I am scheduled to have at least two more before the end of the year (the next one is Nove 7th, then Dec 19th). My experience so far is that my pain is worse since the stent was put in. Is this what you experienced during the whole stenting process? Is it a matter of having to get worse before you feel better kinda thing? or is the increased pain level telling me to stop the process right here, that it will only get worse each time he goes in to give me a new stent? Hi I also HAD pancreas divisim until I had my pancreas removed and the islet taken from my pancreas and transferred to my liver. The islets now live there and control my blood sugar. I suffered with pain from my pancreas from 1985 to 2000 when I had my pancreatectomy and islet cell transplant. I started having pancreas attacks in 1994. I had 10 ercp's to place stints in my small duct and with each stint I became worse. Going from doctor to doctor I was told that I needed the tail removed from my pancreas, another doctor said I needed a Whipple, another said I needed a peustow. I had the stints placed in my small duct and with each stint getting larger and larger my duct was stretched larger and larger. My experience with stint placement in the small duct is negative. I believe the stints scar the duct and makes the pancreatitis so much worse. While I was undergoing the stint placement to stretch my small duct I continued to experience pain even though my duct was stretched very large. The stints made my attacks come more often and more severe. When I found out about the pancreatectomy and islet cell transplant I knew that surgery would be the cure for me. Many people in this group have had the pancreatectomy and islet cell transplant and like me they don't have anymore pain, are able to eat what they want and all they want. Dr. Sutherland from Fairview University Medical Center in Minneapolis, MN is a wonderful doctor and performs the pancreatectomy often. If anyone would like anymore information about this surgery please let me know and I will be happy to give it to you. The pancreatectomy and islet cell transplant is a success when one isn't diabetic. So if you are considering having the pancreatectomy and islet cell transplant you will have more islets to transplant to your liver if you have a limited amount of pancreas attacks. Every time one has an attack precious islets are destroyed. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 In a message dated 10/9/2003 9:45:50 AM Eastern Daylight Time, jang33071@... writes: I read in your post that you have pancreas divisum. I have just been diagnosed with this and had my first stent put in two weeks ago, almost. I am scheduled to have at least two more before the end of the year (the next one is Nove 7th, then Dec 19th). My experience so far is that my pain is worse since the stent was put in. Is this what you experienced during the whole stenting process? Is it a matter of having to get worse before you feel better kinda thing? or is the increased pain level telling me to stop the process right here, that it will only get worse each time he goes in to give me a new stent? Hi I also HAD pancreas divisim until I had my pancreas removed and the islet taken from my pancreas and transferred to my liver. The islets now live there and control my blood sugar. I suffered with pain from my pancreas from 1985 to 2000 when I had my pancreatectomy and islet cell transplant. I started having pancreas attacks in 1994. I had 10 ercp's to place stints in my small duct and with each stint I became worse. Going from doctor to doctor I was told that I needed the tail removed from my pancreas, another doctor said I needed a Whipple, another said I needed a peustow. I had the stints placed in my small duct and with each stint getting larger and larger my duct was stretched larger and larger. My experience with stint placement in the small duct is negative. I believe the stints scar the duct and makes the pancreatitis so much worse. While I was undergoing the stint placement to stretch my small duct I continued to experience pain even though my duct was stretched very large. The stints made my attacks come more often and more severe. When I found out about the pancreatectomy and islet cell transplant I knew that surgery would be the cure for me. Many people in this group have had the pancreatectomy and islet cell transplant and like me they don't have anymore pain, are able to eat what they want and all they want. Dr. Sutherland from Fairview University Medical Center in Minneapolis, MN is a wonderful doctor and performs the pancreatectomy often. If anyone would like anymore information about this surgery please let me know and I will be happy to give it to you. The pancreatectomy and islet cell transplant is a success when one isn't diabetic. So if you are considering having the pancreatectomy and islet cell transplant you will have more islets to transplant to your liver if you have a limited amount of pancreas attacks. Every time one has an attack precious islets are destroyed. Shirley Quote Link to comment Share on other sites More sharing options...
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