Re: Strange new bone growth after surgey

August 28, 2004

Well, no. Except I watched part of that great scientific expert

program on Discovery Teevee last night. There was a young woman there

who had a really difficult malformation, had had an implant of a rib,

and subsequently developed a lot of extraneous bone growth around it.

They took out the rib, and the excess bone, and managed to give her a

much better bite and free her locked jaw.

I believe that osteomyelitis can be an infection in the bone, and

would rather not explain here why I think that, except that it can

happen in post-radiation cases in which the immune system is damaged

and teeth become diseased. I do believe, from what I've been told,

that osteomyelitis is a problem to take seriously, very seriously,

and find the best expert help you can get.

Sorry not to post more optimistically, and I hope that I'm wrong on

every point. I am not a medical person of any sort, and urge you to

discuss this at length with your caregivers.

Cammie

> Hello

>

> My wife had lower sugery done at the end of last feburary. The

recovery is progressing

> nicely except for one thing. There is some new bone (sequestrum?)

growing from one of

> the incision points (developed into granulation tissue?). This new

bone is very small and

> has grow twice and has been removed.

>

> The doctor says, new bone growth is normal and that the body is

rejecting the bone. This

> new bone growth is causing some pain, and has caused some puss.

The doctor has given

> her antibiotics.

>

> We have done some research and came up with 'sequestrum mandible

ostemyelitis' ?

>

> Has anyone every heard of this ?

>

> thanks

> Bruce

August 28, 2004

Well, no. Except I watched part of that great scientific expert

program on Discovery Teevee last night. There was a young woman there

who had a really difficult malformation, had had an implant of a rib,

and subsequently developed a lot of extraneous bone growth around it.

They took out the rib, and the excess bone, and managed to give her a

much better bite and free her locked jaw.

I believe that osteomyelitis can be an infection in the bone, and

would rather not explain here why I think that, except that it can

happen in post-radiation cases in which the immune system is damaged

and teeth become diseased. I do believe, from what I've been told,

that osteomyelitis is a problem to take seriously, very seriously,

and find the best expert help you can get.

Sorry not to post more optimistically, and I hope that I'm wrong on

every point. I am not a medical person of any sort, and urge you to

discuss this at length with your caregivers.

Cammie

> Hello

>

> My wife had lower sugery done at the end of last feburary. The

recovery is progressing

> nicely except for one thing. There is some new bone (sequestrum?)

growing from one of

> the incision points (developed into granulation tissue?). This new

bone is very small and

> has grow twice and has been removed.

>

> The doctor says, new bone growth is normal and that the body is

rejecting the bone. This

> new bone growth is causing some pain, and has caused some puss.

The doctor has given

> her antibiotics.

>

> We have done some research and came up with 'sequestrum mandible

ostemyelitis' ?

>

> Has anyone every heard of this ?

>

> thanks

> Bruce

August 28, 2004

Cammie

At the moment we have no formal diagnosis as osteomyelitis

.. We have only done some research on the internet looking for similar

cases.

We are going to look for a 2nd opinion from a different hospital from where

we had the surgery (here in Tokyo) next weekend.

Thanks for your reply.

Bruce

On 29/8/04 11:45 AM, " ceast36532 " <no_reply > wrote:

> Well, no. Except I watched part of that great scientific expert

> program on Discovery Teevee last night. There was a young woman there

> who had a really difficult malformation, had had an implant of a rib,

> and subsequently developed a lot of extraneous bone growth around it.

> They took out the rib, and the excess bone, and managed to give her a

> much better bite and free her locked jaw.

>

> I believe that osteomyelitis can be an infection in the bone, and

> would rather not explain here why I think that, except that it can

> happen in post-radiation cases in which the immune system is damaged

> and teeth become diseased. I do believe, from what I've been told,

> that osteomyelitis is a problem to take seriously, very seriously,

> and find the best expert help you can get.

>

> Sorry not to post more optimistically, and I hope that I'm wrong on

> every point. I am not a medical person of any sort, and urge you to

> discuss this at length with your caregivers.

>

> Cammie

>

>> Hello

>>

>> My wife had lower sugery done at the end of last feburary. The

> recovery is progressing

>> nicely except for one thing. There is some new bone (sequestrum?)

> growing from one of

>> the incision points (developed into granulation tissue?). This new

> bone is very small and

>> has grow twice and has been removed.

>>

>> The doctor says, new bone growth is normal and that the body is

> rejecting the bone. This

>> new bone growth is causing some pain, and has caused some puss.

> The doctor has given

>> her antibiotics.

>>

>> We have done some research and came up with 'sequestrum mandible

> ostemyelitis' ?

>>

>> Has anyone every heard of this ?

>>

>> thanks

>> Bruce

>

August 28, 2004

Cammie

At the moment we have no formal diagnosis as osteomyelitis

.. We have only done some research on the internet looking for similar

cases.

We are going to look for a 2nd opinion from a different hospital from where

we had the surgery (here in Tokyo) next weekend.

Thanks for your reply.

Bruce

On 29/8/04 11:45 AM, " ceast36532 " <no_reply > wrote:

> Well, no. Except I watched part of that great scientific expert

> program on Discovery Teevee last night. There was a young woman there

> who had a really difficult malformation, had had an implant of a rib,

> and subsequently developed a lot of extraneous bone growth around it.

> They took out the rib, and the excess bone, and managed to give her a

> much better bite and free her locked jaw.

>

> I believe that osteomyelitis can be an infection in the bone, and

> would rather not explain here why I think that, except that it can

> happen in post-radiation cases in which the immune system is damaged

> and teeth become diseased. I do believe, from what I've been told,

> that osteomyelitis is a problem to take seriously, very seriously,

> and find the best expert help you can get.

>

> Sorry not to post more optimistically, and I hope that I'm wrong on

> every point. I am not a medical person of any sort, and urge you to

> discuss this at length with your caregivers.

>

> Cammie

>

>> Hello

>>

>> My wife had lower sugery done at the end of last feburary. The

> recovery is progressing

>> nicely except for one thing. There is some new bone (sequestrum?)

> growing from one of

>> the incision points (developed into granulation tissue?). This new

> bone is very small and

>> has grow twice and has been removed.

>>

>> The doctor says, new bone growth is normal and that the body is

> rejecting the bone. This

>> new bone growth is causing some pain, and has caused some puss.

> The doctor has given

>> her antibiotics.

>>

>> We have done some research and came up with 'sequestrum mandible

> ostemyelitis' ?

>>

>> Has anyone every heard of this ?

>>

>> thanks

>> Bruce

>

August 29, 2004

These tv docs were able to remove the previously implanted rib, and

the extraneous growth around it, but it took some careful

proceedings, as the bones in this case (again -- my only knowledge

comes from a television program designed for laymen) were in an area

where there were a lot of arteries, and there was significant risk

of blood loss. Just talk a lot with your docs. Say everything six

times (you don't want to know why I advise that!) and keep on asking

until you understand. (Make them say things six times, too!)

And when you start feeling scary, remember that you can find

everything from brain surgery to weight loss on the internet, and

not all of it is accurate; certainly not all of it is descriptive of

your circumstances!

To quote (more or less) Fiddly's mantra: Don't worry until you

know you have something to worry about!

C.

> Cammie

>

> At the moment we have no formal diagnosis as osteomyelitis

> . We have only done some research on the internet looking for

similar

> cases.

>

> We are going to look for a 2nd opinion from a different hospital

from where

> we had the surgery (here in Tokyo) next weekend.

>

> Thanks for your reply.

>

> Bruce

August 29, 2004