Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 dpscosmo17 Yes it is possible to have MSA and not have OH - about 13% of MSA patients do not get that symptom. The OPCA form of MSA does not always have OH as a serious problem also. My wife had that form and one florinef a day kept her OH in line for about 10 years then we had to go to two per day. What are your wife's symptoms? Where was she diagnosed? Take care, Bill Werre ============================================================ dpscosmo17 wrote: >Everything I read says that orthostatic hypotension is a dominant >symptom of MSA/OPCA. Is it possible to not get this symptom? My wife >()has many of the autonomic symptoms but not this one, after two >years..Could this be a indication that she is mis-diagnosed? > >Also, I know that swallowing problems are another symptom. Are >frequent episodes of hiccups a warning of this symptom developing? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 dpscosmo17 Yes it is possible to have MSA and not have OH - about 13% of MSA patients do not get that symptom. The OPCA form of MSA does not always have OH as a serious problem also. My wife had that form and one florinef a day kept her OH in line for about 10 years then we had to go to two per day. What are your wife's symptoms? Where was she diagnosed? Take care, Bill Werre ============================================================ dpscosmo17 wrote: >Everything I read says that orthostatic hypotension is a dominant >symptom of MSA/OPCA. Is it possible to not get this symptom? My wife >()has many of the autonomic symptoms but not this one, after two >years..Could this be a indication that she is mis-diagnosed? > >Also, I know that swallowing problems are another symptom. Are >frequent episodes of hiccups a warning of this symptom developing? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Sorry, I'm new at this... I sent my reply to your email instead of using the " reply " selection... > > >Everything I read says that orthostatic hypotension is a dominant > >symptom of MSA/OPCA. Is it possible to not get this symptom? My wife > >()has many of the autonomic symptoms but not this one, after two > >years..Could this be a indication that she is mis-diagnosed? > > > >Also, I know that swallowing problems are another symptom. Are > >frequent episodes of hiccups a warning of this symptom developing? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Sorry, I'm new at this... I sent my reply to your email instead of using the " reply " selection... > > >Everything I read says that orthostatic hypotension is a dominant > >symptom of MSA/OPCA. Is it possible to not get this symptom? My wife > >()has many of the autonomic symptoms but not this one, after two > >years..Could this be a indication that she is mis-diagnosed? > > > >Also, I know that swallowing problems are another symptom. Are > >frequent episodes of hiccups a warning of this symptom developing? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 Hi there, The dominant symptoms for MSA are usually either autonomic OR urinary. It's not necessary to have both. My mother-in-law had MSA/OPCA we think and although she had chronically low blood pressure it was not a huge problem for her and she managed it with diet and salt. She did though have urinary incontinence. If you are concerned about 's diagnosis you might want to make sure her doctor reads this article and discusses his reasoning with you for giving her a diagnosis of MSA. http://www.emedicine.com/neuro/topic671.htm A brief quote from this article: " MSA can be classified as possible, probable, or definite based on the features and criteria in the 3 clinical domains of (1) autonomic and/or urinary dysfunction, (2) parkinsonism, and (3) cerebellar dysfunction (Table 2, Table 3, Table 4, Table 5, Table 6). Possible MSA can be diagnosed when one criterion and two features separate from other clinical domains are found. The diagnosis of probable MSA requires the criterion of autonomic and/or urinary dysfunction and the presence of poorly levodopa-responsive parkinsonism or cerebellar ataxia. Only pathologic findings can confirm the diagnosis of definite MSA. " In particular look at Table 2 of this paper as it outlines the diagnostic criteria for MSA. Regards, Pam questions on symptoms > Everything I read says that orthostatic hypotension is a dominant > symptom of MSA/OPCA. Is it possible to not get this symptom? My wife > ()has many of the autonomic symptoms but not this one, after two > years..Could this be a indication that she is mis-diagnosed? > > Also, I know that swallowing problems are another symptom. Are > frequent episodes of hiccups a warning of this symptom developing? > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 Hi there, The dominant symptoms for MSA are usually either autonomic OR urinary. It's not necessary to have both. My mother-in-law had MSA/OPCA we think and although she had chronically low blood pressure it was not a huge problem for her and she managed it with diet and salt. She did though have urinary incontinence. If you are concerned about 's diagnosis you might want to make sure her doctor reads this article and discusses his reasoning with you for giving her a diagnosis of MSA. http://www.emedicine.com/neuro/topic671.htm A brief quote from this article: " MSA can be classified as possible, probable, or definite based on the features and criteria in the 3 clinical domains of (1) autonomic and/or urinary dysfunction, (2) parkinsonism, and (3) cerebellar dysfunction (Table 2, Table 3, Table 4, Table 5, Table 6). Possible MSA can be diagnosed when one criterion and two features separate from other clinical domains are found. The diagnosis of probable MSA requires the criterion of autonomic and/or urinary dysfunction and the presence of poorly levodopa-responsive parkinsonism or cerebellar ataxia. Only pathologic findings can confirm the diagnosis of definite MSA. " In particular look at Table 2 of this paper as it outlines the diagnostic criteria for MSA. Regards, Pam questions on symptoms > Everything I read says that orthostatic hypotension is a dominant > symptom of MSA/OPCA. Is it possible to not get this symptom? My wife > ()has many of the autonomic symptoms but not this one, after two > years..Could this be a indication that she is mis-diagnosed? > > Also, I know that swallowing problems are another symptom. Are > frequent episodes of hiccups a warning of this symptom developing? > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 My husband had OH for several years now he is on 1/2 tablet of florinef a day and his blood pressure is pretty well stabilized. Winifred Card Re: questions on symptoms > dpscosmo17 > > Yes it is possible to have MSA and not have OH - about 13% of MSA > patients do not get that symptom. The OPCA form of MSA does not always > have OH as a serious problem also. My wife had that form and one > florinef a day kept her OH in line for about 10 years then we had to go > to two per day. > > What are your wife's symptoms? Where was she diagnosed? > > Take care, Bill Werre > > ============================================================ > > dpscosmo17 wrote: > > >Everything I read says that orthostatic hypotension is a dominant > >symptom of MSA/OPCA. Is it possible to not get this symptom? My wife > >()has many of the autonomic symptoms but not this one, after two > >years..Could this be a indication that she is mis-diagnosed? > > > >Also, I know that swallowing problems are another symptom. Are > >frequent episodes of hiccups a warning of this symptom developing? > > > > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 My husband had OH for several years now he is on 1/2 tablet of florinef a day and his blood pressure is pretty well stabilized. Winifred Card Re: questions on symptoms > dpscosmo17 > > Yes it is possible to have MSA and not have OH - about 13% of MSA > patients do not get that symptom. The OPCA form of MSA does not always > have OH as a serious problem also. My wife had that form and one > florinef a day kept her OH in line for about 10 years then we had to go > to two per day. > > What are your wife's symptoms? Where was she diagnosed? > > Take care, Bill Werre > > ============================================================ > > dpscosmo17 wrote: > > >Everything I read says that orthostatic hypotension is a dominant > >symptom of MSA/OPCA. Is it possible to not get this symptom? My wife > >()has many of the autonomic symptoms but not this one, after two > >years..Could this be a indication that she is mis-diagnosed? > > > >Also, I know that swallowing problems are another symptom. Are > >frequent episodes of hiccups a warning of this symptom developing? > > > > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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