Re: cea and topical retinoids and a few thoughts

[Guest guest]

Just adding my two cents: Before I was diagnosed with R, I was first

diagnosed with acne and was prescribed a topical retinoid, Vitamin A

Acid. After 8 months of use, its effects on the papulopustular

eruptions were nil, but it did contribute very negatively to the

increased sheding of skin (either from R or SD--who knows). This

followed an initial treatment of glycolic acid(which is the devil's

acid as far as I am concerned)

What strikes me most, of course, is that what one responds positively

to, another responds negatively to. Since my diagnosis with R, I have

modified my diet, I stay out of the sun, I don't expose myself to

stress, and I have begun a tetracycline treatment. To what end--no

control whatsoever. I have come to absolutely disbelieve that R is

controlable in the ways which have been hypothesized. I think we can

all sympathize with the situation in which we thought the disease was

under control, and maybe for days or even weeks, it was. Then, for NO

CHANGE of lifestyle whatsoever, rosacea springs back into life. We

are conditioned by our doctors and by our research to look for changes

that might have brought about the reemergence of R. We dissect tiny

little things: its two degrees warmer outside, I watched that

emotional movie, I ate that bread that may have contained a minute

amount of sugar, blah blah blah...

We never control rosacea, it controls us. I am still astonished by

the fact that very few treatments are prescribed with control being

promised and cure not. There are over two thousand members in this

group and I wager that not two of us have identical (or even nearly

identical) rosacea profiles. Isn't that astonishing?

Deryk

[Guest guest]

Just adding my two cents: Before I was diagnosed with R, I was first

diagnosed with acne and was prescribed a topical retinoid, Vitamin A

Acid. After 8 months of use, its effects on the papulopustular

eruptions were nil, but it did contribute very negatively to the

increased sheding of skin (either from R or SD--who knows). This

followed an initial treatment of glycolic acid(which is the devil's

acid as far as I am concerned)

What strikes me most, of course, is that what one responds positively

to, another responds negatively to. Since my diagnosis with R, I have

modified my diet, I stay out of the sun, I don't expose myself to

stress, and I have begun a tetracycline treatment. To what end--no

control whatsoever. I have come to absolutely disbelieve that R is

controlable in the ways which have been hypothesized. I think we can

all sympathize with the situation in which we thought the disease was

under control, and maybe for days or even weeks, it was. Then, for NO

CHANGE of lifestyle whatsoever, rosacea springs back into life. We

are conditioned by our doctors and by our research to look for changes

that might have brought about the reemergence of R. We dissect tiny

little things: its two degrees warmer outside, I watched that

emotional movie, I ate that bread that may have contained a minute

amount of sugar, blah blah blah...

We never control rosacea, it controls us. I am still astonished by

the fact that very few treatments are prescribed with control being

promised and cure not. There are over two thousand members in this

group and I wager that not two of us have identical (or even nearly

identical) rosacea profiles. Isn't that astonishing?

Deryk