Re: MB12 for Global Apraxia

[Guest guest]

Hi -

I have a 5 1/2 year old son who has syndrome and also severe

apraxia. I have been giving him methyl b-12 shots for a few months. Every

three nights. I numb the area and do it when he is asleep. I didn't think

I could ever do it, but it's really not that bad. I have seen some more

approximations, a little bit more progress. I also give him complete omega

3-6-9 from Nordic naturals twice a day and dmg twice a day. I have also in

the past given vitamin e and what to look into b6. I would say definitely

talk to a doctor and if he thinks you should try it definitely try. Any

more progress you can see is good. Good luck to you.

-- [ ] MB12 for Global Apraxia

Hello, My dd has a dx of global apraxia and we are considering B12

shots. I know some children on the spectrum have had great success

with it, but my dd is pretty different. Her issues are motor

planning. She is almost 3 and does not walk, crawl or have language

yet. Any feedback would be appreciated. Thanks so much. :-) tara

[Guest guest]

MB12 has helped my two boys quite a bit. They have only been on it for one

month, but already we are seeing progress. They have the global

apraxia/dyspraxia and autism and sensory processing disorder. Now they are able

to do simple puzzles and other skills requiring attention to the task and fine

motor skills. They still need a lot of work but at least now we feel they are

getting there!

Dina Weinman-Frie <dwfrie@...> wrote: Hi -

I have a 5 1/2 year old son who has syndrome and also severe

apraxia. I have been giving him methyl b-12 shots for a few months. Every

three nights. I numb the area and do it when he is asleep. I didn't think

I could ever do it, but it's really not that bad. I have seen some more

approximations, a little bit more progress. I also give him complete omega

3-6-9 from Nordic naturals twice a day and dmg twice a day. I have also in

the past given vitamin e and what to look into b6. I would say definitely

talk to a doctor and if he thinks you should try it definitely try. Any

more progress you can see is good. Good luck to you.

-- [ ] MB12 for Global Apraxia

Hello, My dd has a dx of global apraxia and we are considering B12

shots. I know some children on the spectrum have had great success

with it, but my dd is pretty different. Her issues are motor

planning. She is almost 3 and does not walk, crawl or have language

yet. Any feedback would be appreciated. Thanks so much. :-) tara

[Guest guest]

Supposed to be good stuff. If it were me I'd address allergens first to

determine why she is not getting b12 to the right areas. B12 concerns

me too in that too much and the attempt to excrete it by a compromised

kid may damage kidneys thouhg I think the shots may remove that issue.

You have to ask an expert about that part.

Kathy, monica;s mom, has a similar daughter on here and she is

improving, Maybe she can help.

>

> Hello, My dd has a dx of global apraxia and we are considering B12

> shots. I know some children on the spectrum have had great success

> with it, but my dd is pretty different. Her issues are motor

> planning. She is almost 3 and does not walk, crawl or have language

> yet. Any feedback would be appreciated. Thanks so much. :-) tara

>

[Guest guest]

Hi Tara,

This is not about MB12 shots but I just wanted to add....

You may know this already but in case you don't.....

This is Therapy stuff.... not biomed stuff so please excuse me for intervening

in the subject..... It is intended to add to your biomed not replace....

If your daughter is not crawling, she should spend as much time as possible on

the floor laying on her belly. As she is three, she may not like this but it is

the best possible thing you can do for her development. You want to give her as

many oppoturnities for crawling as possible. This means 'always' on the floor

unless you two are cuddling together, eating or sleeping. (Some people build

crawling tracks for their children to actually sleep in to promote sleep

movement..... but that is a little daunting )

When she wants a toy, put it out in front of her and encourage her to grab for

it. When she can do this put it a little further away and encourage her desire

to move. If she gets frustrated too much, edge it a little closer to her (we

don't want to torture her but we do want to get her moving).

You also may want to think about doing a little patterning with her to encourage

her body to learn the movements of a crawl. Another thing that some people do

is to build a ramp or a slide to utilize the force of gravity to get the child

mobile. Thus the child actually begins the forwad momentum process by sliding

down as a crawl rather than propelling forward on the floor (which she may be

finding very difficult). Do not prop her up into a sitting position unless she

is eating. Otherwise let her find her sitting position on her own and work her

body.

This is essential.... we need to get your daughter moving so that her central

nervous system can begin to get wired up.

I have a book recommendation for you that I have listed on this board many, many

times but I think that you specifically would truly benefit from it.

It is called, " What to do about Your Brain-Injured Child " by Glen Doman and it

is a wonderful book and will teach you the basic steps of development and what

your daughter needs to learn, why it is important and how it affects

development. This book is a little historical and you do need to wade through a

bit of history but it does put it all into perspective to give you a complete

understanding of the body and brain connection, the senses, etc.

Good Luck Tara....

Janice

[ ] MB12 for Global Apraxia

Hello, My dd has a dx of global apraxia and we are considering B12

shots. I know some children on the spectrum have had great success

with it, but my dd is pretty different. Her issues are motor

planning. She is almost 3 and does not walk, crawl or have language

yet. Any feedback would be appreciated. Thanks so much. :-) tara

[Guest guest]

DITTO DITTO DITTO - Janices message - Oh, Please get the Glenn Doman

book asap. And, have you looked into NACD? I personally have little

faith in traditional therapy - sorry - what they are doing really

seemed pointless and stale. Whats most concerning is by 3 she should

be much further along even with global apraxia dx. Could this really

be something more? Have you done an MRI? Other diagnostics?

Keep us posted.

>

> Hello, My dd has a dx of global apraxia and we are considering B12

> shots. I know some children on the spectrum have had great success

> with it, but my dd is pretty different. Her issues are motor

> planning. She is almost 3 and does not walk, crawl or have language

> yet. Any feedback would be appreciated. Thanks so much. :-) tara

>

[Guest guest]

Dana... just curious... I just started Mb12 with my son. The first

time, he took a huge dump first thing in the morning. I thought,

hmmm, interesting possibly a coincidence. But, the second I did in

the am... within an hour - same thing. My kid leans toward

constipation. Too soon to tell, but, I'm liking it so far.

How long do you think it takes to truly notice motor skill

improvement you mentioned. I was looking for more fluidity,

complexity of speech.

Hi -

>

> I have a 5 1/2 year old son who has syndrome and also

severe

> apraxia. I have been giving him methyl b-12 shots for a few months.

Every

> three nights. I numb the area and do it when he is asleep. I didn't

think

> I could ever do it, but it's really not that bad. I have seen some

more

> approximations, a little bit more progress. I also give him

complete omega

> 3-6-9 from Nordic naturals twice a day and dmg twice a day. I have

also in

> the past given vitamin e and what to look into b6. I would say

definitely

> talk to a doctor and if he thinks you should try it definitely try.

Any

> more progress you can see is good. Good luck to you.

>

> -- [ ] MB12 for Global Apraxia

>

> Hello, My dd has a dx of global apraxia and we are considering B12

> shots. I know some children on the spectrum have had great success

> with it, but my dd is pretty different. Her issues are motor

> planning. She is almost 3 and does not walk, crawl or have language

> yet. Any feedback would be appreciated. Thanks so much. :-) tara

>

>

[Guest guest]

Janice is right. Therapy is very, very important. Biomed interventions just

help a child to better respond to therapy as in the case of my two boys.

Janice <jscott@...> wrote: Hi Tara,

This is not about MB12 shots but I just wanted to add....

You may know this already but in case you don't.....

This is Therapy stuff.... not biomed stuff so please excuse me for intervening

in the subject..... It is intended to add to your biomed not replace....

If your daughter is not crawling, she should spend as much time as possible on

the floor laying on her belly. As she is three, she may not like this but it is

the best possible thing you can do for her development. You want to give her as

many oppoturnities for crawling as possible. This means 'always' on the floor

unless you two are cuddling together, eating or sleeping. (Some people build

crawling tracks for their children to actually sleep in to promote sleep

movement..... but that is a little daunting )

When she wants a toy, put it out in front of her and encourage her to grab for

it. When she can do this put it a little further away and encourage her desire

to move. If she gets frustrated too much, edge it a little closer to her (we

don't want to torture her but we do want to get her moving).

You also may want to think about doing a little patterning with her to encourage

her body to learn the movements of a crawl. Another thing that some people do is

to build a ramp or a slide to utilize the force of gravity to get the child

mobile. Thus the child actually begins the forwad momentum process by sliding

down as a crawl rather than propelling forward on the floor (which she may be

finding very difficult). Do not prop her up into a sitting position unless she

is eating. Otherwise let her find her sitting position on her own and work her

body.

This is essential.... we need to get your daughter moving so that her central

nervous system can begin to get wired up.

I have a book recommendation for you that I have listed on this board many, many

times but I think that you specifically would truly benefit from it.

It is called, " What to do about Your Brain-Injured Child " by Glen Doman and it

is a wonderful book and will teach you the basic steps of development and what

your daughter needs to learn, why it is important and how it affects

development. This book is a little historical and you do need to wade through a

bit of history but it does put it all into perspective to give you a complete

understanding of the body and brain connection, the senses, etc.

Good Luck Tara....

Janice

[ ] MB12 for Global Apraxia

Hello, My dd has a dx of global apraxia and we are considering B12

shots. I know some children on the spectrum have had great success

with it, but my dd is pretty different. Her issues are motor

planning. She is almost 3 and does not walk, crawl or have language

yet. Any feedback would be appreciated. Thanks so much. :-) tara

[Guest guest]

Can someone please explain the theory behind these shots. I get there

is a cycle and something interrupts it. I thought we had it beat but

I now wonder. How would you know and are the shots unending?

-- In , " " <renee@...> wrote:

>

> Dana... just curious... I just started Mb12 with my son. The first

> time, he took a huge dump first thing in the morning. I thought,

> hmmm, interesting possibly a coincidence. But, the second I did in

> the am... within an hour - same thing. My kid leans toward

> constipation. Too soon to tell, but, I'm liking it so far.

>

> How long do you think it takes to truly notice motor skill

> improvement you mentioned. I was looking for more fluidity,

> complexity of speech.

>

>

[Guest guest]

My boys are still not talking but I am hearing more complex babbling from them

than I have ever heard. But what I have really noticed early on is that they

are able to focus more on working on fine motor skill type activities. One of

my sons could not even grasp the large peg puzzle pieces without throwing them

(unintentionally). Now he can pick them up and work at placing them where they

belong in the puzzle. He is also learning to stack his large legos that he

would just drop or unintentionally throw. So, this is huge for us to finally be

making this kind of progress. I saw this kind of progress with both boys within

the first two weeks. It has been one month and we continue to see progress.

We will be beginning NACD in the next couple of months (hoping to be evaluated

in February) and expect to start seeing even greater things!

Dana

<renee@...> wrote:

Dana... just curious... I just started Mb12 with my son. The first

time, he took a huge dump first thing in the morning. I thought,

hmmm, interesting possibly a coincidence. But, the second I did in

the am... within an hour - same thing. My kid leans toward

constipation. Too soon to tell, but, I'm liking it so far.

How long do you think it takes to truly notice motor skill

improvement you mentioned. I was looking for more fluidity,

complexity of speech.

Hi -

>

> I have a 5 1/2 year old son who has syndrome and also

severe

> apraxia. I have been giving him methyl b-12 shots for a few months.

Every

> three nights. I numb the area and do it when he is asleep. I didn't

think

> I could ever do it, but it's really not that bad. I have seen some

more

> approximations, a little bit more progress. I also give him

complete omega

> 3-6-9 from Nordic naturals twice a day and dmg twice a day. I have

also in

> the past given vitamin e and what to look into b6. I would say

definitely

> talk to a doctor and if he thinks you should try it definitely try.

Any

> more progress you can see is good. Good luck to you.

>

> -- [ ] MB12 for Global Apraxia

>

> Hello, My dd has a dx of global apraxia and we are considering B12

> shots. I know some children on the spectrum have had great success

> with it, but my dd is pretty different. Her issues are motor

> planning. She is almost 3 and does not walk, crawl or have language

> yet. Any feedback would be appreciated. Thanks so much. :-) tara

>

>

[Guest guest]

HI Janice, Thanks for your response. We actuallu started NACD right around

Christmas. And I know your success with Mark, so I understand where you are

coming from. In fact, my husband read your post and is going to make a ramp

this weekend! Great idea. We know NACD is great for her, with the B12, we were

just looking for ways to support her neurology even more. We are also starting

The listening program soon (through NACD).

:-) tara

---------------------------------

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[Guest guest]

Hi , Thanks for your response. Yes, we are doing NACD...just started and I

will look into the book you and Janice suggested. On another note, I know that

for me, personally, when I focus on things like where my dd " should " be....I get

crazy. (like she is almost 3 and " should " be doing xyz...) She is where she is

and just like there is a spectrum for autism, there is one for Global Apraxia

and she is definitely on it...she has " motor planning disorder " written all over

her. Anyway, just trying to maintain peace while still searching out every

option for her and trying not to leave any stone unturned... :-) tara

---------------------------------

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[Guest guest]

I spoke to my OT about progression. Motor skills are supposed to

improve first and we saw that. What remains for us is crossing the

midline and articulation. Since articulation is a motor planning

thing I imagine nailing these two simulataneously or the midline

first will take us far.

I believe you are on the right path. Good luck and tell us what

happens!

Hi -

> >

> > I have a 5 1/2 year old son who has syndrome and also

> severe

> > apraxia. I have been giving him methyl b-12 shots for a few

months.

> Every

> > three nights. I numb the area and do it when he is asleep. I

didn't

> think

> > I could ever do it, but it's really not that bad. I have seen

some

> more

> > approximations, a little bit more progress. I also give him

> complete omega

> > 3-6-9 from Nordic naturals twice a day and dmg twice a day. I

have

> also in

> > the past given vitamin e and what to look into b6. I would say

> definitely

> > talk to a doctor and if he thinks you should try it definitely

try.

> Any

> > more progress you can see is good. Good luck to you.

> >

> > -- [ ] MB12 for Global Apraxia

> >

> > Hello, My dd has a dx of global apraxia and we are considering

B12

> > shots. I know some children on the spectrum have had great

success

> > with it, but my dd is pretty different. Her issues are motor

> > planning. She is almost 3 and does not walk, crawl or have

language

> > yet. Any feedback would be appreciated. Thanks so much. :-) tara

> >

> >

[Guest guest]

Is your daughter in any sort of physical therapy to get her moving?

My son also has Global Apraxia, but doesn't have the extreme issues that

your daughter has with not crawling and walking, etc.

But he is already taking 2x of formal Physical Therapy, 2x of formal

Occupational Therapy, and at least 3 formal sessions of Speech

All of the above is IN ADDITION to our working with him here at home.

Almost every toy for Christmas was a therapy device. LOL

But my point is-- she desperately needs to be in PT and OT in order to get

her body working properly.

Is she in any of these already?

Becky

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