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Re: Digest Number 1826

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Dear ,

I am writing in response to you ordeal in the ER. There is absolutely no

excuse for what happened to you. As a former nurse and a MSA patient, I

don't know how you stood up to the lack of care not given to you. It puts

a very bad name on nursing. I am almost glad that I am not able to

practice now since

I have been ill. It made me cry to see how badly you were treated.

Please report the lack of care in writing to the hospital and to you

physician. In fact you could even send them the e-mal that you sent the

shydrager group. You are so right that we all need some to advocate for us

when we are unable to do so for ourselves.

Please take care.

Anne F. Amoroso

cq10

my dr. advised trying 600, but i would like to hear/have more info first.

nancy spires

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Dear ,

I am writing in response to you ordeal in the ER. There is absolutely no

excuse for what happened to you. As a former nurse and a MSA patient, I

don't know how you stood up to the lack of care not given to you. It puts

a very bad name on nursing. I am almost glad that I am not able to

practice now since

I have been ill. It made me cry to see how badly you were treated.

Please report the lack of care in writing to the hospital and to you

physician. In fact you could even send them the e-mal that you sent the

shydrager group. You are so right that we all need some to advocate for us

when we are unable to do so for ourselves.

Please take care.

Anne F. Amoroso

cq10

my dr. advised trying 600, but i would like to hear/have more info first.

nancy spires

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Dear Vera,

I just laugh at the thought of Fred trying to run away from home in his

wheelchair, I just bet that there are many days when you wish that you

coulld do the

same thing. Perhaps that is what you should tell Fred the next time that he

threatens to do so. Suggest that he stay and you go. I am so sorry that

Fred fell again and got hurt again. This disease truly is a tragedy to all

of us who suffer from it and those who have to take care of us.

Try to keep that sense of humor it goes a long way on the road of life.

Anne F. Amoroso

cq10

my dr. advised trying 600, but i would like to hear/have more info first.

nancy spires

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Dear Vera,

I just laugh at the thought of Fred trying to run away from home in his

wheelchair, I just bet that there are many days when you wish that you

coulld do the

same thing. Perhaps that is what you should tell Fred the next time that he

threatens to do so. Suggest that he stay and you go. I am so sorry that

Fred fell again and got hurt again. This disease truly is a tragedy to all

of us who suffer from it and those who have to take care of us.

Try to keep that sense of humor it goes a long way on the road of life.

Anne F. Amoroso

cq10

my dr. advised trying 600, but i would like to hear/have more info first.

nancy spires

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Hi Anne:

What can I say, I don't think he knew where he would go, but he plan to

leave. First thing he couldn't go to his mother's on the w/c the charge is

for only 24 miles and she lives 60 miles.

He may of went up to the stores by us, but last time he went up there , he

went into the hallmark store and knocked a display over, so I'm sure they

would put up a we're close sign . My guess he would of gone around the block

and came back in 10 or 15 minutes. Just enough time to think about things and

make me worry.

Fred was doing good with using his electric w/c for the first few days that

he got hurt and has the black eye, but now that his feeling alittle better,

his trying to use his walker again. I can see where it won't be long till

something happens again and he said he isn't using the w/c because he can't

get around easy, or into his room. So I've taken my bed down and put his

hospital bed into the large room, now he has no reason why he can't use his

w/c.

You keep yourself safe also, it's a stressful thing for the caregiver , when

we see our love ones get hurt.

TakeCare Vera

Dear Vera,

I just laugh at the thought of Fred trying to run away from home in his

wheelchair, I just bet that there are many days when you wish that you

coulld do the

same thing. Perhaps that is what you should tell Fred the next time that he

threatens to do so. Suggest that he stay and you go. I am so sorry that

Fred fell again and got hurt again. This disease truly is a tragedy to all

of us who suffer from it and those who have to take care of us.

Try to keep that sense of humor it goes a long way on the road of life.

Anne F. Amoroso

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Hi Anne:

What can I say, I don't think he knew where he would go, but he plan to

leave. First thing he couldn't go to his mother's on the w/c the charge is

for only 24 miles and she lives 60 miles.

He may of went up to the stores by us, but last time he went up there , he

went into the hallmark store and knocked a display over, so I'm sure they

would put up a we're close sign . My guess he would of gone around the block

and came back in 10 or 15 minutes. Just enough time to think about things and

make me worry.

Fred was doing good with using his electric w/c for the first few days that

he got hurt and has the black eye, but now that his feeling alittle better,

his trying to use his walker again. I can see where it won't be long till

something happens again and he said he isn't using the w/c because he can't

get around easy, or into his room. So I've taken my bed down and put his

hospital bed into the large room, now he has no reason why he can't use his

w/c.

You keep yourself safe also, it's a stressful thing for the caregiver , when

we see our love ones get hurt.

TakeCare Vera

Dear Vera,

I just laugh at the thought of Fred trying to run away from home in his

wheelchair, I just bet that there are many days when you wish that you

coulld do the

same thing. Perhaps that is what you should tell Fred the next time that he

threatens to do so. Suggest that he stay and you go. I am so sorry that

Fred fell again and got hurt again. This disease truly is a tragedy to all

of us who suffer from it and those who have to take care of us.

Try to keep that sense of humor it goes a long way on the road of life.

Anne F. Amoroso

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