Re: Hemifacial spasm > Ginger

[Guest guest]

Ginger:

Sounds like you feel the way I do when Fred falls. They really can be

stubborn, but I think that Fred will now use his electric w/c all the time.

He told me that his sick of falling and hurting himself. Believe me , I am

to.

I think we all miss the pictures and the colors that we use to use here.

Black ink is ok, but I love color. )

Takecare

Vera

**********

Vera,

Sorry to hear about Fred's fall. I remember when Pete was stubborn about the

wheelchair (which he is now using all the time). The falls are really scary.

I know when Pete would fall, I would feel so guilty, as if I had not done

something that I should have. I was almost really relived when he wasn't

using

the walker any more. He can still stand if I hold him or transfer him. He can

still using the walker, for exercise, but only with a gait belt. Of course, I

shouldn't have felt guilty because I couldn't and didn't want to control his

desire to continue to be all that he could for as long as he could. Hang in

there.

PS I miss your rose

[Guest guest]

Ginger:

Sounds like you feel the way I do when Fred falls. They really can be

stubborn, but I think that Fred will now use his electric w/c all the time.

He told me that his sick of falling and hurting himself. Believe me , I am

to.

I think we all miss the pictures and the colors that we use to use here.

Black ink is ok, but I love color. )

Takecare

Vera

**********

Vera,

Sorry to hear about Fred's fall. I remember when Pete was stubborn about the

wheelchair (which he is now using all the time). The falls are really scary.

I know when Pete would fall, I would feel so guilty, as if I had not done

something that I should have. I was almost really relived when he wasn't

using

the walker any more. He can still stand if I hold him or transfer him. He can

still using the walker, for exercise, but only with a gait belt. Of course, I

shouldn't have felt guilty because I couldn't and didn't want to control his

desire to continue to be all that he could for as long as he could. Hang in

there.

PS I miss your rose

[Guest guest]

Dear and Vera: When Bob falls and gets into an odd position where I

can't get him up even with the Hoyer Lift and I know he is not injured,

sometimes I have hold of him when he falls, you know I've grabbed him when he

tries to get out of the wheelchair and he falls gently, I just call the

Dispatcher at the Fire Department and they send an engine with a few strong

men and get him up. If I feel it is an Emergency I call 911. Sometimes he

just falls in odd positions - like kitty corner in the hall. This sickness

has called on resources I never knew existed in myself or in my Town.

Pat from Framingham MA

[Guest guest]

Dear and Vera: When Bob falls and gets into an odd position where I

can't get him up even with the Hoyer Lift and I know he is not injured,

sometimes I have hold of him when he falls, you know I've grabbed him when he

tries to get out of the wheelchair and he falls gently, I just call the

Dispatcher at the Fire Department and they send an engine with a few strong

men and get him up. If I feel it is an Emergency I call 911. Sometimes he

just falls in odd positions - like kitty corner in the hall. This sickness

has called on resources I never knew existed in myself or in my Town.

Pat from Framingham MA

[Guest guest]

Hi Pat:

Your right to try to grab them before they fall , so they don't hit so hard.

Most of the time I do it, but sometimes these guys are just fast. My son in

law tells us Fred is a bull in a china shop.

Takecare Vera

***************

Dear and Vera: When Bob falls and gets into an odd position where I

can't get him up even with the Hoyer Lift and I know he is not injured,

sometimes I have hold of him when he falls, you know I've grabbed him when he

tries to get out of the wheelchair and he falls gently, I just call the

Dispatcher at the Fire Department and they send an engine with a few strong

men and get him up. If I feel it is an Emergency I call 911. Sometimes he

just falls in odd positions - like kitty corner in the hall. This sickness

has called on resources I never knew existed in myself or in my Town.

Pat from Framingham MA

[Guest guest]

Hi Pat:

Your right to try to grab them before they fall , so they don't hit so hard.

Most of the time I do it, but sometimes these guys are just fast. My son in

law tells us Fred is a bull in a china shop.

Takecare Vera

***************

Dear and Vera: When Bob falls and gets into an odd position where I

can't get him up even with the Hoyer Lift and I know he is not injured,

sometimes I have hold of him when he falls, you know I've grabbed him when he

tries to get out of the wheelchair and he falls gently, I just call the

Dispatcher at the Fire Department and they send an engine with a few strong

men and get him up. If I feel it is an Emergency I call 911. Sometimes he

just falls in odd positions - like kitty corner in the hall. This sickness

has called on resources I never knew existed in myself or in my Town.

Pat from Framingham MA

[Guest guest]

Vera,

I'm sorry Fred is falling so often. One thing I learned after I had put

Warren in nursing home was that I could have called 911 and asked them to

send fireman, not a real emergency but that I couldn't get my husband,

whoever, up after a fall and they would come and help. Just a thought as if

Fred is like my Warren even in wheel chair still trys to stand and falls,

even in the NH. Can't remember that he can't do it.

Hope Fred's face heals quickly. I will have to look up Hemifacial spasm as

I haven't seen it yet on Warren but as fast as he's going might any time, so

I'll recognize whats happening.

S.

Hemifacial spasm > Ginger

> Hi Ginger:

> No! an address isn't an attachment. Thanks for the web link. I found a

> picture of an Hemifacial spasm at

> http://www.neurosurgery.ufl.edu/FacultyPage/TicBrochure.html that looks

like

> what Fred's does.

> His poor face really looks like a mess today. He fell yesterday and hit

his

> head. Has a lump on the left side over the eye the size of an egg, the eye

is

> black and blue and he has two long marks from the eye down to the chin

from

> his glasses. Then the Hemifacial spasm is on the right side, looks like he

> could of been a boxer today. I think we're to the w/c only part of MSA

now.

> Way to many falls anymore. I can't keep trying to get up 240 lbs on my own

as

> many times as I have been lately. Just not mighty mo anymore.

>

> Hope things are better your way

>

> Takecare Vera

>

>

>

>

> Is sending an address an attachment?

>

> www.asoprs.org/blepharospasm.html

>

> Anyway that's where a picture is.

>

> Ginger

>

>

>

>

>

>

[Guest guest]

Vera,

I'm sorry Fred is falling so often. One thing I learned after I had put

Warren in nursing home was that I could have called 911 and asked them to

send fireman, not a real emergency but that I couldn't get my husband,

whoever, up after a fall and they would come and help. Just a thought as if

Fred is like my Warren even in wheel chair still trys to stand and falls,

even in the NH. Can't remember that he can't do it.

Hope Fred's face heals quickly. I will have to look up Hemifacial spasm as

I haven't seen it yet on Warren but as fast as he's going might any time, so

I'll recognize whats happening.

S.

Hemifacial spasm > Ginger

> Hi Ginger:

> No! an address isn't an attachment. Thanks for the web link. I found a

> picture of an Hemifacial spasm at

> http://www.neurosurgery.ufl.edu/FacultyPage/TicBrochure.html that looks

like

> what Fred's does.

> His poor face really looks like a mess today. He fell yesterday and hit

his

> head. Has a lump on the left side over the eye the size of an egg, the eye

is

> black and blue and he has two long marks from the eye down to the chin

from

> his glasses. Then the Hemifacial spasm is on the right side, looks like he

> could of been a boxer today. I think we're to the w/c only part of MSA

now.

> Way to many falls anymore. I can't keep trying to get up 240 lbs on my own

as

> many times as I have been lately. Just not mighty mo anymore.

>

> Hope things are better your way

>

> Takecare Vera

>

>

>

>

> Is sending an address an attachment?

>

> www.asoprs.org/blepharospasm.html

>

> Anyway that's where a picture is.

>

> Ginger

>

>

>

>

>

>