Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi Marcel, Your story sounds almost exactly like my husband's Al - Low BP, swaying, possible ataxia, constant falling due to low BP which isn't helped with any medication you Dad is presently on. Slight tremor in the hands, slow at eating his meals, changing hands to write properly (my husband did this with his cutlery while eating) inability to drive a car or to use a walking stick. Find out why he's on the catheter - prostrate problems or is it bladder problems which is a part of this disease. His age ? could be against him for any treatment but there is always a possability to make life a little easier for him Using a wheeled walker you'll find that your father will walk much better once he adjusts to it. No doubt he'll even try to toss it aside thinking he can walk without it - that's what my husband did, until he found he could barely stand up by himself without it. Tell your mother " not to worry Mum we will do all the driving for you " - that way you'll be able to keep her off the road!. She's just being a loving wife and mother - the burden will get heavier on you all, but by pooling together you'll manage. You are very blessed that you have family who can help your Dad in their line of work, and yes they will be able to help him in the future. No you are not exaggerating by naming all the symptoms there really are too many in MSA. Many people don't even know anything about this disease and only those who care really show any interest in learning about it. Same old story if its not affecting you personally, then you naturally aren't interested. However it appears now that many people are often misdiagnosed (like my husband) as having PD, which is slow in comparison to MSA. We believe in miracles and know that it will happen. Aussie Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi Marcel, Your story sounds almost exactly like my husband's Al - Low BP, swaying, possible ataxia, constant falling due to low BP which isn't helped with any medication you Dad is presently on. Slight tremor in the hands, slow at eating his meals, changing hands to write properly (my husband did this with his cutlery while eating) inability to drive a car or to use a walking stick. Find out why he's on the catheter - prostrate problems or is it bladder problems which is a part of this disease. His age ? could be against him for any treatment but there is always a possability to make life a little easier for him Using a wheeled walker you'll find that your father will walk much better once he adjusts to it. No doubt he'll even try to toss it aside thinking he can walk without it - that's what my husband did, until he found he could barely stand up by himself without it. Tell your mother " not to worry Mum we will do all the driving for you " - that way you'll be able to keep her off the road!. She's just being a loving wife and mother - the burden will get heavier on you all, but by pooling together you'll manage. You are very blessed that you have family who can help your Dad in their line of work, and yes they will be able to help him in the future. No you are not exaggerating by naming all the symptoms there really are too many in MSA. Many people don't even know anything about this disease and only those who care really show any interest in learning about it. Same old story if its not affecting you personally, then you naturally aren't interested. However it appears now that many people are often misdiagnosed (like my husband) as having PD, which is slow in comparison to MSA. We believe in miracles and know that it will happen. Aussie Ann Quote Link to comment Share on other sites More sharing options...
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