Re: question about adenoids ?

February 16, 2008

We had a followup with the ENT about a month ago - and the quote

was " good, nothing has grown back " after scoping the nose and looking

down the throat. If they have grown back - maybe there is another

technique they could use this time so they would be less likely to

grow back again. In our case I would have them removed, because we

have obstructive apnea issues...but that is just my son.

>

> Hi everyone,

>

> In april of 2007 had his tonsils and adenoids removed. Now my son

seems to be having the same types of illnesses that called for the

removal of them in the first place. So far pediatrician has not found

a cause for these illnesses to be occuring again. A lot of upper

espiratory stuff going on again. Everything has been ruled out by

tons of tests 9all results normal). Now pediatrician seems to think

that his adenoids might of grew back.

>

> We were warned they could grow back by the ENT ( who was awesome

and came highly recommended) who removed them due to the fact that

they use a new surgical technique to remove them. If my memory serves

me right it was that they no longer cauterize them. (don't quote me

on this as i honestly can not remember the reason why they might

grow back, my mind was on the surgery and not on everything i was

being told at the time.) Now that this particular ENT has had

patients who have had them grow back and have to back and remove them

again. The day my son had his out there was agirl who was having here

removed again for this reason. Her surgery was done at another

hospital by a different doctor i was told.) Even my pediatrician told

me that he has had patients who have had them grow back and had to

have them removed again.

>

> My question is this :

>

> Is it really possible that his adenoids grew back? Has anyone

else had an experience of them growing back after removal?

>

> We have an appointment on Feb 20 with the ENT to see if they grew

back.

>

> I am seriously worried and thinking about this a lot. I am

thinking about maybe not having them removed again if they have grown

back. After all my son who is 9 now went through the ringer during

the recovery process. His dyspraxia really was a bad struggle for us

due not only was my son in pain but he could not communicate it very

well. I had a very hard time to understand his needs and wants due to

his speech not being very clear plus his going around whispering

everything he said cause his throat was hurting.

>

> What are the cons to not having them removed again? If they grew

back once, could just keep growing back over and over ( the reason i

am thinking about not removing them again).

>

> Thank you to everyone who chooses to respond in advance.

>

> Jeanne mom to 9 (verbal and oral dyspraxia,hypotonia and

sid)

> NH

>

February 16, 2008

Hi Jeanne -

Not sure what the answer is to your questions but, yeesh, I hope not! Josh

(also verbal/oral apraxia, hypotonia, and sensory integration dysfunction, and

some cognitive delays) is having his tonsils out in March. The ENT decided not

to take his adenoids but the ped and the SLP are saying he should go ahead and

take them - ENT said it is not worth it and might actually negatively effect the

speech, while the other two said it would open that much more space in the

throat and might help speech. My concern was sleep issues but ENT (also very

highly respected) said the tonsils alone could help with that and will,

hopefully, end Josh's drooling. But, yikes, if the adenoids grow back?? And,

it really worries me what you wrote about how your son handled the recovery -

Josh is also 9, almost 10, and I've been so concerned about his ability to

communicate his pain and everything. Please tell me that he was OK after a

bit???

Sherry and Josh

Jeanne <jamie199866@...> wrote:

Hi everyone,

In april of 2007 had his tonsils and adenoids removed. Now my son seems to be

having the same types of illnesses that called for the removal of them in the

first place. So far pediatrician has not found a cause for these illnesses to be

occuring again. A lot of upper espiratory stuff going on again. Everything has

been ruled out by tons of tests 9all results normal). Now pediatrician seems to

think that his adenoids might of grew back.

We were warned they could grow back by the ENT ( who was awesome and came highly

recommended) who removed them due to the fact that they use a new surgical

technique to remove them. If my memory serves me right it was that they no

longer cauterize them. (don't quote me on this as i honestly can not remember

the reason why they might grow back, my mind was on the surgery and not on

everything i was being told at the time.) Now that this particular ENT has had

patients who have had them grow back and have to back and remove them again. The

day my son had his out there was agirl who was having here removed again for

this reason. Her surgery was done at another hospital by a different doctor i

was told.) Even my pediatrician told me that he has had patients who have had

them grow back and had to have them removed again.

My question is this :

Is it really possible that his adenoids grew back? Has anyone else had an

experience of them growing back after removal?

We have an appointment on Feb 20 with the ENT to see if they grew back.

I am seriously worried and thinking about this a lot. I am thinking about maybe

not having them removed again if they have grown back. After all my son who is 9

now went through the ringer during the recovery process. His dyspraxia really

was a bad struggle for us due not only was my son in pain but he could not

communicate it very well. I had a very hard time to understand his needs and

wants due to his speech not being very clear plus his going around whispering

everything he said cause his throat was hurting.

What are the cons to not having them removed again? If they grew back once,

could just keep growing back over and over ( the reason i am thinking about not

removing them again).

Thank you to everyone who chooses to respond in advance.

Jeanne mom to 9 (verbal and oral dyspraxia,hypotonia and sid)

NH

February 18, 2008

Hi Sherry,

Thank you for your response. I did not meant to get you worried about the

surgery your Josh will be having soon. I hope everything goes well for him. I

also wish him the speediest recovery. Well to answer your question. Yes

is doing good now. Except for this really bizarre speel with being sick this

winter. The surgery went relatively well for him there were no complications

with that part of things and no problems with the anestesia either (since he has

severe asthma). I chose a type of anesthesia that would be ok with his asthma i

can not tell you the type just that i asked a lot of questions on the anesthia

part and regarding his asthma and they reassured me that they would watch him

closely. I was with when he was wheeled out of surgery within a period of

like 10 minutes after they brought him out. I was able to be with when he came

to from the anesthesia and I was even allowed to bring my mom into the recovery

room to be with us the whole time also.

(which I was surprised about). So that went well for us. s recovery was

rough due to the fact that he had a hard time communicating his needs and wants

but that was due to his speech not the surgery and the fact that he chose to

whisper instesd of talk hoarse to me. Yes he had a very sore throat too. Plus

the tylenol with codeine he had for pain also contributed to the having a hard

time to understand him. He weighed about 45 lbs at the time and the medicine

made him really dopey almost like a rag doll. I had to carry him everywhere to

due to the fact he could not stand up without falling over and he refused to

walk. But that is just my jamie for ya. We had no blleeding or other

complications though. It just took longer for him to recover from the surgery

than usual.That was due to the fact that his tonsils were badly infected and

were covered in infection. The reason for them being removed not due to a

history of sore throats just possible sleep apnea, severe

snoring and a history of lots of respiratory stuff. After the surgery all of

that disappeared . Up until a few months ago when jamie started to snore bad

again, and started with the respiratory stuff again

All the respiratory stuff is located in the throat again. This past Dec he had

an ammonia that he missed two whole weeks of school with and then also all

christmas vacation too. Now that is gone. The reason that they think it might be

that adenoids grew back is all the respiratory stuuf going on is once again in

the throat. But keep in mind it is not definate that they grew back yet. Won't

know until this Wednesday.

As far as removing Joshs adenoids it is really a debate, Due to the fact that

one doctor is saying take them out nad the other one is saying leave them alone.

Well from my experienc I was told the same thing with the adenoids My ped told

me to leave them in and the ent told me to take them out. But my ped also told

me that is was my decision and he would support my decison. We know what my

decision was. But in s case the ent thought the tonsils was making my child

very sick and the tonsils had to go. It might improve his health and it may do

nothing but woth a try to make jamie better. The adenoids were a different

story. They the ent though were very large and looked like they were blocking

s airway and causing the snoring and possibly slleep apnea due to he was

always having the croup that required middle of the night visits to the er and

neb albuterol never worked. He has been on oral prednisone since anewborn off

and on.

I hope this puts some of your fears to ease . I know the woory about the

surgery is overwhelming. I was on pins and needles right up until woke up

in the recovery room. It was a huge relief to me. The worst part for me was the

waiting during the surgery.

sherry silvern <srsilvern@...> wrote:

Hi Jeanne -

Not sure what the answer is to your questions but, yeesh, I hope not! Josh (also

verbal/oral apraxia, hypotonia, and sensory integration dysfunction, and some

cognitive delays) is having his tonsils out in March. The ENT decided not to

take his adenoids but the ped and the SLP are saying he should go ahead and take

them - ENT said it is not worth it and might actually negatively effect the

speech, while the other two said it would open that much more space in the

throat and might help speech. My concern was sleep issues but ENT (also very

highly respected) said the tonsils alone could help with that and will,

hopefully, end Josh's drooling. But, yikes, if the adenoids grow back?? And, it

really worries me what you wrote about how your son handled the recovery - Josh

is also 9, almost 10, and I've been so concerned about his ability to