Great plains lab

[Guest guest]

Deb:

I've seen the great plains lab booth at a couple of conferences. At the

autsim society conference they put a " health professional " ribbon on my

name tag and I felt like a target for a couple of groups--they were one. I

wound up being put off because they would *not* let me leave without taking

advertising....I was more interested in stuff for Andy.....including a

tape, which I never listened to. But I am always skeptical of people who

tell me that Mayo Clinic cannot replicate their lab studies. It *has* to be

replicatable somewhere.....

Anyway.

If I were in your shoes, I'd be completely overwhelmed. And as I look at

it, here is what I would recommend....more out of a need for some sort of

" plan " and sanity. I'd implement a gluten-free diet first. Take 3 months or

so and see how 's symptoms related to celiac disease are doing. (A

biopsy is a pretty firm diagnosis!). You may see some very nice results.

If you see enough positive change, I'd sit on the rest of it and focus on

learning and enjoying each other.

If you don't see positive changes, then take another look at the great

plains lab work and see if there's a way to corroborate the evidence that

is not costly.

And all the while, keep a good list of what foods is liking and

disliking. It may change!

Good luck. You have all my sympathy!!

j

At 07:56 PM 10/13/01 -0000, you wrote:

>Hi guys,

>

>Still struggling along. is still very sick, keeping a fever.

>CT scan on Monday, Gyn Oncologist in NYC on Thurs. She may have a

>touch of pneumonia...may be more.

>

>Has anyone used the Great Plains Lab? 's Celiac was dx with a

>biopsy. We sent a blood test away to Great Plains Lab to see if

>there were any additional items he may be allergic to and it came

>back that he is allergic to beef, chicken, pork, eggs-whites and

>yolk, peas, peanuts, almonds, soybean, cow's milk, and of course

>gluten. Just about the only protein left is beans and fish...he is

>not allergic to lobster, shrimp, scallops, clams, oysters,

>swordfish..oh! and he can eat turkey! Of course, we eat lobster

>twice a week anyway....NOT! ;-)

>

>I wish someone would wake me from this nightmare! Any ideas on

>breakfast items that contain protein that would fit this new diet? I

>get grosssed out thinking about eating beans or fish for breakfast.

>Anyone ever heard of " leaky gut? " Anyone know anything about Great

>Plains Lab? I keep waiting for " APRIL FOOLS! " or " YOU'RE ON CANDID

>CAMERA! "

>

>Deb, mom to , 13, DS,ADHD,Celiac,etc.etc.etc. and

> mom to , 19, my Angel

>

>

>

>

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[Guest guest]

oops!

It's brian who's got celiac! ACKACKACK. Sorry!

I would still go with the gluten free diet first. Then maybe add the

cassein restriction if he is still having gas and stuff. What are his

current symptoms?

Keep track of his current symptoms so you can be objective looking for

changes. Typically, those who believe in the leaky gut theory go for the

gluten and cassein free diet anyway......rarely do you hear the other.

Doesn't mean it may not be necessary, but maybe if you just begin with the

one more " standard " diet you can go forward from there?

j

[Guest guest]

Well, I've heard of leaky gut.....and they have fish for breakfast in Bermuda!

I've had leaky gut explained as the gut lining is too porous and the protein of

the gluten and casein can go through it into the blood stream.

As to what to have for Breakfast, I have no idea.......I feel for you.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

[Guest guest]

HI Deb,

My prayers go out to you during your children's health issues .

Wishing your prayers will be answered . I will not be of much help in

this area but please know my prayers are with you . Take care.

Irma, 13,DS/ASD.

P.S. Just a few sites to share if you had not run across them , as

I've been doing SOME reading on this whenever I get a chance .

http://www.isn.net/~jypsy/diet.htm

http://trainland.tripod.com/sensory.htm (under Dietary Information )

http://members.aol.com/autismndi/PAGES/breakfast.htm

http://www.sonic.net/~melissak/leakygut.html

http://www.gfcherbs.com/leaky_gut.htm

> Hi guys,

>

> Still struggling along. is still very sick, keeping a

fever.

> CT scan on Monday, Gyn Oncologist in NYC on Thurs. She may have a

> touch of pneumonia...may be more.

>

> Has anyone used the Great Plains Lab? 's Celiac was dx with a

> biopsy. We sent a blood test away to Great Plains Lab to see if

> there were any additional items he may be allergic to and it came

> back that he is allergic to beef, chicken, pork, eggs-whites and

> yolk, peas, peanuts, almonds, soybean, cow's milk, and of course

> gluten. Just about the only protein left is beans and fish...he is

> not allergic to lobster, shrimp, scallops, clams, oysters,

> swordfish..oh! and he can eat turkey! Of course, we eat lobster

> twice a week anyway....NOT! ;-)

>

> I wish someone would wake me from this nightmare! Any ideas on

> breakfast items that contain protein that would fit this new diet?

I

> get grosssed out thinking about eating beans or fish for

breakfast.

> Anyone ever heard of " leaky gut? " Anyone know anything about Great

> Plains Lab? I keep waiting for " APRIL FOOLS! " or " YOU'RE ON CANDID

> CAMERA! "

>

> Deb, mom to , 13, DS,ADHD,Celiac,etc.etc.etc. and

> mom to , 19, my Angel

[Guest guest]

Oops , speedy fingers goofed again , I had added an a before . Just

for reading . Ok luck .

> http://www.sonic.net/~melissk/leakygut.html

Irma

[Guest guest]

Hi,

I hope that 's fever goes down. I hope that

y'll find out what's wrong with her and treating her

soon, so she'll feel better. I hope that all will be

going good.

__________________________________________________

[Guest guest]

In a message dated 10/13/01 1:07:57 PM Pacific Daylight Time,

skrapido@... writes:

<< I wish someone would wake me from this nightmare! Any ideas on

breakfast items that contain protein that would fit this new diet? I

get grosssed out thinking about eating beans or fish for breakfast.

Anyone ever heard of " leaky gut? " Anyone know anything about Great

Plains Lab? I keep waiting for " APRIL FOOLS! " or " YOU'RE ON CANDID

CAMERA! "

Deb, mom to , 13, DS,ADHD,Celiac,etc.etc.etc. and

mom to , 19, my Angel

>>

Hi Deb,

Prayers for , and the family. Gosh, can't help with the food stuff,

but can offer prayers that you can deal with all of it. How is doing?

Gail :-)

[Guest guest]

In a message dated 10/13/01 4:07:31 PM Eastern Daylight Time,

skrapido@... writes:

> ? I keep waiting for " APRIL FOOLS! " or " YOU'RE ON CANDID

> CAMERA! "

>

>

Gosh Deb!!!! I'm afraid I don't have any suggestions for you. Just wanted

to let you know I'm thinking of you and praying too!! {{{{hugs}}}}

Donna

[Guest guest]

Has anyone on here used these tests and if so how did you geta dr to approve

them? thanks

GracieAnn Mama to :

* born 6 weeks early 2/3/99 Healthy

* born 3 weeks early 9/13/01 Turned blue after birth, was placed in

issolett for 5 days ,

developed jaundice at 6 hours of life, was Hospitilized at 16 months old with a

milk protein allergy/

reaction, at age 3 stopped breathing had what Dr's thought were seizures, had an

MRI which

revealed an Arnold chiari malformation of 26mm, No csf flow, Brainstem

compression, He

underwent brain surgery just days after his 4th b-day, They removed part of his

skull and parts of

C1 and C2, Has asthma, Severe GERD, FTT, Severe DD, Low O2 sats, Ng tube,

Multiple food allergies

Low resting heartrate, Mitochondrial disorder undiagnosed,

www.caringbridge.org/visit/aaronczup

*Haley born 2 weeks early 3/25/03 healthy

* my angel born on 8/27/04 with HLHS earned his wings 8/28/04

[Guest guest]

Gracie,

I call my ped. and they pretty much give me what I want. He is pretty

openminded. I am infact calling him tomorrow to get the Great Plains Labs

test done. If you call Great Plains Labs they will refer you to a local doc

who will order them for you.

Thanks,

Colleen

[ ] Great plains lab

Has anyone on here used these tests and if so how did you geta dr to approve

them? thanks

GracieAnn Mama to :

* born 6 weeks early 2/3/99 Healthy

* born 3 weeks early 9/13/01 Turned blue after birth, was placed in

issolett for 5 days ,

developed jaundice at 6 hours of life, was Hospitilized at 16 months old

with a milk protein allergy/

reaction, at age 3 stopped breathing had what Dr's thought were seizures,

had an MRI which

revealed an Arnold chiari malformation of 26mm, No csf flow, Brainstem

compression, He

underwent brain surgery just days after his 4th b-day, They removed part of

his skull and parts of

C1 and C2, Has asthma, Severe GERD, FTT, Severe DD, Low O2 sats, Ng tube,

Multiple food allergies

Low resting heartrate, Mitochondrial disorder undiagnosed,

www.caringbridge.org/visit/aaronczup

*Haley born 2 weeks early 3/25/03 healthy

* my angel born on 8/27/04 with HLHS earned his wings 8/28/04

[Guest guest]

No help here -- we see a DAN doctor, and he ordered the labs for us.

I think it's important to have a doctor guide you in what labs to get

and how to interpret the results. We received a copy of the results,

and they are more detailed than any lab results we have previously

seen.

in NJ

>

> Has anyone on here used these tests and if so how did you geta dr

to approve them? thanks

>

>

> GracieAnn Mama to :

> * born 6 weeks early 2/3/99 Healthy

> * born 3 weeks early 9/13/01 Turned blue after birth, was

placed in issolett for 5 days ,

> developed jaundice at 6 hours of life, was Hospitilized at 16

months old with a milk protein allergy/

> reaction, at age 3 stopped breathing had what Dr's thought were

seizures, had an MRI which

> revealed an Arnold chiari malformation of 26mm, No csf flow,

Brainstem compression, He

> underwent brain surgery just days after his 4th b-day, They removed

part of his skull and parts of

> C1 and C2, Has asthma, Severe GERD, FTT, Severe DD, Low O2 sats, Ng

tube, Multiple food allergies

> Low resting heartrate, Mitochondrial disorder undiagnosed,

www.caringbridge.org/visit/aaronczup

> *Haley born 2 weeks early 3/25/03 healthy

> * my angel born on 8/27/04 with HLHS earned his wings 8/28/04

>

>

[Guest guest]

Thank you Colleen,

I am going to a metabolic dr in the morning with as his tests have come

back abnormal but I think I am going to try to use this lab as they seem like

they are more " thorough " in the results.

thanks a bunch

Gracie

RE: [ ] Great plains lab

Gracie,

I call my ped. and they pretty much give me what I want. He is pretty

openminded. I am infact calling him tomorrow to get the Great Plains Labs

test done. If you call Great Plains Labs they will refer you to a local doc

who will order them for you.

Thanks,

Colleen

[Guest guest]

We use them privately through our DAN doctor. We have an HMO so

insurance is not an option.

Hetal in CA

>

> Has anyone on here used these tests and if so how did you geta dr

to approve them? thanks

>

>

> GracieAnn Mama to :

> * born 6 weeks early 2/3/99 Healthy

> * born 3 weeks early 9/13/01 Turned blue after birth, was

placed in issolett for 5 days ,

> developed jaundice at 6 hours of life, was Hospitilized at 16

months old with a milk protein allergy/

> reaction, at age 3 stopped breathing had what Dr's thought were

seizures, had an MRI which

> revealed an Arnold chiari malformation of 26mm, No csf flow,

Brainstem compression, He

> underwent brain surgery just days after his 4th b-day, They

removed part of his skull and parts of

> C1 and C2, Has asthma, Severe GERD, FTT, Severe DD, Low O2 sats,

Ng tube, Multiple food allergies

> Low resting heartrate, Mitochondrial disorder undiagnosed,

www.caringbridge.org/visit/aaronczup

> *Haley born 2 weeks early 3/25/03 healthy

> * my angel born on 8/27/04 with HLHS earned his wings 8/28/04

>

>