Re: URGENT!!! Need expieriences to inform doctors>Anne (NL)

[Guest guest]

Timo,

Raising the head of the bed will probably help Anne's high BP. It

sounds as if she is experiencing orthostation hypotension which is a MSA

symptom. You mention " underfilled " - could that be dehydrated?

Dehydration is often a problem with MSA patients also and giving them

more liquids can help.

Take care, Bill Werre

timo_anne wrote:

>Hello friends,

>

>it appeared that my Anne did not had an epileptical attack, but a

>light haemnorrhage (bleeding in the head), due to high bloodpressure.

>Did anyone else had this experience and what meds were given to

>prevent this. Also, can it occur again? Doctors say it cannot because

>they know now her bloodvalues.

>On saturday before, Anne had huge headache, high heartrate and high

>bloodpressure. I informed the nurse about that, but now action was

>taken except for writing it down. What could have caused this

>bloodpressure rise? In the I.C. it showed that she was " underfilled " ,

>and lots of fluid were given. Does not seem to be in line with the

>high BP.

>

>Further Anne's stomach drain is in again, because her bowels are

>filled up again. On X-ray no solid feces to be seen. The drain is now

>retaining a black fluid what seems to come out of her bowels.

>Anyone experience with this specific problem and also with

>boweltreatment in general?

>

>Thanks in advance.

>Timo

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Timo,

Raising the head of the bed will probably help Anne's high BP. It

sounds as if she is experiencing orthostation hypotension which is a MSA

symptom. You mention " underfilled " - could that be dehydrated?

Dehydration is often a problem with MSA patients also and giving them

more liquids can help.

Take care, Bill Werre

timo_anne wrote:

>Hello friends,

>

>it appeared that my Anne did not had an epileptical attack, but a

>light haemnorrhage (bleeding in the head), due to high bloodpressure.

>Did anyone else had this experience and what meds were given to

>prevent this. Also, can it occur again? Doctors say it cannot because

>they know now her bloodvalues.

>On saturday before, Anne had huge headache, high heartrate and high

>bloodpressure. I informed the nurse about that, but now action was

>taken except for writing it down. What could have caused this

>bloodpressure rise? In the I.C. it showed that she was " underfilled " ,

>and lots of fluid were given. Does not seem to be in line with the

>high BP.

>

>Further Anne's stomach drain is in again, because her bowels are

>filled up again. On X-ray no solid feces to be seen. The drain is now

>retaining a black fluid what seems to come out of her bowels.

>Anyone experience with this specific problem and also with

>boweltreatment in general?

>

>Thanks in advance.

>Timo

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Timo,

I think the confusion about Anne's blood pressure is because the medical

people do not understand that she has autonomic problems. Giving fluids to

a person with a normal autonomic system would not cause a problem. Because

Anne has autonomic failure, the combination of giving large amounts of

fluids and laying her flat (I am guessing this is what they did) made her

blood pressure rise to dangerous levels.

The way to reduce her blood pressure in this situation is to raise the head

of the bed in what is called a " Trendelenberg " maneuver. This means that

the head is raised but the patient stills lies flat on the bed. Like if you

put bricks under the head of the bed, not just raising the head of the

patient, as in a hospital bed. This is necessary because of the way the

baroflex receptors work.

My suggestion is that you put a sign over her bed in the hospital that says

she should never be laid flat, and that the head of the bed must always be

raised at least 10 degrees. Also, I'm not sure if she is still getting her

florinef and midodrine, but if she is not able to get out of bed those

medications should probably be reduced or discontinued.

Timo, you and Anne are both in our prayers. I hope she feels better soon.

Carol & Rob

Lexington, MA

URGENT!!! Need expieriences to inform doctors>Anne (NL)

> Hello friends,

>

> it appeared that my Anne did not had an epileptical attack, but a

> light haemnorrhage (bleeding in the head), due to high bloodpressure.

> Did anyone else had this experience and what meds were given to

> prevent this. Also, can it occur again? Doctors say it cannot because

> they know now her bloodvalues.

> On saturday before, Anne had huge headache, high heartrate and high

> bloodpressure. I informed the nurse about that, but now action was

> taken except for writing it down. What could have caused this

> bloodpressure rise? In the I.C. it showed that she was " underfilled " ,

> and lots of fluid were given. Does not seem to be in line with the

> high BP.

>

> Further Anne's stomach drain is in again, because her bowels are

> filled up again. On X-ray no solid feces to be seen. The drain is now

> retaining a black fluid what seems to come out of her bowels.

> Anyone experience with this specific problem and also with

> boweltreatment in general?

>

> Thanks in advance.

> Timo

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Timo,

I think the confusion about Anne's blood pressure is because the medical

people do not understand that she has autonomic problems. Giving fluids to

a person with a normal autonomic system would not cause a problem. Because

Anne has autonomic failure, the combination of giving large amounts of

fluids and laying her flat (I am guessing this is what they did) made her

blood pressure rise to dangerous levels.

The way to reduce her blood pressure in this situation is to raise the head

of the bed in what is called a " Trendelenberg " maneuver. This means that

the head is raised but the patient stills lies flat on the bed. Like if you

put bricks under the head of the bed, not just raising the head of the

patient, as in a hospital bed. This is necessary because of the way the

baroflex receptors work.

My suggestion is that you put a sign over her bed in the hospital that says

she should never be laid flat, and that the head of the bed must always be

raised at least 10 degrees. Also, I'm not sure if she is still getting her

florinef and midodrine, but if she is not able to get out of bed those

medications should probably be reduced or discontinued.

Timo, you and Anne are both in our prayers. I hope she feels better soon.

Carol & Rob

Lexington, MA

URGENT!!! Need expieriences to inform doctors>Anne (NL)

> Hello friends,

>

> it appeared that my Anne did not had an epileptical attack, but a

> light haemnorrhage (bleeding in the head), due to high bloodpressure.

> Did anyone else had this experience and what meds were given to

> prevent this. Also, can it occur again? Doctors say it cannot because

> they know now her bloodvalues.

> On saturday before, Anne had huge headache, high heartrate and high

> bloodpressure. I informed the nurse about that, but now action was

> taken except for writing it down. What could have caused this

> bloodpressure rise? In the I.C. it showed that she was " underfilled " ,

> and lots of fluid were given. Does not seem to be in line with the

> high BP.

>

> Further Anne's stomach drain is in again, because her bowels are

> filled up again. On X-ray no solid feces to be seen. The drain is now

> retaining a black fluid what seems to come out of her bowels.

> Anyone experience with this specific problem and also with

> boweltreatment in general?

>

> Thanks in advance.

> Timo

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>