Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Lou: Sleep Apena is common with MSA. I had my husband Fred sleep test done here at the house.Made it easy for me to get him up and to the restroom at night, I wasn't sure they would do something like that at the lab. Also just wanted you to know that the patient can be very hateful and verbally hurtful. I've learned that first hand. They get over it, and most of the time say they are sorry, but it's not easy for the caregiver to get over the hurt. Takecare Vera There has been a lot of talk about cheyne-stokes. Does this seem to be common with the persons with MSA? Your descriptions match exactly the way Jerry breathed when asleep. I kept thinking he had sleep apena but figured he had enough problems without making him go through a sleep test. He was being treated for PSP and it never came up as a question on the PSP list. Brain research showed he had MSA. Also something I have not heard you mention thus far, and that is the patient being really hateful and verbally hurtful for short periods of time. Also, the patient grabbing hold of you and having to force them to let go by prying their hands loose. This was a constant question on the PSP list and two things Jerry never did. I am trying to sort out the differances. Lou cg to Jerry dec 3-5-02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Lou: Sleep Apena is common with MSA. I had my husband Fred sleep test done here at the house.Made it easy for me to get him up and to the restroom at night, I wasn't sure they would do something like that at the lab. Also just wanted you to know that the patient can be very hateful and verbally hurtful. I've learned that first hand. They get over it, and most of the time say they are sorry, but it's not easy for the caregiver to get over the hurt. Takecare Vera There has been a lot of talk about cheyne-stokes. Does this seem to be common with the persons with MSA? Your descriptions match exactly the way Jerry breathed when asleep. I kept thinking he had sleep apena but figured he had enough problems without making him go through a sleep test. He was being treated for PSP and it never came up as a question on the PSP list. Brain research showed he had MSA. Also something I have not heard you mention thus far, and that is the patient being really hateful and verbally hurtful for short periods of time. Also, the patient grabbing hold of you and having to force them to let go by prying their hands loose. This was a constant question on the PSP list and two things Jerry never did. I am trying to sort out the differances. Lou cg to Jerry dec 3-5-02 Quote Link to comment Share on other sites More sharing options...
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