Re: two bad words - and minirascal, are you out there?

[Guest guest]

what IS the resorption thing you are talking about. i have always

wondered how my teeth, which are still being pulled down and

together with bands 4.5 months post surgery, will " stay down " , i am

not sure if it has anything to do with the resorption you are

talking about.

>

> Hi all. I don't pop in much anymore now that I'm a year and a

half

> post-op. It seems the surgery didn't stop my left joint from

> getting worse. Since the outcome of my surgery hasn't been as

> postive as hoped, I haven't visted much because I don't want to

> scare others away from the surgery. My outcome isn't the norm, and

I

> still swear that my overall experience has been positive. I

remain

> hopefull that the much improved position of my teeth will help get

> my bite stabilized.

>

> So what brings me here today? I just had my one year follow up

with

> my ortho. I knew my bite had changed, but my upper and lower

bonded

> retainers are fine, and my upper removable retainer still fits

like

> a glove. That leaves the bones and the likely culprits. My teeth

> don't meet on the right anymore, so my ortho suspects I've begun

> experiencing the two words no one had yet voiced to me - condylar

> resorbtion. As he put it, the condyles can " just melt " . I knew

> about condylar resorbtion long before my visit today, largely from

> the Yahoo boards (thanks, minirascal and others! It is good to be

> prepared), so given my history of joint issues, it's always

floated

> around as an unspoken possibility in the back of my mind. Now

it's

> gone from possible to probable.

>

> I already have plans to start splint therapy (again - round 3) in

> early 2005, so even though this is the first specific mention of

> condylar resporbtion in regards to me, I was already headed down

the

> path of treatment for it. Wish me luck as I continue on this path

> that I'd hoped to have gotten off of by now! My best to all of

you.

>

> And if there are pre-opers reading this, remember, I'm NOT THE

NORM!!

>

>

> (used to be emshelby2003)

[Guest guest]

what IS the resorption thing you are talking about. i have always

wondered how my teeth, which are still being pulled down and

together with bands 4.5 months post surgery, will " stay down " , i am

not sure if it has anything to do with the resorption you are

talking about.

>

> Hi all. I don't pop in much anymore now that I'm a year and a

half

> post-op. It seems the surgery didn't stop my left joint from

> getting worse. Since the outcome of my surgery hasn't been as

> postive as hoped, I haven't visted much because I don't want to

> scare others away from the surgery. My outcome isn't the norm, and

I

> still swear that my overall experience has been positive. I

remain

> hopefull that the much improved position of my teeth will help get

> my bite stabilized.

>

> So what brings me here today? I just had my one year follow up

with

> my ortho. I knew my bite had changed, but my upper and lower

bonded

> retainers are fine, and my upper removable retainer still fits

like

> a glove. That leaves the bones and the likely culprits. My teeth

> don't meet on the right anymore, so my ortho suspects I've begun

> experiencing the two words no one had yet voiced to me - condylar

> resorbtion. As he put it, the condyles can " just melt " . I knew

> about condylar resorbtion long before my visit today, largely from

> the Yahoo boards (thanks, minirascal and others! It is good to be

> prepared), so given my history of joint issues, it's always

floated

> around as an unspoken possibility in the back of my mind. Now

it's

> gone from possible to probable.

>

> I already have plans to start splint therapy (again - round 3) in

> early 2005, so even though this is the first specific mention of

> condylar resporbtion in regards to me, I was already headed down

the

> path of treatment for it. Wish me luck as I continue on this path

> that I'd hoped to have gotten off of by now! My best to all of

you.

>

> And if there are pre-opers reading this, remember, I'm NOT THE

NORM!!

>

>

> (used to be emshelby2003)

[Guest guest]

Hi !

I still check out the board once in a while but not as often as I'd

like to with my busy work and mommy schedule. I'm sorry to hear that

your joint is still giving you trouble. I hope the splint will be

able to take the pressure off your joints and finally stabilize

things. I still wear my splint 24-7 and probably will have something

like the rest of my life to protect my new joints. Have they done

another MRI or CT to see how much the condyle(s) have deteriorated?

I really hope you won't need anymore surgery.

As for me, I've been doing really well. My joints are holding up

nicely. I'm even able to chew a soft diet now which is a huge

accomplishment for me. Unfortunately, now that my condyles have been

reconstructed, my bite doesn't line up anymore. I now have a 6 mm

open bite which has remained stable over the last 6 months. My

surgeon wants me to wait at least another year to make sure

everything remains stable before he does anymore surgery. Luckily

this next (and last! - after surgery #6 I quit!) surgery will a

relatively simple Lefort procedure. He says my bite won't ever be

quite perfect but he doesn't want to risk touching my lower jaw

again. Still, at this point, I'm still better off than I was

starting out.

Good luck with the splint therapy. I hope it works for you.

>

> Hi all. I don't pop in much anymore now that I'm a year and a

half

> post-op. It seems the surgery didn't stop my left joint from

> getting worse. Since the outcome of my surgery hasn't been as

> postive as hoped, I haven't visted much because I don't want to

> scare others away from the surgery. My outcome isn't the norm, and

I

> still swear that my overall experience has been positive. I

remain

> hopefull that the much improved position of my teeth will help get

> my bite stabilized.

>

> So what brings me here today? I just had my one year follow up

with

> my ortho. I knew my bite had changed, but my upper and lower

bonded

> retainers are fine, and my upper removable retainer still fits

like

> a glove. That leaves the bones and the likely culprits. My teeth

> don't meet on the right anymore, so my ortho suspects I've begun

> experiencing the two words no one had yet voiced to me - condylar

> resorbtion. As he put it, the condyles can " just melt " . I knew

> about condylar resorbtion long before my visit today, largely from

> the Yahoo boards (thanks, minirascal and others! It is good to be

> prepared), so given my history of joint issues, it's always

floated

> around as an unspoken possibility in the back of my mind. Now

it's

> gone from possible to probable.

>

> I already have plans to start splint therapy (again - round 3) in

> early 2005, so even though this is the first specific mention of

> condylar resporbtion in regards to me, I was already headed down

the

> path of treatment for it. Wish me luck as I continue on this path

> that I'd hoped to have gotten off of by now! My best to all of

you.

>

> And if there are pre-opers reading this, remember, I'm NOT THE

NORM!!

>

>

> (used to be emshelby2003)

[Guest guest]

Hi !

I still check out the board once in a while but not as often as I'd

like to with my busy work and mommy schedule. I'm sorry to hear that

your joint is still giving you trouble. I hope the splint will be

able to take the pressure off your joints and finally stabilize

things. I still wear my splint 24-7 and probably will have something

like the rest of my life to protect my new joints. Have they done

another MRI or CT to see how much the condyle(s) have deteriorated?

I really hope you won't need anymore surgery.

As for me, I've been doing really well. My joints are holding up

nicely. I'm even able to chew a soft diet now which is a huge

accomplishment for me. Unfortunately, now that my condyles have been

reconstructed, my bite doesn't line up anymore. I now have a 6 mm

open bite which has remained stable over the last 6 months. My

surgeon wants me to wait at least another year to make sure

everything remains stable before he does anymore surgery. Luckily

this next (and last! - after surgery #6 I quit!) surgery will a

relatively simple Lefort procedure. He says my bite won't ever be

quite perfect but he doesn't want to risk touching my lower jaw

again. Still, at this point, I'm still better off than I was

starting out.

Good luck with the splint therapy. I hope it works for you.

>

> Hi all. I don't pop in much anymore now that I'm a year and a

half

> post-op. It seems the surgery didn't stop my left joint from

> getting worse. Since the outcome of my surgery hasn't been as

> postive as hoped, I haven't visted much because I don't want to

> scare others away from the surgery. My outcome isn't the norm, and

I

> still swear that my overall experience has been positive. I

remain

> hopefull that the much improved position of my teeth will help get

> my bite stabilized.

>

> So what brings me here today? I just had my one year follow up

with

> my ortho. I knew my bite had changed, but my upper and lower

bonded

> retainers are fine, and my upper removable retainer still fits

like

> a glove. That leaves the bones and the likely culprits. My teeth

> don't meet on the right anymore, so my ortho suspects I've begun

> experiencing the two words no one had yet voiced to me - condylar

> resorbtion. As he put it, the condyles can " just melt " . I knew

> about condylar resorbtion long before my visit today, largely from

> the Yahoo boards (thanks, minirascal and others! It is good to be

> prepared), so given my history of joint issues, it's always

floated

> around as an unspoken possibility in the back of my mind. Now

it's

> gone from possible to probable.

>

> I already have plans to start splint therapy (again - round 3) in

> early 2005, so even though this is the first specific mention of

> condylar resporbtion in regards to me, I was already headed down

the

> path of treatment for it. Wish me luck as I continue on this path

> that I'd hoped to have gotten off of by now! My best to all of

you.

>

> And if there are pre-opers reading this, remember, I'm NOT THE

NORM!!

>

>

> (used to be emshelby2003)

[Guest guest]

Hey ,

Glad you're still lurking! I didn't expect my joint to magically

stop bothering me, and resorbption was one of those words sort of

floating around unspoken. Of course now, it's been spoken. I

haven't had another MRI done since my one at the end of April this

year, so the diagnosis is more like going from possible (though

unspoken possible) to probable. I don't know what the heck else it

could be since my teeth are exactly where my ortho left them but my

bite has changed such that my right side doesn't touch anymore and

my left joint has always been the evil one.

I haven't been in much contact with my OS. Our last conversation

was about the ongoing battel to get Vioxx approved by my insurance

company, which is now a moot point since the FDA yanked my miracle

drug off the market. Maybe a month before that though, I talked

with him about a disturbing chain of observations. In March when he

saw me, he said my bite seemed to be holding up well. In May when I

saw a specialist he referred me to for a second opinion, that doc

observed that I wasn't really touching on the right side. In June

or maybe July, my dentist told me I was relapsing. That got Dr.

' (OS) attention. He said he'd want to see me again having

heard that, though it wasn't urgent to set up an appointment. Well,

I don't think my dentist had the right " r " word. There is a big

difference betwen relapsing and resorbption, isn't there? I mean,

my bite may be opening back up, but that isn't necessarily

relapsing, is it?

As I type this, I'm starting to realize that I have some questions.

I guess that means it's a good thing that my ortho is going to be

contacting my OS and dentist. I may go ahead and bug my OS since

this isn't a small thing. I'm not so concerned about the dentist

since he's the one who will be doing the splint therapy, I've gone

through it with him before, and I've already got the appointment set

up.

I'm might whine about having to go through splint therapy and

possibly having to wear a splint the rest of my life, but the fact

is that I will do it if my docs tell me I need to. Four jaw related

surgeries/procedures, braces, painkillers, anti-depressents, muscle

relaxers and all the other things I've done, do and will do...heck,

a splint is cake.

Thanks for the encouragement. Glad to hear your joints are

holding! You're my hero!

> >

> > Hi all. I don't pop in much anymore now that I'm a year and a

> half

> > post-op. It seems the surgery didn't stop my left joint from

> > getting worse. Since the outcome of my surgery hasn't been as

> > postive as hoped, I haven't visted much because I don't want to

> > scare others away from the surgery. My outcome isn't the norm,

and

> I

> > still swear that my overall experience has been positive. I

> remain

> > hopefull that the much improved position of my teeth will help

get

> > my bite stabilized.

> >

> > So what brings me here today? I just had my one year follow up

> with

> > my ortho. I knew my bite had changed, but my upper and lower

> bonded

> > retainers are fine, and my upper removable retainer still fits

> like

> > a glove. That leaves the bones and the likely culprits. My

teeth

> > don't meet on the right anymore, so my ortho suspects I've begun

> > experiencing the two words no one had yet voiced to me -

condylar

> > resorbtion. As he put it, the condyles can " just melt " . I knew

> > about condylar resorbtion long before my visit today, largely

from

> > the Yahoo boards (thanks, minirascal and others! It is good to

be

> > prepared), so given my history of joint issues, it's always

> floated

> > around as an unspoken possibility in the back of my mind. Now

> it's

> > gone from possible to probable.

> >

> > I already have plans to start splint therapy (again - round 3)

in

> > early 2005, so even though this is the first specific mention

of

> > condylar resporbtion in regards to me, I was already headed down

> the

> > path of treatment for it. Wish me luck as I continue on this

path

> > that I'd hoped to have gotten off of by now! My best to all of

> you.

> >

> > And if there are pre-opers reading this, remember, I'm NOT THE

> NORM!!

> >

> >

> > (used to be emshelby2003)

[Guest guest]

Hey ,

Glad you're still lurking! I didn't expect my joint to magically

stop bothering me, and resorbption was one of those words sort of

floating around unspoken. Of course now, it's been spoken. I

haven't had another MRI done since my one at the end of April this

year, so the diagnosis is more like going from possible (though

unspoken possible) to probable. I don't know what the heck else it

could be since my teeth are exactly where my ortho left them but my

bite has changed such that my right side doesn't touch anymore and

my left joint has always been the evil one.

I haven't been in much contact with my OS. Our last conversation

was about the ongoing battel to get Vioxx approved by my insurance

company, which is now a moot point since the FDA yanked my miracle

drug off the market. Maybe a month before that though, I talked

with him about a disturbing chain of observations. In March when he

saw me, he said my bite seemed to be holding up well. In May when I

saw a specialist he referred me to for a second opinion, that doc

observed that I wasn't really touching on the right side. In June

or maybe July, my dentist told me I was relapsing. That got Dr.

' (OS) attention. He said he'd want to see me again having

heard that, though it wasn't urgent to set up an appointment. Well,

I don't think my dentist had the right " r " word. There is a big

difference betwen relapsing and resorbption, isn't there? I mean,

my bite may be opening back up, but that isn't necessarily

relapsing, is it?

As I type this, I'm starting to realize that I have some questions.

I guess that means it's a good thing that my ortho is going to be

contacting my OS and dentist. I may go ahead and bug my OS since

this isn't a small thing. I'm not so concerned about the dentist

since he's the one who will be doing the splint therapy, I've gone

through it with him before, and I've already got the appointment set

up.

I'm might whine about having to go through splint therapy and

possibly having to wear a splint the rest of my life, but the fact

is that I will do it if my docs tell me I need to. Four jaw related

surgeries/procedures, braces, painkillers, anti-depressents, muscle

relaxers and all the other things I've done, do and will do...heck,

a splint is cake.

Thanks for the encouragement. Glad to hear your joints are

holding! You're my hero!

> >

> > Hi all. I don't pop in much anymore now that I'm a year and a

> half

> > post-op. It seems the surgery didn't stop my left joint from

> > getting worse. Since the outcome of my surgery hasn't been as

> > postive as hoped, I haven't visted much because I don't want to

> > scare others away from the surgery. My outcome isn't the norm,

and

> I

> > still swear that my overall experience has been positive. I

> remain

> > hopefull that the much improved position of my teeth will help

get

> > my bite stabilized.

> >

> > So what brings me here today? I just had my one year follow up

> with

> > my ortho. I knew my bite had changed, but my upper and lower

> bonded

> > retainers are fine, and my upper removable retainer still fits

> like

> > a glove. That leaves the bones and the likely culprits. My

teeth

> > don't meet on the right anymore, so my ortho suspects I've begun

> > experiencing the two words no one had yet voiced to me -

condylar

> > resorbtion. As he put it, the condyles can " just melt " . I knew

> > about condylar resorbtion long before my visit today, largely

from

> > the Yahoo boards (thanks, minirascal and others! It is good to

be

> > prepared), so given my history of joint issues, it's always

> floated

> > around as an unspoken possibility in the back of my mind. Now

> it's

> > gone from possible to probable.

> >

> > I already have plans to start splint therapy (again - round 3)

in

> > early 2005, so even though this is the first specific mention

of

> > condylar resporbtion in regards to me, I was already headed down

> the

> > path of treatment for it. Wish me luck as I continue on this

path

> > that I'd hoped to have gotten off of by now! My best to all of

> you.

> >

> > And if there are pre-opers reading this, remember, I'm NOT THE

> NORM!!

> >

> >

> > (used to be emshelby2003)