Guest guest Posted April 14, 2003 Report Share Posted April 14, 2003 As you know I started my fast yesterday and was quite successful. Today was another story. I had jury duty so I was out of my regular routine. Also preparing my kitchen for Passover is a challenge. Fiddle de de Scarlett - tomorrow is another day. Marjie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2003 Report Share Posted April 14, 2003 As you know I started my fast yesterday and was quite successful. Today was another story. I had jury duty so I was out of my regular routine. Also preparing my kitchen for Passover is a challenge. Fiddle de de Scarlett - tomorrow is another day. Marjie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 This is an awesome group and one that seems to have answers to anything you possibly could want to know. Whether you join in on the conversation or just read what is written will DEFINITELY benefit you and help you gain lots of knowledge. Many of the women here inspire me! See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org (a photo look into Mito) Darla: mommy to Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomia, SID, global delays, cyclic vomiting, bladder issues, some wheelchair use, eye issues, gastric emptying issues... Zipporrah (17 months) Mito, strokes, neuro-motor planning, SID, GERD, dysphasia, G-tube fed, speech delays, extreme fatigue, aberrant subclavian artery, disautonomia, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (17)migraines, sensory issues, & some evidence of SLE's... Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4), Marquis (3) Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum, encephalomalacia & leukomalacia, G-tube, GERD, immobile, severe dev. delays, left hemiplegia (arm)... (15 months) SID, dev. delays, right hemiparesis issues... Checking In... > > > > > > > > > > > > > > > > Just wanted to say " Hi " to everyone. This is the second mito group > > > that > > > I've joined. The quick story is that I have received a preliminary > > > diagnosis (suspected anyway) of Mitochondrial Disease due to a > host > > > of > > > symptoms. Exhaustive testing will be done on March 31st at The > s > > > Hopkins Medical Center (JHMC) in Baltimore. > > > > > > Thus far, my primary physician and my primary neurologist who have > > > been > > > treating me for SLEs have never heard of MELAS or any of the > > > derivatives. It was only after sending me to JHMC that MELAS was > > > suspected. We should know for sure early in April. > > > > > > For now, I'm just going to sit back in the easy chair and read > > > through > > > the archives for additional information. What I have read so far, > the > > > symptoms have me covered like a book. I'll be around and > interested > > > in what goes on here wrt this very perplexing disease. > > > > > > Your newest member, > > > > > > Dave > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Please contact mito-owner with any problems or > questions. > > > Quote Link to comment Share on other sites More sharing options...
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