Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Janice, sounds like fate to me. Maybe this doctor will now help other children, and that help and information will be passed onto other doctors, parents, and children. You owe yourself a pat on the back. Seeing your post also reminds me that I keep meaning to look into the NACD. In fact, we have a home program through the school district, and I did mention the NACD to them. Do you know anyone whose therapists/teachers have been trained through the NACD? thanks, Carolyn **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Great, great story. Thank you so much for sharing it. A Happy New Year to You and Yours~ > > So.... > > Ready for a morning story? > > Those of you who read know our story, know that many times I have vowed to give my pediatrician who did little but offer Ritalin to Mark a smack on the side of the head should I ever run into him on the street. > > The week before Christmas, my spouse with his son, Mark, Mackenzie & I boarded for our destination to Neuvo Vallarta. On day 2, I was lying there on the beach and Mackenzie said, " Mom, I think that's Dr. Roseman on the beach next to us. " Now my children are actually second cousins with this chaps' kids so my children DO know this family via their relatives on their Dads side.... albeit quite distantly. Sure enough, she was right. The man who saw my son, 'misadvised me', and basicly did nothing was sunning himself almost directly adjacent to us! > > I went over like a polite gal and said 'hi'. We chatted for a bit and then I went about my business of 'vacationing'. Over the next week, I couldn't shake this family. Everywhere we went.... they were there! > > Finally, day 4, the good doc began to speak of Mark..... how well he appeared to be doing and what was it that I was doing for him? Well.... the floodgates lifted and I spoke in depth about NACD, how their programs were helping Mark and I spoke of the metabolic tests we had run for him, his bouts of digestive issues, intestinal permeability and the vitamin protocol we were now on. I did 'not' speak of heavy metals as I didn't want to scare the chap off but I did indicate that Mark's low glutathione levels made it very difficult for him to detoxify his body naturally. > > My ex-pediatrician had heard of none of this stuff and was astonished that I could get such testing for Mark in Edmonton. I noted to him that none of the tests were covered by our health-care system and that all had to be done through US labs. He wrote down the name of NACD, their website indicating that he simply didn't know what to do for the ASD kids.... he had no resources or help to offer them. > > I looked at my brand new copy of Dr. Jepsons book and realized that this was actually fate. I walked over to my lounger, kissed my beloved book good-bye and gave it to this pediatrician who has a gazzillion kids to see every day. > > Wonder if he will read it? > > Now, is that 'fate', 'destiny' or what? > > In the end, I felt sorry for this doctor. He is faced with the job of giving little hope to parents. His training or lack thereof does not equip him to actually help kids with neurodevelopmental disorders.... just to placate them. Part of it angers me and part of it deeply saddens me. > > But a higher power was on my side..... for this man had the opportunity to watch Mark every single day for a week! Mark was completely NT when we were in Mexico and has just now begun to regress since we have come back to the cold. > > This doctor had the opportunity to 'see' that what I was doing.... worked! > > That is my little Mexico story.... funny or what? Hopefully, Dr Jepsons' book will give my 'ex-pediatrician' the smack on the side of the head that he so profoundly needs! > > Janice > Mother of Mark, 13 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Good Gosh. Loved the story of the day! It is just wonderful that you are helping so many including doctors. Today, the ENT removed Charlie's right ear tube and was surprised at how wonderful he was doing. i.e. no ear infections, drastically improved speech...I explained and he looked at me politely and asked what doc was watching over him. I shared with him that I did keep in touch with his ped. but the DAN! and a nutritionist have him under control. When I took my 7 month old to the ped last week, I told the doc about Charlie, who did not come along on this visit, and he said sounds keep doing what you are doing. Just down right scary what could have happened with our children. Not that the docs are bad people, just doing what they are trained to do. I am at least glad to see the ped for giving probiotics to the little ones now. I am just tired of having these people look at me like I am crazy. It is great to have understanding. Thanks for Sharing. Colleen Mother of Charlie 29 months [ ] Pediatrician & I were at same resort: crosspost So.... Ready for a morning story? Those of you who read know our story, know that many times I have vowed to give my pediatrician who did little but offer Ritalin to Mark a smack on the side of the head should I ever run into him on the street. The week before Christmas, my spouse with his son, Mark, Mackenzie & I boarded for our destination to Neuvo Vallarta. On day 2, I was lying there on the beach and Mackenzie said, " Mom, I think that's Dr. Roseman on the beach next to us. " Now my children are actually second cousins with this chaps' kids so my children DO know this family via their relatives on their Dads side.... albeit quite distantly. Sure enough, she was right. The man who saw my son, 'misadvised me', and basicly did nothing was sunning himself almost directly adjacent to us! I went over like a polite gal and said 'hi'. We chatted for a bit and then I went about my business of 'vacationing'. Over the next week, I couldn't shake this family. Everywhere we went.... they were there! Finally, day 4, the good doc began to speak of Mark..... how well he appeared to be doing and what was it that I was doing for him? Well.... the floodgates lifted and I spoke in depth about NACD, how their programs were helping Mark and I spoke of the metabolic tests we had run for him, his bouts of digestive issues, intestinal permeability and the vitamin protocol we were now on. I did 'not' speak of heavy metals as I didn't want to scare the chap off but I did indicate that Mark's low glutathione levels made it very difficult for him to detoxify his body naturally. My ex-pediatrician had heard of none of this stuff and was astonished that I could get such testing for Mark in Edmonton. I noted to him that none of the tests were covered by our health-care system and that all had to be done through US labs. He wrote down the name of NACD, their website indicating that he simply didn't know what to do for the ASD kids.... he had no resources or help to offer them. I looked at my brand new copy of Dr. Jepsons book and realized that this was actually fate. I walked over to my lounger, kissed my beloved book good-bye and gave it to this pediatrician who has a gazzillion kids to see every day. Wonder if he will read it? Now, is that 'fate', 'destiny' or what? In the end, I felt sorry for this doctor. He is faced with the job of giving little hope to parents. His training or lack thereof does not equip him to actually help kids with neurodevelopmental disorders.... just to placate them. Part of it angers me and part of it deeply saddens me. But a higher power was on my side..... for this man had the opportunity to watch Mark every single day for a week! Mark was completely NT when we were in Mexico and has just now begun to regress since we have come back to the cold. This doctor had the opportunity to 'see' that what I was doing.... worked! That is my little Mexico story.... funny or what? Hopefully, Dr Jepsons' book will give my 'ex-pediatrician' the smack on the side of the head that he so profoundly needs! Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 I loved your story! If the DR has any sense - he will read the book from cover to cover and maybe even contact DR Jepson. Just think this could be the road to recovery for so many children. Your son's, your families suffering may well, help so many more. Pay it forward ~ big time! **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Around here, they would call you " a class act " . That was an elegant response to a difficult situation and will probably prove to be more effective than a slap upside the head. Although some do deserve a good pounding... in NJ > > So.... > > Ready for a morning story? > > Those of you who read know our story, know that many times I have vowed to give my pediatrician who did little but offer Ritalin to Mark a smack on the side of the head should I ever run into him on the street. > > The week before Christmas, my spouse with his son, Mark, Mackenzie & I boarded for our destination to Neuvo Vallarta. On day 2, I was lying there on the beach and Mackenzie said, " Mom, I think that's Dr. Roseman on the beach next to us. " Now my children are actually second cousins with this chaps' kids so my children DO know this family via their relatives on their Dads side.... albeit quite distantly. Sure enough, she was right. The man who saw my son, 'misadvised me', and basicly did nothing was sunning himself almost directly adjacent to us! > > I went over like a polite gal and said 'hi'. We chatted for a bit and then I went about my business of 'vacationing'. Over the next week, I couldn't shake this family. Everywhere we went.... they were there! > > Finally, day 4, the good doc began to speak of Mark..... how well he appeared to be doing and what was it that I was doing for him? Well.... the floodgates lifted and I spoke in depth about NACD, how their programs were helping Mark and I spoke of the metabolic tests we had run for him, his bouts of digestive issues, intestinal permeability and the vitamin protocol we were now on. I did 'not' speak of heavy metals as I didn't want to scare the chap off but I did indicate that Mark's low glutathione levels made it very difficult for him to detoxify his body naturally. > > My ex-pediatrician had heard of none of this stuff and was astonished that I could get such testing for Mark in Edmonton. I noted to him that none of the tests were covered by our health-care system and that all had to be done through US labs. He wrote down the name of NACD, their website indicating that he simply didn't know what to do for the ASD kids.... he had no resources or help to offer them. > > I looked at my brand new copy of Dr. Jepsons book and realized that this was actually fate. I walked over to my lounger, kissed my beloved book good-bye and gave it to this pediatrician who has a gazzillion kids to see every day. > > Wonder if he will read it? > > Now, is that 'fate', 'destiny' or what? > > In the end, I felt sorry for this doctor. He is faced with the job of giving little hope to parents. His training or lack thereof does not equip him to actually help kids with neurodevelopmental disorders.... just to placate them. Part of it angers me and part of it deeply saddens me. > > But a higher power was on my side..... for this man had the opportunity to watch Mark every single day for a week! Mark was completely NT when we were in Mexico and has just now begun to regress since we have come back to the cold. > > This doctor had the opportunity to 'see' that what I was doing.... worked! > > That is my little Mexico story.... funny or what? Hopefully, Dr Jepsons' book will give my 'ex-pediatrician' the smack on the side of the head that he so profoundly needs! > > Janice > Mother of Mark, 13 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 What I do love about the story is that he wrote the stuff down. He cares. That will go far in this. I never thought, regardless of the way we were treated, that the docs did not care. I often felt they did not know. That I could live with. The lack of curiousity I could not. > > Good Gosh. Loved the story of the day! It is just wonderful that you are > helping so many including doctors. Today, the ENT removed Charlie's right > ear tube and was surprised at how wonderful he was doing. i.e. no ear > infections, drastically improved speech...I explained and he looked at me > politely and asked what doc was watching over him. I shared with him that I > did keep in touch with his ped. but the DAN! and a nutritionist have him > under control. When I took my 7 month old to the ped last week, I told the > doc about Charlie, who did not come along on this visit, and he said sounds > keep doing what you are doing. Just down right scary what could have > happened with our children. Not that the docs are bad people, just doing > what they are trained to do. I am at least glad to see the ped for giving > probiotics to the little ones now. I am just tired of having these people > look at me like I am crazy. It is great to have understanding. > > Thanks for Sharing. > Colleen > > Mother of Charlie 29 months > > [ ] Pediatrician & I were at same resort: > crosspost > > > > So.... > > Ready for a morning story? > > Those of you who read know our story, know that many times I have vowed to > give my pediatrician who did little but offer Ritalin to Mark a smack on the > side of the head should I ever run into him on the street. > > The week before Christmas, my spouse with his son, Mark, Mackenzie & I > boarded for our destination to Neuvo Vallarta. On day 2, I was lying there > on the beach and Mackenzie said, " Mom, I think that's Dr. Roseman on the > beach next to us. " Now my children are actually second cousins with this > chaps' kids so my children DO know this family via their relatives on their > Dads side.... albeit quite distantly. Sure enough, she was right. The man > who saw my son, 'misadvised me', and basicly did nothing was sunning himself > almost directly adjacent to us! > > I went over like a polite gal and said 'hi'. We chatted for a bit and then I > went about my business of 'vacationing'. Over the next week, I couldn't > shake this family. Everywhere we went.... they were there! > > Finally, day 4, the good doc began to speak of Mark..... how well he > appeared to be doing and what was it that I was doing for him? Well.... the > floodgates lifted and I spoke in depth about NACD, how their programs were > helping Mark and I spoke of the metabolic tests we had run for him, his > bouts of digestive issues, intestinal permeability and the vitamin protocol > we were now on. I did 'not' speak of heavy metals as I didn't want to scare > the chap off but I did indicate that Mark's low glutathione levels made it > very difficult for him to detoxify his body naturally. > > My ex-pediatrician had heard of none of this stuff and was astonished that I > could get such testing for Mark in Edmonton. I noted to him that none of the > tests were covered by our health-care system and that all had to be done > through US labs. He wrote down the name of NACD, their website indicating > that he simply didn't know what to do for the ASD kids.... he had no > resources or help to offer them. > > I looked at my brand new copy of Dr. Jepsons book and realized that this was > actually fate. I walked over to my lounger, kissed my beloved book good-bye > and gave it to this pediatrician who has a gazzillion kids to see every day. > > > Wonder if he will read it? > > Now, is that 'fate', 'destiny' or what? > > In the end, I felt sorry for this doctor. He is faced with the job of giving > little hope to parents. His training or lack thereof does not equip him to > actually help kids with neurodevelopmental disorders.... just to placate > them. Part of it angers me and part of it deeply saddens me. > > But a higher power was on my side..... for this man had the opportunity to > watch Mark every single day for a week! Mark was completely NT when we were > in Mexico and has just now begun to regress since we have come back to the > cold. > > This doctor had the opportunity to 'see' that what I was doing.... worked! > > That is my little Mexico story.... funny or what? Hopefully, Dr Jepsons' > book will give my 'ex-pediatrician' the smack on the side of the head that > he so profoundly needs! > > Janice > Mother of Mark, 13 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 I keep seeing you guys refer to your kids as " NT " and can't figure out for the life of me what it means....someone please enlighten me! > > So.... > > Ready for a morning story? > > Those of you who read know our story, know that many times I have vowed to give my pediatrician who did little but offer Ritalin to Mark a smack on the side of the head should I ever run into him on the street. > > The week before Christmas, my spouse with his son, Mark, Mackenzie & I boarded for our destination to Neuvo Vallarta. On day 2, I was lying there on the beach and Mackenzie said, " Mom, I think that's Dr. Roseman on the beach next to us. " Now my children are actually second cousins with this chaps' kids so my children DO know this family via their relatives on their Dads side.... albeit quite distantly. Sure enough, she was right. The man who saw my son, 'misadvised me', and basicly did nothing was sunning himself almost directly adjacent to us! > > I went over like a polite gal and said 'hi'. We chatted for a bit and then I went about my business of 'vacationing'. Over the next week, I couldn't shake this family. Everywhere we went.... they were there! > > Finally, day 4, the good doc began to speak of Mark..... how well he appeared to be doing and what was it that I was doing for him? Well.... the floodgates lifted and I spoke in depth about NACD, how their programs were helping Mark and I spoke of the metabolic tests we had run for him, his bouts of digestive issues, intestinal permeability and the vitamin protocol we were now on. I did 'not' speak of heavy metals as I didn't want to scare the chap off but I did indicate that Mark's low glutathione levels made it very difficult for him to detoxify his body naturally. > > My ex-pediatrician had heard of none of this stuff and was astonished that I could get such testing for Mark in Edmonton. I noted to him that none of the tests were covered by our health-care system and that all had to be done through US labs. He wrote down the name of NACD, their website indicating that he simply didn't know what to do for the ASD kids.... he had no resources or help to offer them. > > I looked at my brand new copy of Dr. Jepsons book and realized that this was actually fate. I walked over to my lounger, kissed my beloved book good-bye and gave it to this pediatrician who has a gazzillion kids to see every day. > > Wonder if he will read it? > > Now, is that 'fate', 'destiny' or what? > > In the end, I felt sorry for this doctor. He is faced with the job of giving little hope to parents. His training or lack thereof does not equip him to actually help kids with neurodevelopmental disorders.... just to placate them. Part of it angers me and part of it deeply saddens me. > > But a higher power was on my side..... for this man had the opportunity to watch Mark every single day for a week! Mark was completely NT when we were in Mexico and has just now begun to regress since we have come back to the cold. > > This doctor had the opportunity to 'see' that what I was doing.... worked! > > That is my little Mexico story.... funny or what? Hopefully, Dr Jepsons' book will give my 'ex-pediatrician' the smack on the side of the head that he so profoundly needs! > > Janice > Mother of Mark, 13 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 NT = Neuro-typical > > > > So.... > > > > Ready for a morning story? > > > > Those of you who read know our story, know that many times I have > vowed to give my pediatrician who did little but offer Ritalin to > Mark a smack on the side of the head should I ever run into him on > the street. > > > > The week before Christmas, my spouse with his son, Mark, Mackenzie > & I boarded for our destination to Neuvo Vallarta. On day 2, I was > lying there on the beach and Mackenzie said, " Mom, I think that's Dr. > Roseman on the beach next to us. " Now my children are actually > second cousins with this chaps' kids so my children DO know this > family via their relatives on their Dads side.... albeit quite > distantly. Sure enough, she was right. The man who saw my > son, 'misadvised me', and basicly did nothing was sunning himself > almost directly adjacent to us! > > > > I went over like a polite gal and said 'hi'. We chatted for a bit > and then I went about my business of 'vacationing'. Over the next > week, I couldn't shake this family. Everywhere we went.... they were > there! > > > > Finally, day 4, the good doc began to speak of Mark..... how well > he appeared to be doing and what was it that I was doing for him? > Well.... the floodgates lifted and I spoke in depth about NACD, how > their programs were helping Mark and I spoke of the metabolic tests > we had run for him, his bouts of digestive issues, intestinal > permeability and the vitamin protocol we were now on. I did 'not' > speak of heavy metals as I didn't want to scare the chap off but I > did indicate that Mark's low glutathione levels made it very > difficult for him to detoxify his body naturally. > > > > My ex-pediatrician had heard of none of this stuff and was > astonished that I could get such testing for Mark in Edmonton. I > noted to him that none of the tests were covered by our health- care > system and that all had to be done through US labs. He wrote down > the name of NACD, their website indicating that he simply didn't know > what to do for the ASD kids.... he had no resources or help to offer > them. > > > > I looked at my brand new copy of Dr. Jepsons book and realized that > this was actually fate. I walked over to my lounger, kissed my > beloved book good-bye and gave it to this pediatrician who has a > gazzillion kids to see every day. > > > > Wonder if he will read it? > > > > Now, is that 'fate', 'destiny' or what? > > > > In the end, I felt sorry for this doctor. He is faced with the job > of giving little hope to parents. His training or lack thereof does > not equip him to actually help kids with neurodevelopmental > disorders.... just to placate them. Part of it angers me and part of > it deeply saddens me. > > > > But a higher power was on my side..... for this man had the > opportunity to watch Mark every single day for a week! Mark was > completely NT when we were in Mexico and has just now begun to > regress since we have come back to the cold. > > > > This doctor had the opportunity to 'see' that what I was doing.... > worked! > > > > That is my little Mexico story.... funny or what? Hopefully, Dr > Jepsons' book will give my 'ex-pediatrician' the smack on the side of > the head that he so profoundly needs! > > > > Janice > > Mother of Mark, 13 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 What exactly does neurotypical refer to though? Does that mean the person's neurological makeup is typical, meaning no problems? thanks **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 neurotypical > > > > So.... > > > > Ready for a morning story? > > > > Those of you who read know our story, know that many times I have > vowed to give my pediatrician who did little but offer Ritalin to > Mark a smack on the side of the head should I ever run into him on > the street. > > > > The week before Christmas, my spouse with his son, Mark, Mackenzie > & I boarded for our destination to Neuvo Vallarta. On day 2, I was > lying there on the beach and Mackenzie said, " Mom, I think that's Dr. > Roseman on the beach next to us. " Now my children are actually > second cousins with this chaps' kids so my children DO know this > family via their relatives on their Dads side.... albeit quite > distantly. Sure enough, she was right. The man who saw my > son, 'misadvised me', and basicly did nothing was sunning himself > almost directly adjacent to us! > > > > I went over like a polite gal and said 'hi'. We chatted for a bit > and then I went about my business of 'vacationing'. Over the next > week, I couldn't shake this family. Everywhere we went.... they were > there! > > > > Finally, day 4, the good doc began to speak of Mark..... how well > he appeared to be doing and what was it that I was doing for him? > Well.... the floodgates lifted and I spoke in depth about NACD, how > their programs were helping Mark and I spoke of the metabolic tests > we had run for him, his bouts of digestive issues, intestinal > permeability and the vitamin protocol we were now on. I did 'not' > speak of heavy metals as I didn't want to scare the chap off but I > did indicate that Mark's low glutathione levels made it very > difficult for him to detoxify his body naturally. > > > > My ex-pediatrician had heard of none of this stuff and was > astonished that I could get such testing for Mark in Edmonton. I > noted to him that none of the tests were covered by our health-care > system and that all had to be done through US labs. He wrote down > the name of NACD, their website indicating that he simply didn't know > what to do for the ASD kids.... he had no resources or help to offer > them. > > > > I looked at my brand new copy of Dr. Jepsons book and realized that > this was actually fate. I walked over to my lounger, kissed my > beloved book good-bye and gave it to this pediatrician who has a > gazzillion kids to see every day. > > > > Wonder if he will read it? > > > > Now, is that 'fate', 'destiny' or what? > > > > In the end, I felt sorry for this doctor. He is faced with the job > of giving little hope to parents. His training or lack thereof does > not equip him to actually help kids with neurodevelopmental > disorders.... just to placate them. Part of it angers me and part of > it deeply saddens me. > > > > But a higher power was on my side..... for this man had the > opportunity to watch Mark every single day for a week! Mark was > completely NT when we were in Mexico and has just now begun to > regress since we have come back to the cold. > > > > This doctor had the opportunity to 'see' that what I was doing.... > worked! > > > > That is my little Mexico story.... funny or what? Hopefully, Dr > Jepsons' book will give my 'ex-pediatrician' the smack on the side of > the head that he so profoundly needs! > > > > Janice > > Mother of Mark, 13 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 When I say it I refer to a kid who met and surpassed milestones and is age appropriate oe beyond socially, emotionally and academically. > > What exactly does neurotypical refer to though? Does that mean the person's > neurological makeup is typical, meaning no problems? thanks > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 Right, no problems. > > What exactly does neurotypical refer to though? Does that mean the person's > neurological makeup is typical, meaning no problems? thanks > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 Neurotypical or NT is used to refer to a child who is basicly without issues or a 'typical' person or kid. NDD is used to signify neurodevelopmentally delayed without specifying in what manner such as ASD or DCD or dyspraxia or SPD. It is easier sometime to say NT when comparing our children rather than saying my 'normal' child. This is insulting to our children who have issues and delays and is not considered politically correct. So we use the term NT so that everyone realizes that this is a child or person without delays.... Hope I explained this okay.... Janice [sPAM][ ] Re: Pediatrician & I were at same resort: crosspost When I say it I refer to a kid who met and surpassed milestones and is age appropriate oe beyond socially, emotionally and academically. > > What exactly does neurotypical refer to though? Does that mean the person's > neurological makeup is typical, meaning no problems? thanks > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Janice, no, my daughter definitely is not Neurotypical. We discovered after a second MRI done at age 5 that she has PVL (tiny cysts from lacking oxygen at birth). She doesn't have the physical impairments that you would see typically with CP, but has SI, severe apraxia, and auditory processing disorder. I appreciate all the information you are giving me. Carolyn **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 > > So.... > > Ready for a morning story? > > Those of you who read know our story, know that many times I have vowed to give my pediatrician who did little but offer Ritalin to Mark a smack on the side of the head should I ever run into him on the street. > > The week before Christmas, my spouse with his son, Mark, Mackenzie & I boarded for our destination to Neuvo Vallarta. On day 2, I was lying there on the beach and Mackenzie said, " Mom, I think that's Dr. Roseman on the beach next to us. " Now my children are actually second cousins with this chaps' kids so my children DO know this family via their relatives on their Dads side.... albeit quite distantly. Sure enough, she was right. The man who saw my son, 'misadvised me', and basicly did nothing was sunning himself almost directly adjacent to us! > > I went over like a polite gal and said 'hi'. We chatted for a bit and then I went about my business of 'vacationing'. Over the next week, I couldn't shake this family. Everywhere we went.... they were there! > > Finally, day 4, the good doc began to speak of Mark..... how well he appeared to be doing and what was it that I was doing for him? Well.... the floodgates lifted and I spoke in depth about NACD, how their programs were helping Mark and I spoke of the metabolic tests we had run for him, his bouts of digestive issues, intestinal permeability and the vitamin protocol we were now on. I did 'not' speak of heavy metals as I didn't want to scare the chap off but I did indicate that Mark's low glutathione levels made it very difficult for him to detoxify his body naturally. > > My ex-pediatrician had heard of none of this stuff and was astonished that I could get such testing for Mark in Edmonton. I noted to him that none of the tests were covered by our health-care system and that all had to be done through US labs. He wrote down the name of NACD, their website indicating that he simply didn't know what to do for the ASD kids.... he had no resources or help to offer them. > > I looked at my brand new copy of Dr. Jepsons book and realized that this was actually fate. I walked over to my lounger, kissed my beloved book good-bye and gave it to this pediatrician who has a gazzillion kids to see every day. > > Wonder if he will read it? > > Now, is that 'fate', 'destiny' or what? > > In the end, I felt sorry for this doctor. He is faced with the job of giving little hope to parents. His training or lack thereof does not equip him to actually help kids with neurodevelopmental disorders.... just to placate them. Part of it angers me and part of it deeply saddens me. > > But a higher power was on my side..... for this man had the opportunity to watch Mark every single day for a week! Mark was completely NT when we were in Mexico and has just now begun to regress since we have come back to the cold. > > This doctor had the opportunity to 'see' that what I was doing.... worked! > > That is my little Mexico story.... funny or what? Hopefully, Dr Jepsons' book will give my 'ex-pediatrician' the smack on the side of the head that he so profoundly needs! > > Janice > Mother of Mark, 13 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 I think this is true but I think the publishing thing is tricky and opens some DANs up to witch hunts as has been seen in the past. It is sad because so much needs to change. Docs not schooled on the differences between labels and the right therapies that apply to what lbels and to the individual kid's needs. Doctoring is no easy job and, even if there were studies that proved this docs cannot control compliance. It is a hard job for sure. I look forward to watching the positive changes and seeing your study as I believe it will get the ball rolling. > > > > So.... > > > > Ready for a morning story? > > > > Those of you who read know our story, know that many times I have > vowed to give my pediatrician who did little but offer Ritalin to > Mark a smack on the side of the head should I ever run into him on > the street. > > > > The week before Christmas, my spouse with his son, Mark, Mackenzie > & I boarded for our destination to Neuvo Vallarta. On day 2, I was > lying there on the beach and Mackenzie said, " Mom, I think that's Dr. > Roseman on the beach next to us. " Now my children are actually > second cousins with this chaps' kids so my children DO know this > family via their relatives on their Dads side.... albeit quite > distantly. Sure enough, she was right. The man who saw my > son, 'misadvised me', and basicly did nothing was sunning himself > almost directly adjacent to us! > > > > I went over like a polite gal and said 'hi'. We chatted for a bit > and then I went about my business of 'vacationing'. Over the next > week, I couldn't shake this family. Everywhere we went.... they were > there! > > > > Finally, day 4, the good doc began to speak of Mark..... how well > he appeared to be doing and what was it that I was doing for him? > Well.... the floodgates lifted and I spoke in depth about NACD, how > their programs were helping Mark and I spoke of the metabolic tests > we had run for him, his bouts of digestive issues, intestinal > permeability and the vitamin protocol we were now on. I did 'not' > speak of heavy metals as I didn't want to scare the chap off but I > did indicate that Mark's low glutathione levels made it very > difficult for him to detoxify his body naturally. > > > > My ex-pediatrician had heard of none of this stuff and was > astonished that I could get such testing for Mark in Edmonton. I > noted to him that none of the tests were covered by our health-care > system and that all had to be done through US labs. He wrote down > the name of NACD, their website indicating that he simply didn't know > what to do for the ASD kids.... he had no resources or help to offer > them. > > > > I looked at my brand new copy of Dr. Jepsons book and realized that > this was actually fate. I walked over to my lounger, kissed my > beloved book good-bye and gave it to this pediatrician who has a > gazzillion kids to see every day. > > > > Wonder if he will read it? > > > > Now, is that 'fate', 'destiny' or what? > > > > In the end, I felt sorry for this doctor. He is faced with the job > of giving little hope to parents. His training or lack thereof does > not equip him to actually help kids with neurodevelopmental > disorders.... just to placate them. Part of it angers me and part of > it deeply saddens me. > > > > But a higher power was on my side..... for this man had the > opportunity to watch Mark every single day for a week! Mark was > completely NT when we were in Mexico and has just now begun to > regress since we have come back to the cold. > > > > This doctor had the opportunity to 'see' that what I was doing.... > worked! > > > > That is my little Mexico story.... funny or what? Hopefully, Dr > Jepsons' book will give my 'ex-pediatrician' the smack on the side of > the head that he so profoundly needs! > > > > Janice > > Mother of Mark, 13 > > > > Quote Link to comment Share on other sites More sharing options...
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