Re: MSA stubborness - hatefulness

[Guest guest]

Lou,

With MSA, not everyone has the same symptoms. It is a strange disorder

and about 87% have the low BP on standing problem (orthostatic

hypotension), Sinemet helps about 40% of the people with movement

problems, BUT it requires more and more Sinemet to help them as time

goes on. With most MSA patients it is MY feeling that they should not

take more than 1000 mg of levodopa per day as more than that seems (it

talks with others on the list) to help less and less. My wife was up to

1200 mg per day and having more problems until they cut her back to half

that. She was taking about 700-800 when she died.

The stubborness of MSA seems to be quite widespread. We are not sure if

it is a side effect of some medicine or a symptom of depression. I

would talk to a doctor as I think Charlotte's problem with this was

helped by an increase in her antidepressant (Zoloft).

Lou Bartee wrote:

>There has been a lot of talk about cheyne-stokes. Does this seem to be common

with the persons with MSA? Your descriptions match exactly the way Jerry

breathed when asleep. I kept thinking he had sleep apena but figured he had

enough problems without making him go through a sleep test. He was being

treated for PSP and it never came up as a question on the PSP list. Brain

research showed he had MSA.

>

>Also something I have not heard you mention thus far, and that is the patient

being really hateful and verbally hurtful for short periods of time. Also, the

patient grabbing hold of you and having to force them to let go by prying their

hands loose. This was a constant question on the PSP list and two things Jerry

never did. I am trying to sort out the differances.

>

> Lou cg to Jerry dec 3-5-02

>

>

>

[Guest guest]

Lou,

With MSA, not everyone has the same symptoms. It is a strange disorder

and about 87% have the low BP on standing problem (orthostatic

hypotension), Sinemet helps about 40% of the people with movement

problems, BUT it requires more and more Sinemet to help them as time

goes on. With most MSA patients it is MY feeling that they should not

take more than 1000 mg of levodopa per day as more than that seems (it

talks with others on the list) to help less and less. My wife was up to

1200 mg per day and having more problems until they cut her back to half

that. She was taking about 700-800 when she died.

The stubborness of MSA seems to be quite widespread. We are not sure if

it is a side effect of some medicine or a symptom of depression. I

would talk to a doctor as I think Charlotte's problem with this was

helped by an increase in her antidepressant (Zoloft).

Lou Bartee wrote:

>There has been a lot of talk about cheyne-stokes. Does this seem to be common

with the persons with MSA? Your descriptions match exactly the way Jerry

breathed when asleep. I kept thinking he had sleep apena but figured he had

enough problems without making him go through a sleep test. He was being

treated for PSP and it never came up as a question on the PSP list. Brain

research showed he had MSA.

>

>Also something I have not heard you mention thus far, and that is the patient

being really hateful and verbally hurtful for short periods of time. Also, the

patient grabbing hold of you and having to force them to let go by prying their

hands loose. This was a constant question on the PSP list and two things Jerry

never did. I am trying to sort out the differances.

>

> Lou cg to Jerry dec 3-5-02

>

>

>