Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Dear Carmel, My name is Bernice, and my husband passed away in June of 2000. For 6 years he was diagnosed with Parkinson's disease then it was changed to PSP. After his death we donated brain tissue for research and they said the actual disease was MSA, not PSP. They are so similar and there is presently no know cause, treatment, medicine or cure for either. There are things that can treat some of the symptoms but the disease progresses inevitably to death. They will tell you that PSP has more problems with the eyes, the inability to look downward, etc. but my husband had all those and that was why he was diagnosed PSP. However, apparently, it is possible those things also exist with MSA because that is actually what he had. In the end, I found it made no difference as to his care and treatment, but it was shocking to know I had been learning about the wrong disease for so many years (PSP). It seems to be the area of the brain that is affected that makes the difference. I am sorry I have no better news, but hopes this helps answer your question. regards Bernice Bowers omabow@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Dear Carmel, My name is Bernice, and my husband passed away in June of 2000. For 6 years he was diagnosed with Parkinson's disease then it was changed to PSP. After his death we donated brain tissue for research and they said the actual disease was MSA, not PSP. They are so similar and there is presently no know cause, treatment, medicine or cure for either. There are things that can treat some of the symptoms but the disease progresses inevitably to death. They will tell you that PSP has more problems with the eyes, the inability to look downward, etc. but my husband had all those and that was why he was diagnosed PSP. However, apparently, it is possible those things also exist with MSA because that is actually what he had. In the end, I found it made no difference as to his care and treatment, but it was shocking to know I had been learning about the wrong disease for so many years (PSP). It seems to be the area of the brain that is affected that makes the difference. I am sorry I have no better news, but hopes this helps answer your question. regards Bernice Bowers omabow@... Quote Link to comment Share on other sites More sharing options...
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