Letter to Dr. Felicia Axelrod

[Guest guest]

Dear Dr. Axelrod,

President of AAS

How can the people afflicted with this awful disease thank you and your

co-workers for the marvelous type of research that you perform on a

continuous

quest to find a cure for Multiple System Atrophy?

I am a 51 year old mother of 5 grown beautiful children and have had the

pleasure of being married to my husband for 32 years. Well needless to say

the wind was taken out of our sails when I received the dreaded diagnosis

of MSA. I had been hospitalized for an unrelated condition in August of

2001 when I awoke in the I.C.U. not remembering how I got there and

not even recognizing my family and my Physicians whom I

had know for years both professionally & personally.

You see I was a nurse and had a close relationship with a lot of the

personnel at the hospital. But no longer, since I have a very poor memory

and alot of complications due to that hospitalization. I knew that

something just wasn't

right with me but to get someone to understand what

I was trying to convey was a problem. Since then my

own neurologist has had me tested for many things and I did suffer a

diffuse brain injury due to

anoxia followed by a seizure. I recently went to Boston to Mass. General

Hospital and was diagonsed with MSA and possible PSP.

I just want to thank all of the doctors who are fighting for all of us

who are afflicted with such devastating diseases. Without all of your

tireless efforts I still would be in limbo as to what is wrong with me. I

was just diagnosed a couple of months ago and am coming to grips with the

fact that my life will never be the same again and the fact that I may not

be around to see my children's children grow is often depressing. I pray

that a cure can be found that others do not have to go through the

suffering as my family has had to endure and will continue to endure.

Sincerely,

Anne F. Amoroso

Camden, Maine

[Guest guest]

Dear Dr. Axelrod,

President of AAS

How can the people afflicted with this awful disease thank you and your

co-workers for the marvelous type of research that you perform on a

continuous

quest to find a cure for Multiple System Atrophy?

I am a 51 year old mother of 5 grown beautiful children and have had the

pleasure of being married to my husband for 32 years. Well needless to say

the wind was taken out of our sails when I received the dreaded diagnosis

of MSA. I had been hospitalized for an unrelated condition in August of

2001 when I awoke in the I.C.U. not remembering how I got there and

not even recognizing my family and my Physicians whom I

had know for years both professionally & personally.

You see I was a nurse and had a close relationship with a lot of the

personnel at the hospital. But no longer, since I have a very poor memory

and alot of complications due to that hospitalization. I knew that

something just wasn't

right with me but to get someone to understand what

I was trying to convey was a problem. Since then my

own neurologist has had me tested for many things and I did suffer a

diffuse brain injury due to

anoxia followed by a seizure. I recently went to Boston to Mass. General

Hospital and was diagonsed with MSA and possible PSP.

I just want to thank all of the doctors who are fighting for all of us

who are afflicted with such devastating diseases. Without all of your

tireless efforts I still would be in limbo as to what is wrong with me. I

was just diagnosed a couple of months ago and am coming to grips with the

fact that my life will never be the same again and the fact that I may not

be around to see my children's children grow is often depressing. I pray

that a cure can be found that others do not have to go through the

suffering as my family has had to endure and will continue to endure.

Sincerely,

Anne F. Amoroso

Camden, Maine