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Cindy

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  • 10 months later...

I am sure Dr. Whiteman has checked her B levels. The sensory integration

issues are actually results from her stroke activity. It is very common for

kids post stroke to have lots of sensory problems. It can cause numbness,

tingling, and prickly sensations, amongst other issues that affect the

sensory systems.

Thanks for the suggestion though. :)

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: recently diagnosed with complex III

She rubs her hands,

feet, face, tummy, and head, as well as kicking and pounding her feet and

pleads with us to rub her hands or feet when especially bad. We are not

sure if it is numbness or tingling/prickling that especially bothers her

as

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Hi again;

They did not check Dakota's- that is why I mentioned it- and blamed the tingling, etc. on his stroke- his were extremely low....

Cindy

Re: recently diagnosed with complex III She rubs her hands, feet, face, tummy, and head, as well as kicking and pounding her feet and pleads with us to rub her hands or feet when especially bad. We are not sure if it is numbness or tingling/prickling that especially bothers her as

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