Hilary, , PMD: Lefort 1, BSSO, and Genio. Advancement for Sleep Apnea

[Guest guest]

Hi Hilary, & PMD,

I will try this reply again - we're out of town and had a severe

electrical storm this afternoon, so every time I got on the Internet

I had to unplug computer.

Thanks for the information. I never realized so many people had

these problems still I started looking at this list.

I've not had a septoplasty or UVP. But have allergies and a

deviated septum. I once asked a ENT about straightening the nose

and he said it was too severe (though visually not real

noticeable). Funny thing is I don't remember breaking my nose, but

must have as a child.

My main problem is that when I lie down I frequently can't breath

through my nose. (I believe it's more vascular than allergies, but

antihistamines do help sometimes). By morning it is completely

stuffed up with no air in or out. Therefore I ended up being a

mouth breather. Some nights are worse than others. I tried nasal

CPAP, but air would just end up out the mouth. So went to the full

face mask & tried all brands. After fighting with the air leaks

waking me up as much from that as the apnea, and tightening the mask

enough so it didn't leak & ending up with sores on the face, I

decided I had to do something else. I have ended up not using the

CPAP now. I've also noticed when I walk I end up breathing through

my mouth to get more air into my lungs as I feel like I'm not

getting enough air through the nose. So hopefully the turbinectomy

will help that.

The OS felt the palate, etc. wasn't the problem, but the narrow

airway from the retrognathic jaw was causing the problem. The OD

said they have found many adult women with sleep apnea are not

overweight and that the retrognathic jaw is more the problem. I've

been in braces (had two lower teeth pulled to speed up things) as

the OS thought that perhaps with braces we could get by with just

moving the lower jaw, but to give me enough room it looks like we'll

still have to do both jaws. One of my questions is if they do both

jaws and the turbinectomy will I be able to breath ok - if not I'll

postpone the turbinectomy. The OS did suggest all four procedures.

I have appointment Nov. 18 with assistant surgeon for the final

impressions, etc. Then physical, etc. on Nov. 30 and appt. with

primary surgeon. We live 65 miles from where surgery will be done,

so we'll just stay down there until I get out of hospital and may

spend first night at motel. Supposedly I'll be in ICU first night,

and then moved to a room if all goes ok. I should only be in

hospital two nights.

I'm trying to get a much organized ahead of time. I work part-time

as volunteer, but need to organize my replacements, etc. Sometimes

I wonder what happened to retirement!! After Chrismas some our

children & grandchildren are coming from Kansas - hopefully I'll be

recuperated enough by then. I normally recuperate fast (back to

work from cancer surgery in two weeks), but I am older now & more

health problems so I'll just have to wait & see.

Hilary, keep in touch I'd like to hear about your progress. How is

it going with the liquid diet? Are you using a syringe, cup, zip

bag? Glad to hear pills aren't a problem.

Thanks again, all for the help.

Shirley

>

> Hi Shirley

>

> I had upper and lower jaw advancement 5 days ago to treat severe

> sleep apnea (also not overweight}. I can breath well through my

nose

> and just use saline and afrin to keep it clear. However I noticed

you

> mentioned that you may have the turbonate reduction at the same

time

> as your jaw surgery, is that what your Dr recommended. I had that

2

> years ago with UVP, somnoplasty and septoplasty. My nose was

plugged

> up completely, maybe that was because of the septoplasty? Check to

> see if they will plug up your nose, if they will I would suggest

not

> doing the 2 together as it is hard to breath through your mouth

when

> you are banded shut.

>

> I can already get pills though my teeth as I didnt like the liquid

> meds and it has only been 5 days. There is no pain opening your

jaw,

> not as much as you would think, so dont worry about that it is

just

> the effort of opening against the bands.

>

> I lie a little on my side, but try to stay on my back propped up.

>

> I wont know if this has worked for my sleep apnea for a while. I

sure

> hope it does as I too tried CPAP and suffered many sleepless

nights

> with ill fitting face masks! I Cant bear to go back to that.

>

> Let me know if you have any more questions, it is good to chat to

> someone in the same boat.

>

> Hilary

[Guest guest]

Hi Hilary, & PMD,

I will try this reply again - we're out of town and had a severe

electrical storm this afternoon, so every time I got on the Internet

I had to unplug computer.

Thanks for the information. I never realized so many people had

these problems still I started looking at this list.

I've not had a septoplasty or UVP. But have allergies and a

deviated septum. I once asked a ENT about straightening the nose

and he said it was too severe (though visually not real

noticeable). Funny thing is I don't remember breaking my nose, but

must have as a child.

My main problem is that when I lie down I frequently can't breath

through my nose. (I believe it's more vascular than allergies, but

antihistamines do help sometimes). By morning it is completely

stuffed up with no air in or out. Therefore I ended up being a

mouth breather. Some nights are worse than others. I tried nasal

CPAP, but air would just end up out the mouth. So went to the full

face mask & tried all brands. After fighting with the air leaks

waking me up as much from that as the apnea, and tightening the mask

enough so it didn't leak & ending up with sores on the face, I

decided I had to do something else. I have ended up not using the

CPAP now. I've also noticed when I walk I end up breathing through

my mouth to get more air into my lungs as I feel like I'm not

getting enough air through the nose. So hopefully the turbinectomy

will help that.

The OS felt the palate, etc. wasn't the problem, but the narrow

airway from the retrognathic jaw was causing the problem. The OD

said they have found many adult women with sleep apnea are not

overweight and that the retrognathic jaw is more the problem. I've

been in braces (had two lower teeth pulled to speed up things) as

the OS thought that perhaps with braces we could get by with just

moving the lower jaw, but to give me enough room it looks like we'll

still have to do both jaws. One of my questions is if they do both

jaws and the turbinectomy will I be able to breath ok - if not I'll

postpone the turbinectomy. The OS did suggest all four procedures.

I have appointment Nov. 18 with assistant surgeon for the final

impressions, etc. Then physical, etc. on Nov. 30 and appt. with

primary surgeon. We live 65 miles from where surgery will be done,

so we'll just stay down there until I get out of hospital and may

spend first night at motel. Supposedly I'll be in ICU first night,

and then moved to a room if all goes ok. I should only be in

hospital two nights.

I'm trying to get a much organized ahead of time. I work part-time

as volunteer, but need to organize my replacements, etc. Sometimes

I wonder what happened to retirement!! After Chrismas some our

children & grandchildren are coming from Kansas - hopefully I'll be

recuperated enough by then. I normally recuperate fast (back to

work from cancer surgery in two weeks), but I am older now & more

health problems so I'll just have to wait & see.

Hilary, keep in touch I'd like to hear about your progress. How is

it going with the liquid diet? Are you using a syringe, cup, zip

bag? Glad to hear pills aren't a problem.

Thanks again, all for the help.

Shirley

>

> Hi Shirley

>

> I had upper and lower jaw advancement 5 days ago to treat severe

> sleep apnea (also not overweight}. I can breath well through my

nose

> and just use saline and afrin to keep it clear. However I noticed

you

> mentioned that you may have the turbonate reduction at the same

time

> as your jaw surgery, is that what your Dr recommended. I had that

2

> years ago with UVP, somnoplasty and septoplasty. My nose was

plugged

> up completely, maybe that was because of the septoplasty? Check to

> see if they will plug up your nose, if they will I would suggest

not

> doing the 2 together as it is hard to breath through your mouth

when

> you are banded shut.

>

> I can already get pills though my teeth as I didnt like the liquid

> meds and it has only been 5 days. There is no pain opening your

jaw,

> not as much as you would think, so dont worry about that it is

just

> the effort of opening against the bands.

>

> I lie a little on my side, but try to stay on my back propped up.

>

> I wont know if this has worked for my sleep apnea for a while. I

sure

> hope it does as I too tried CPAP and suffered many sleepless

nights

> with ill fitting face masks! I Cant bear to go back to that.

>

> Let me know if you have any more questions, it is good to chat to

> someone in the same boat.

>

> Hilary