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Re: Hello & Happy Autumn

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Connie, be sure your surgeon knows all this, and that your

anesthesiologist does, too, and that whatever you need is written in

your chart. That's important!

Particularly talk with him about the anxiety about breathing and

your prior experiences with this. Is there a chance a hypnotist or

other therapist could teach you some relaxation exercises to help

ease your worries?

You won't suffocate. Nobody has, that i know of, anyhow, and I've

been on these boards since about 2001. You probably will have some

congestion and stuffiness. The same lay recommendations apply --

steam, vaporizer, pseudafed, Afrin, nasal saline or whatever your doc

recommends. (That thought doesn't help a lot when you feel yourself

struggling to breathe, though. You will be helped, I think, if you

can make your mind tell your body that it's ok, not to panic, just to

relax and concentrate on the breathing.)

I have fibromyalgia, but not lupus, thank heavens. I didn't find that

it played a role in this surgery. The surgery may actually help your

insomnia and anxiety patterns, especially if apnea is playing any

role in causing them.

As for dry mouth, are you familiar with Biotene products? There are

mouthwash, toothpaste, gels, gum and other modes of delivery. Many

people find them helpful. There is also a drug you may know already --

Salagen -- that is sometimes prescribed for dry mouth in other

contexts.

And I can't tell you about your specific ailments, but I do know that

the body can have amazing ways to handle its stresses. I have a

friend who had serious trouble with Parkinson's. In the face of some

essential, and very difficult, treatment of a life-threatening

problem, the Parkinson's retreated during the treatment and recovery,

as the docs had told us it might.

Best,

Cammie

>

>

> Dear Group,

> Thank you for the honesty and support this groups generates.

> I am Connie, scheduled for upper jaw, palatal expansion and lower

jaw

> surgery Oct 26 at Kaiser Oakland facility.

> I have several chronic autoimmune illnesses that will probably

complicate

> this already complex surgery. I have done my research and have my

meds in

> liquid form that I require daily and a pill crusher for any others

that I

> need to ingest.

> Does anyone have Lupus or Fibromyalgia? I also suffer from

Sjorgrens

> Syndrome -- dry mouth predominantly. My question is did your

chronic

> illness escalate prior to your surgery. Autumn has always been the

roughest

> season for me -- and it seems like each day is one more mini

emergency with

> my body.

> Anxiety. Yes. Insomina. Yes. TMJ returning with a vengeance.

Yes.

> But I know from having prior surgeries, my main fear is not being

able to

> breathe. I had Thoracic Outlet Surgery 20 years ago and awoke with

a chest

> tube in and feeling like I was suffocating... and it is my worst

fear and

> nightmare.

> I do have myo-fascial release therapy at least once a week and have

felt it

> does more for my general health and well-being than any thing else

I've

> tried.

> I've been 3 years on this path and I know this journey is almost

finished.

>

> Thank you for listening and I wish everyone the best with their

surgeries

> and recoveries.

> Regards,

>

> Connie J

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Connie, be sure your surgeon knows all this, and that your

anesthesiologist does, too, and that whatever you need is written in

your chart. That's important!

Particularly talk with him about the anxiety about breathing and

your prior experiences with this. Is there a chance a hypnotist or

other therapist could teach you some relaxation exercises to help

ease your worries?

You won't suffocate. Nobody has, that i know of, anyhow, and I've

been on these boards since about 2001. You probably will have some

congestion and stuffiness. The same lay recommendations apply --

steam, vaporizer, pseudafed, Afrin, nasal saline or whatever your doc

recommends. (That thought doesn't help a lot when you feel yourself

struggling to breathe, though. You will be helped, I think, if you

can make your mind tell your body that it's ok, not to panic, just to

relax and concentrate on the breathing.)

I have fibromyalgia, but not lupus, thank heavens. I didn't find that

it played a role in this surgery. The surgery may actually help your

insomnia and anxiety patterns, especially if apnea is playing any

role in causing them.

As for dry mouth, are you familiar with Biotene products? There are

mouthwash, toothpaste, gels, gum and other modes of delivery. Many

people find them helpful. There is also a drug you may know already --

Salagen -- that is sometimes prescribed for dry mouth in other

contexts.

And I can't tell you about your specific ailments, but I do know that

the body can have amazing ways to handle its stresses. I have a

friend who had serious trouble with Parkinson's. In the face of some

essential, and very difficult, treatment of a life-threatening

problem, the Parkinson's retreated during the treatment and recovery,

as the docs had told us it might.

Best,

Cammie

>

>

> Dear Group,

> Thank you for the honesty and support this groups generates.

> I am Connie, scheduled for upper jaw, palatal expansion and lower

jaw

> surgery Oct 26 at Kaiser Oakland facility.

> I have several chronic autoimmune illnesses that will probably

complicate

> this already complex surgery. I have done my research and have my

meds in

> liquid form that I require daily and a pill crusher for any others

that I

> need to ingest.

> Does anyone have Lupus or Fibromyalgia? I also suffer from

Sjorgrens

> Syndrome -- dry mouth predominantly. My question is did your

chronic

> illness escalate prior to your surgery. Autumn has always been the

roughest

> season for me -- and it seems like each day is one more mini

emergency with

> my body.

> Anxiety. Yes. Insomina. Yes. TMJ returning with a vengeance.

Yes.

> But I know from having prior surgeries, my main fear is not being

able to

> breathe. I had Thoracic Outlet Surgery 20 years ago and awoke with

a chest

> tube in and feeling like I was suffocating... and it is my worst

fear and

> nightmare.

> I do have myo-fascial release therapy at least once a week and have

felt it

> does more for my general health and well-being than any thing else

I've

> tried.

> I've been 3 years on this path and I know this journey is almost

finished.

>

> Thank you for listening and I wish everyone the best with their

surgeries

> and recoveries.

> Regards,

>

> Connie J

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