Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Bill, I am sorry to hear that you are having this problem and it is so upsetting for you. Did the study show that you were getting enough oxygen? What did the specialist say regarding the cause? What medications are you on? Do you have family with you? I appologize, since I am new to the group, you may have covered these things already. Please try to take comfort in the fact that the body is an amazing thing, and it will try to compensate for inadequate functions, giving you enough oxygen. Take faith that the tests will produce an answer and a solution to your problem. When you go to your healthcare providers have a list of questions and concerns, and try to get answers when you go, as a patient you have a right to know. Also express your fears to them regarding your breathing pattern. They should be able to offer some information that will assist you, and should be able address your concerns. I would be very anxious to hear about your next study, and the new machine they are using. (for a smile) Do you know who invented the hospital gown? answer: Dr Seemore Butt. Take care and good luck. Cindi > >Reply-To: shydrager >To: <shydrager > >Subject: Cheyne Stokes Reply >Date: Fri, 1 Nov 2002 22:55:22 +1000 (E. Australia Standard Time) > >Hi Cindi. >Unfortunately it appears to be the real thing according to a Respiratory >Specialist who ordered the Sleep study. The pattern is there and not >helped >by a C-Pap or Bi-Pap. If I relax through the day it cuts in then as well. >I don't know about anybody else, but to me it is becoming frightening I'm >booked in for a third study on 12th November, with a totally new machine to >Australia and never sold here before. Possibly not new to USA. Just in >case I will send information in after the test. I'm hoping that I don't >have the real thing and that it is being induced by medication or something >else. >Let me quickly say Hi to Aussie Anne at the same time. I am not catching >up very well lately, but will soon I hope. Regards from Bill P. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Bill, I am sorry to hear that you are having this problem and it is so upsetting for you. Did the study show that you were getting enough oxygen? What did the specialist say regarding the cause? What medications are you on? Do you have family with you? I appologize, since I am new to the group, you may have covered these things already. Please try to take comfort in the fact that the body is an amazing thing, and it will try to compensate for inadequate functions, giving you enough oxygen. Take faith that the tests will produce an answer and a solution to your problem. When you go to your healthcare providers have a list of questions and concerns, and try to get answers when you go, as a patient you have a right to know. Also express your fears to them regarding your breathing pattern. They should be able to offer some information that will assist you, and should be able address your concerns. I would be very anxious to hear about your next study, and the new machine they are using. (for a smile) Do you know who invented the hospital gown? answer: Dr Seemore Butt. Take care and good luck. Cindi > >Reply-To: shydrager >To: <shydrager > >Subject: Cheyne Stokes Reply >Date: Fri, 1 Nov 2002 22:55:22 +1000 (E. Australia Standard Time) > >Hi Cindi. >Unfortunately it appears to be the real thing according to a Respiratory >Specialist who ordered the Sleep study. The pattern is there and not >helped >by a C-Pap or Bi-Pap. If I relax through the day it cuts in then as well. >I don't know about anybody else, but to me it is becoming frightening I'm >booked in for a third study on 12th November, with a totally new machine to >Australia and never sold here before. Possibly not new to USA. Just in >case I will send information in after the test. I'm hoping that I don't >have the real thing and that it is being induced by medication or something >else. >Let me quickly say Hi to Aussie Anne at the same time. I am not catching >up very well lately, but will soon I hope. Regards from Bill P. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Greetings Bill, You are not alone. When my breathing pattern becomes so bad that it awakens me as I attempt to go to sleep... Well, let's just say I come to dread sleep. People wonder how it's possible. My only answer can be " YOU don't understand it " . Imagine the terror of drowning. There is a sudden and terrible adreneline rush. Sometimes as I go to sleep, I awaken with that terror. Not after I get to sleep. But as I head to sleep. Yes, it is very frightening. Again, ask about medication. It may be that combined with the new xPAP machine, it will help keep this symptom in check. It is possible this will be a spontaneous and timed machine. These help check both the volume and timing of your breathing. Such a machine will switch to inhalation mode if you don't breathe within a set amount of time. It also increases inhalation pressure if you are not breathing deeply enough. Pretty cool technology. Unfortunately, also not cheap. By the way for folks wondering ... to guesstimate the cost of units: if the cost of a CPAP unit is the base, then a BiPAP unit costs twice what a CPAP unit costs. One of those fancy machine I noted above costs two to four times the cost of a BiPAP. This is just a rough rule of thumb based on what I've read. The actual cost on the units has decreased with time. But the ratios remain about the same. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Greetings Bill, You are not alone. When my breathing pattern becomes so bad that it awakens me as I attempt to go to sleep... Well, let's just say I come to dread sleep. People wonder how it's possible. My only answer can be " YOU don't understand it " . Imagine the terror of drowning. There is a sudden and terrible adreneline rush. Sometimes as I go to sleep, I awaken with that terror. Not after I get to sleep. But as I head to sleep. Yes, it is very frightening. Again, ask about medication. It may be that combined with the new xPAP machine, it will help keep this symptom in check. It is possible this will be a spontaneous and timed machine. These help check both the volume and timing of your breathing. Such a machine will switch to inhalation mode if you don't breathe within a set amount of time. It also increases inhalation pressure if you are not breathing deeply enough. Pretty cool technology. Unfortunately, also not cheap. By the way for folks wondering ... to guesstimate the cost of units: if the cost of a CPAP unit is the base, then a BiPAP unit costs twice what a CPAP unit costs. One of those fancy machine I noted above costs two to four times the cost of a BiPAP. This is just a rough rule of thumb based on what I've read. The actual cost on the units has decreased with time. But the ratios remain about the same. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
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