Re: Joint Pain --Diagnosis - Marsha

[Guest guest]

Hi Marsha,

That's exactly what happened to my friend, who had the same surgeon

as I, on her second surgery (after the first, her bite opened up

again).

I'm really sorry to hear about it, but glad for you that you've had

it diagnosed.

It's important for pre-oppers and post-oppers to know that this is

not common, and I'm glad you posted that remark.

She went to see an oral facial pain specialist, and is also seeing a

physiotherapist - I believe she told me that it takes 2-3 years for

the condyle to remodel (no pain), but I'd ask your professionals for

statistics on that.

She's taking gabapentum (sp?) at night, it's an anti-seizure drug,

also had anti-depressants and anti-anxiety drugs. Before she started

the physio, she was having constant pain. I think it's better (she

can sleep at night, but I don't know much more), but I haven't spoken

with her in awhile, it's a good reminder for me to touch base with

her again. She doesn't come on the sites anymore, hasn't for a couple

of years and doesn't want to. It's not her style of communication.

Hope that helps. I know my friend doesn't want to let anybody into

the joints, so this is the route she's chosen. I think that erin

(erin_klein) can probably give you some good advice too - she offered

her e-mail addy to my friend for support.

> Well, I finally have a diagnosis for the excrutiating pain that I

> have been suffering through for the last 3 weeks. It seems that

> somehow the cartiledge in my right jaw joint has managed to

> dislocate, causing horrible pain and not allowing me to open my

mouth.

>

> I have between a 10 to 15 MM opening (on good day). All my doc has

> been able to do is medicate me, that means Vicodin during the day I

> can actually function and work with that, but it doesn't do much

for

> the pain unless I take it every 3 hours and try to prevent the pain

> from starting. Then I have percocet and flexoril for evenings and

> weekends. So I have pretty much been in a drugged stupor for the

past

> 2 weeks.

>

> I will have an MRI in the next few days to make absolutly certain

> that that is what it is, and then undergo a second (minor) surgery

to

> fix the cartiledge. And hopefully the pain will go away and I will

> continue on the road to a full recovery.

>

> On Thursday I will be 8 weeks post op and I expected to be close to

> fully recovered at this point. I missed my first night of classes

> yesterday.

>

> Has this happened to anyone or has anyone heard of it? My OS said

it

> is about 1 in 100 that it happens. Lucky Me!

>

> Marsha

[Guest guest]

Hi Marsha,

That's exactly what happened to my friend, who had the same surgeon

as I, on her second surgery (after the first, her bite opened up

again).

I'm really sorry to hear about it, but glad for you that you've had

it diagnosed.

It's important for pre-oppers and post-oppers to know that this is

not common, and I'm glad you posted that remark.

She went to see an oral facial pain specialist, and is also seeing a

physiotherapist - I believe she told me that it takes 2-3 years for

the condyle to remodel (no pain), but I'd ask your professionals for

statistics on that.

She's taking gabapentum (sp?) at night, it's an anti-seizure drug,

also had anti-depressants and anti-anxiety drugs. Before she started

the physio, she was having constant pain. I think it's better (she

can sleep at night, but I don't know much more), but I haven't spoken

with her in awhile, it's a good reminder for me to touch base with

her again. She doesn't come on the sites anymore, hasn't for a couple

of years and doesn't want to. It's not her style of communication.

Hope that helps. I know my friend doesn't want to let anybody into

the joints, so this is the route she's chosen. I think that erin

(erin_klein) can probably give you some good advice too - she offered

her e-mail addy to my friend for support.

> Well, I finally have a diagnosis for the excrutiating pain that I

> have been suffering through for the last 3 weeks. It seems that

> somehow the cartiledge in my right jaw joint has managed to

> dislocate, causing horrible pain and not allowing me to open my

mouth.

>

> I have between a 10 to 15 MM opening (on good day). All my doc has

> been able to do is medicate me, that means Vicodin during the day I

> can actually function and work with that, but it doesn't do much

for

> the pain unless I take it every 3 hours and try to prevent the pain

> from starting. Then I have percocet and flexoril for evenings and

> weekends. So I have pretty much been in a drugged stupor for the

past

> 2 weeks.

>

> I will have an MRI in the next few days to make absolutly certain

> that that is what it is, and then undergo a second (minor) surgery

to

> fix the cartiledge. And hopefully the pain will go away and I will

> continue on the road to a full recovery.

>

> On Thursday I will be 8 weeks post op and I expected to be close to

> fully recovered at this point. I missed my first night of classes

> yesterday.

>

> Has this happened to anyone or has anyone heard of it? My OS said

it

> is about 1 in 100 that it happens. Lucky Me!

>

> Marsha

[Guest guest]

WEll, I have an MRI and CT scheduled for Friday, If I can have this

fixed surgically I will as I cannot stand this pain for much longer.I

did not have TMJ pain prior to the surgery and this is not real TMd

as it was brought on by the surgery. My Dr. explained it very clearly

and gave me some drawings that show what happened. I trust him

implicitly and if he says he can fix it with a minor intervention I

believe that he can, just knowing there is an end in site makes me

feel better.

The muscle relaxers definetly help. I am trying to work from home for

the next week or so. As long as I do not talk, walk or ride in a car

I am fine!! Gee that leaves me with a lot to do doesn't it!! Any sort

of vibration or moevement sets it off.

I've missed my first day of 2 classes and I am trying to go to class

tomorrow. I'll know later in the week if I have to cancel some

classes.

Anyway, thanks for listening, I'll post later when I know for sure

when the next surgery will be. hoping for next week or the week

after.

Marsha

Marsha

> > Well, I finally have a diagnosis for the excrutiating pain that I

> > have been suffering through for the last 3 weeks. It seems that

> > somehow the cartiledge in my right jaw joint has managed to

> > dislocate, causing horrible pain and not allowing me to open my

> mouth.

> >

> > I have between a 10 to 15 MM opening (on good day). All my doc

has

> > been able to do is medicate me, that means Vicodin during the day

I

> > can actually function and work with that, but it doesn't do much

> for

> > the pain unless I take it every 3 hours and try to prevent the

pain

> > from starting. Then I have percocet and flexoril for evenings and

> > weekends. So I have pretty much been in a drugged stupor for the

> past

> > 2 weeks.

> >

> > I will have an MRI in the next few days to make absolutly certain

> > that that is what it is, and then undergo a second (minor)

surgery

> to

> > fix the cartiledge. And hopefully the pain will go away and I

will

> > continue on the road to a full recovery.

> >

> > On Thursday I will be 8 weeks post op and I expected to be close

to

> > fully recovered at this point. I missed my first night of classes

> > yesterday.

> >

> > Has this happened to anyone or has anyone heard of it? My OS said

> it

> > is about 1 in 100 that it happens. Lucky Me!

> >

> > Marsha

[Guest guest]

WEll, I have an MRI and CT scheduled for Friday, If I can have this

fixed surgically I will as I cannot stand this pain for much longer.I

did not have TMJ pain prior to the surgery and this is not real TMd

as it was brought on by the surgery. My Dr. explained it very clearly

and gave me some drawings that show what happened. I trust him

implicitly and if he says he can fix it with a minor intervention I

believe that he can, just knowing there is an end in site makes me

feel better.

The muscle relaxers definetly help. I am trying to work from home for

the next week or so. As long as I do not talk, walk or ride in a car

I am fine!! Gee that leaves me with a lot to do doesn't it!! Any sort

of vibration or moevement sets it off.

I've missed my first day of 2 classes and I am trying to go to class

tomorrow. I'll know later in the week if I have to cancel some

classes.

Anyway, thanks for listening, I'll post later when I know for sure

when the next surgery will be. hoping for next week or the week

after.

Marsha

Marsha

> > Well, I finally have a diagnosis for the excrutiating pain that I

> > have been suffering through for the last 3 weeks. It seems that

> > somehow the cartiledge in my right jaw joint has managed to

> > dislocate, causing horrible pain and not allowing me to open my

> mouth.

> >

> > I have between a 10 to 15 MM opening (on good day). All my doc

has

> > been able to do is medicate me, that means Vicodin during the day

I

> > can actually function and work with that, but it doesn't do much

> for

> > the pain unless I take it every 3 hours and try to prevent the

pain

> > from starting. Then I have percocet and flexoril for evenings and

> > weekends. So I have pretty much been in a drugged stupor for the

> past

> > 2 weeks.

> >

> > I will have an MRI in the next few days to make absolutly certain

> > that that is what it is, and then undergo a second (minor)

surgery

> to

> > fix the cartiledge. And hopefully the pain will go away and I

will

> > continue on the road to a full recovery.

> >

> > On Thursday I will be 8 weeks post op and I expected to be close

to

> > fully recovered at this point. I missed my first night of classes

> > yesterday.

> >

> > Has this happened to anyone or has anyone heard of it? My OS said

> it

> > is about 1 in 100 that it happens. Lucky Me!

> >

> > Marsha

[Guest guest]

Suz, I would bet that it's gabapentin -- aka Neurontin -- which can

be majorly helpful with neurological problems. You're absolutely

right that it's an anti-seizure pill, but it also helps a lot with

other neurological troubles, especially peripheral neuropathies and

shingles. You wanna know how I know that one?

There's another drug, called Trileptal, that serves similar purposes,

and keeps my feet from stabbing me. It's also an anti-seizure drug; I

don't have seizures, but it sure does help with the other pain.

C.

> Hi Marsha,

>

> That's exactly what happened to my friend, who had the same surgeon

> as I, on her second surgery (after the first, her bite opened up

> again).

>

> I'm really sorry to hear about it, but glad for you that you've had

> it diagnosed.

>

> It's important for pre-oppers and post-oppers to know that this is

> not common, and I'm glad you posted that remark.

>

> She went to see an oral facial pain specialist, and is also seeing

a

> physiotherapist - I believe she told me that it takes 2-3 years for

> the condyle to remodel (no pain), but I'd ask your professionals

for

> statistics on that.

>

> She's taking gabapentum (sp?) at night, it's an anti-seizure drug,

> also had anti-depressants and anti-anxiety drugs. Before she

started

> the physio, she was having constant pain. I think it's better (she

> can sleep at night, but I don't know much more), but I haven't

spoken

> with her in awhile, it's a good reminder for me to touch base with

> her again. She doesn't come on the sites anymore, hasn't for a

couple

> of years and doesn't want to. It's not her style of communication.

>

> Hope that helps. I know my friend doesn't want to let anybody into

> the joints, so this is the route she's chosen. I think that erin

> (erin_klein) can probably give you some good advice too - she

offered

> her e-mail addy to my friend for support.

>

>

>

[Guest guest]

Suz, I would bet that it's gabapentin -- aka Neurontin -- which can

be majorly helpful with neurological problems. You're absolutely

right that it's an anti-seizure pill, but it also helps a lot with

other neurological troubles, especially peripheral neuropathies and

shingles. You wanna know how I know that one?

There's another drug, called Trileptal, that serves similar purposes,

and keeps my feet from stabbing me. It's also an anti-seizure drug; I

don't have seizures, but it sure does help with the other pain.

C.

> Hi Marsha,

>

> That's exactly what happened to my friend, who had the same surgeon

> as I, on her second surgery (after the first, her bite opened up

> again).

>

> I'm really sorry to hear about it, but glad for you that you've had

> it diagnosed.

>

> It's important for pre-oppers and post-oppers to know that this is

> not common, and I'm glad you posted that remark.

>

> She went to see an oral facial pain specialist, and is also seeing

a

> physiotherapist - I believe she told me that it takes 2-3 years for

> the condyle to remodel (no pain), but I'd ask your professionals

for

> statistics on that.

>

> She's taking gabapentum (sp?) at night, it's an anti-seizure drug,

> also had anti-depressants and anti-anxiety drugs. Before she

started

> the physio, she was having constant pain. I think it's better (she

> can sleep at night, but I don't know much more), but I haven't

spoken

> with her in awhile, it's a good reminder for me to touch base with

> her again. She doesn't come on the sites anymore, hasn't for a

couple

> of years and doesn't want to. It's not her style of communication.

>

> Hope that helps. I know my friend doesn't want to let anybody into

> the joints, so this is the route she's chosen. I think that erin

> (erin_klein) can probably give you some good advice too - she

offered

> her e-mail addy to my friend for support.

>

>

>

[Guest guest]

Hi Marsha,

Well, I guess there's comfort in knowing that the surgery can't make

it any worse than it is. Trust in the surgeon is paramount, isn't it?

Keep us posted! I definitely want to hear how things go, I'll let my

friend know of your outcome as I'm sure she'll be interested.

> > > Well, I finally have a diagnosis for the excrutiating pain that

I

> > > have been suffering through for the last 3 weeks. It seems that

> > > somehow the cartiledge in my right jaw joint has managed to

> > > dislocate, causing horrible pain and not allowing me to open my

> > mouth.

> > >

> > > I have between a 10 to 15 MM opening (on good day). All my doc

> has

> > > been able to do is medicate me, that means Vicodin during the

day

> I

> > > can actually function and work with that, but it doesn't do

much

> > for

> > > the pain unless I take it every 3 hours and try to prevent the

> pain

> > > from starting. Then I have percocet and flexoril for evenings

and

> > > weekends. So I have pretty much been in a drugged stupor for

the

> > past

> > > 2 weeks.

> > >

> > > I will have an MRI in the next few days to make absolutly

certain

> > > that that is what it is, and then undergo a second (minor)

> surgery

> > to

> > > fix the cartiledge. And hopefully the pain will go away and I

> will

> > > continue on the road to a full recovery.

> > >

> > > On Thursday I will be 8 weeks post op and I expected to be

close

> to

> > > fully recovered at this point. I missed my first night of

classes

> > > yesterday.

> > >

> > > Has this happened to anyone or has anyone heard of it? My OS

said

> > it

> > > is about 1 in 100 that it happens. Lucky Me!

> > >

> > > Marsha

[Guest guest]

Hi Marsha,

Well, I guess there's comfort in knowing that the surgery can't make

it any worse than it is. Trust in the surgeon is paramount, isn't it?

Keep us posted! I definitely want to hear how things go, I'll let my

friend know of your outcome as I'm sure she'll be interested.

> > > Well, I finally have a diagnosis for the excrutiating pain that

I

> > > have been suffering through for the last 3 weeks. It seems that

> > > somehow the cartiledge in my right jaw joint has managed to

> > > dislocate, causing horrible pain and not allowing me to open my

> > mouth.

> > >

> > > I have between a 10 to 15 MM opening (on good day). All my doc

> has

> > > been able to do is medicate me, that means Vicodin during the

day

> I

> > > can actually function and work with that, but it doesn't do

much

> > for

> > > the pain unless I take it every 3 hours and try to prevent the

> pain

> > > from starting. Then I have percocet and flexoril for evenings

and

> > > weekends. So I have pretty much been in a drugged stupor for

the

> > past

> > > 2 weeks.

> > >

> > > I will have an MRI in the next few days to make absolutly

certain

> > > that that is what it is, and then undergo a second (minor)

> surgery

> > to

> > > fix the cartiledge. And hopefully the pain will go away and I

> will

> > > continue on the road to a full recovery.

> > >

> > > On Thursday I will be 8 weeks post op and I expected to be

close

> to

> > > fully recovered at this point. I missed my first night of

classes

> > > yesterday.

> > >

> > > Has this happened to anyone or has anyone heard of it? My OS

said

> > it

> > > is about 1 in 100 that it happens. Lucky Me!

> > >

> > > Marsha