ER's and Crappers (Is there a difference?)

[Guest guest]

Hi ,

I'm sorry you had such a bad experience at the ER of the Cleveland

Institute. I think it would be accurate to say that most of us in the

" family " have stories about incompetent doctors, nurses and even

administrators. I believe this is magnified for the MSA patients because

1. The condition is so rare and so hard to understand that an ER staff may

just not be aware of the challenges and 2. We end up in hospitals and ER's

more often than most people, so the odds of getting a " bad dose " is higher

than normal. FORTUNATELY, these experiences are usually the exception

rather than the norm, and for every bad experience, you will probably end

up with 5 stories of good, and sometimes even heroic experiences. Bottom

line though, don't put up with it. Contact patient relations or the

patient advocate office of the hospital, and if you can't get better

service, go somewhere else.

On CRAPPERS - whatever we call it, I sure wish MSA patients could DO it!

Best wishes,

PS- It seems we have a few new contributors to the group. We might want to

go over the procedure of posting replies, as the past few digests have had

entire previous digests pasted in, and it makes for long and confusing

reading. Also someone mentioned the volume of emails kept them from

staying with the group. We may also want to post the instructions for

getting the emails in digest format. It sure saves me a bunch of time!

[Guest guest]

Hi ,

I'm sorry you had such a bad experience at the ER of the Cleveland

Institute. I think it would be accurate to say that most of us in the

" family " have stories about incompetent doctors, nurses and even

administrators. I believe this is magnified for the MSA patients because

1. The condition is so rare and so hard to understand that an ER staff may

just not be aware of the challenges and 2. We end up in hospitals and ER's

more often than most people, so the odds of getting a " bad dose " is higher

than normal. FORTUNATELY, these experiences are usually the exception

rather than the norm, and for every bad experience, you will probably end

up with 5 stories of good, and sometimes even heroic experiences. Bottom

line though, don't put up with it. Contact patient relations or the

patient advocate office of the hospital, and if you can't get better

service, go somewhere else.

On CRAPPERS - whatever we call it, I sure wish MSA patients could DO it!

Best wishes,

PS- It seems we have a few new contributors to the group. We might want to

go over the procedure of posting replies, as the past few digests have had

entire previous digests pasted in, and it makes for long and confusing

reading. Also someone mentioned the volume of emails kept them from

staying with the group. We may also want to post the instructions for

getting the emails in digest format. It sure saves me a bunch of time!