C-PAP or Bi-PAP and other problems

[Guest guest]

Hi Folks,

Can anyone give me and Jeff some advice on when it would be an appropriate

time to go from a CPAP to a Bi-PAP. Jeff has been on a CPAP for about 6-7

months now, and while it definitely helps with the nightime stridor, and he

sleeps MUCH better, he is having alot of difficulty breathing when awake,

and his daytime narcolepsy is getting worse again, in fact worse than when

he first started the CPAP. He was on Provigil for a while, it worked a

little, but after a while there was no difference. He's now on Concerta,

and it really doesn't seem to be helping. Dexedrine was a nightmare. He

also had a spirometry test, and the doctor says that his lungs are not

properly dilating (?), hence the shortness of breath. He gets short of

breath even when at rest. Something as simple as tying his shoes is a

major ordeal for him. It takes him 5-10 minutes to recover. The doctor

has given him an inhalator (combivent) and it helps a little, but only for

a short period of time. On top of all this the blood pressure spikes are

still occurring and he has TERRIBLE swelling in his feet, legs, hands, and

sometime around his face and eyes. I'm starting to feel like the little

dutch boy with his finger in the dam. New leaks keep springing up, and

they seem to be happening too fast to keep up with. Help!

Regards,

M.

[Guest guest]

Hi Folks,

Can anyone give me and Jeff some advice on when it would be an appropriate

time to go from a CPAP to a Bi-PAP. Jeff has been on a CPAP for about 6-7

months now, and while it definitely helps with the nightime stridor, and he

sleeps MUCH better, he is having alot of difficulty breathing when awake,

and his daytime narcolepsy is getting worse again, in fact worse than when

he first started the CPAP. He was on Provigil for a while, it worked a

little, but after a while there was no difference. He's now on Concerta,

and it really doesn't seem to be helping. Dexedrine was a nightmare. He

also had a spirometry test, and the doctor says that his lungs are not

properly dilating (?), hence the shortness of breath. He gets short of

breath even when at rest. Something as simple as tying his shoes is a

major ordeal for him. It takes him 5-10 minutes to recover. The doctor

has given him an inhalator (combivent) and it helps a little, but only for

a short period of time. On top of all this the blood pressure spikes are

still occurring and he has TERRIBLE swelling in his feet, legs, hands, and

sometime around his face and eyes. I'm starting to feel like the little

dutch boy with his finger in the dam. New leaks keep springing up, and

they seem to be happening too fast to keep up with. Help!

Regards,

M.