Guest guest Posted February 12, 2003 Report Share Posted February 12, 2003 I have spina bifida...in my case very minor...an invagination at the base of my spine, but now causing me problems post WLS. I have NO padding over the coxxyx, and the bone pushes on the bridge of skin over the gluteal cleft. OUCH! Firm chairs are best for me...3 different docs were no help. The consensus of opinion is to put a pad of some kind in my underwear to cushion it?????, carry a gel pad around to sit on?????? or ignore it. WEll, I ignore it and then yelp at the strangest times... sleeping on my back is difficult because I am lying on the bone, it hurts, and I awaken. Have known 2 other adult women with spina bifida...much more serious than my situation. One is a veterinarian..she need is on crutches, is not able to void without manually manipulating her bladder...pushing on it from the outside, and must use laxatives. The other is a librarian, she has a slight limp, dribbles urine, wears incontinence pads, and goes about her life. Severity of the deformity and attitude determines the quality of life. 43 year old nephew had spina bifida with myelmeningeocele...don't know if I spelled it correctly. Now THAT is serious. Surgery to remove the lump at the end of his spine containing fatty tissue and fluid, eventual paralysis of lower extremities due to a tumor growing up his spine. He is married to a woman whose physical problems are more extensive than his. He is a machinist, only one of my sister's children to leave home and mommy....moved from MN to TX. Corrine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2003 Report Share Posted February 12, 2003 I have spina bifida...in my case very minor...an invagination at the base of my spine, but now causing me problems post WLS. I have NO padding over the coxxyx, and the bone pushes on the bridge of skin over the gluteal cleft. OUCH! Firm chairs are best for me...3 different docs were no help. The consensus of opinion is to put a pad of some kind in my underwear to cushion it?????, carry a gel pad around to sit on?????? or ignore it. WEll, I ignore it and then yelp at the strangest times... sleeping on my back is difficult because I am lying on the bone, it hurts, and I awaken. Have known 2 other adult women with spina bifida...much more serious than my situation. One is a veterinarian..she need is on crutches, is not able to void without manually manipulating her bladder...pushing on it from the outside, and must use laxatives. The other is a librarian, she has a slight limp, dribbles urine, wears incontinence pads, and goes about her life. Severity of the deformity and attitude determines the quality of life. 43 year old nephew had spina bifida with myelmeningeocele...don't know if I spelled it correctly. Now THAT is serious. Surgery to remove the lump at the end of his spine containing fatty tissue and fluid, eventual paralysis of lower extremities due to a tumor growing up his spine. He is married to a woman whose physical problems are more extensive than his. He is a machinist, only one of my sister's children to leave home and mommy....moved from MN to TX. Corrine Quote Link to comment Share on other sites More sharing options...
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