Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 is beginning physical and speech therapy and (of course) none of the therapists have ever heard of MSA or OPCA. Has anyone found a good resource for these folks to use? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 is beginning physical and speech therapy and (of course) none of the therapists have ever heard of MSA or OPCA. Has anyone found a good resource for these folks to use? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Ken too was very much helped by the Lee Silverman method of speech therapy. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Ken too was very much helped by the Lee Silverman method of speech therapy. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Hi, Some hints for the therapists. If is taking any kind of medicine to help with movement (such as Sinemet, dopamine agonist, antispasm meds, etc.) try to time them so she is at her peak when the therapist gets there. **** Physical therapy **** Note: our PT's usually could spot where my wife needed work. * Work on range of motion * All muscles tend to tighten up so there is a need to work on toes, feet , ankles, legs, hips, fingers, hands, wrists, elbows, shoulders, neck (basically any joint). * Don't work too long at a time (patient should be tired but not in pain after session) - When therapist is not there, three 20 minute sessions per day can be better for the patient than one hour long session. Maybe work on legs one session, arms another session and other joints for the third session. ***** Speech ***** We had a few (not many) speech therapists who concentrated on only movement. They must work on both range of motion (movement) AND volume as well as breathing. MSA causes problems with muscle memory and you must work on these exercises daily to help the muscles " remember " what they are supposed to do. ***** All therapy ***** Have the PT (and ST) work with the caregiver(s) so they can learn the exercises and reasons for the exercise as the patient will get far more good from them if the exercises are done daily Caregiver(s) at some point, also need to learn how to: do transfers (i.e. bed to chair); use a gait belt; turn the patient in bed; and do other things to help the patient. Learn early while the patient is still able to help. An occupational therapist can also help you determine how to make your home as patient (and caregiver) friendly as possible. They can fit the patient for a proper wheelchair (w/c), (and help you decide if you want a motorized or manual w/c). They have a wealth of info on adaptive equipment available. Take care, Bill Werre dpscosmo17 wrote: > is beginning physical and speech therapy and >(of course) none of the therapists have ever heard of >MSA or OPCA. Has anyone found a good resource for these >folks to use? > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Hi, Some hints for the therapists. If is taking any kind of medicine to help with movement (such as Sinemet, dopamine agonist, antispasm meds, etc.) try to time them so she is at her peak when the therapist gets there. **** Physical therapy **** Note: our PT's usually could spot where my wife needed work. * Work on range of motion * All muscles tend to tighten up so there is a need to work on toes, feet , ankles, legs, hips, fingers, hands, wrists, elbows, shoulders, neck (basically any joint). * Don't work too long at a time (patient should be tired but not in pain after session) - When therapist is not there, three 20 minute sessions per day can be better for the patient than one hour long session. Maybe work on legs one session, arms another session and other joints for the third session. ***** Speech ***** We had a few (not many) speech therapists who concentrated on only movement. They must work on both range of motion (movement) AND volume as well as breathing. MSA causes problems with muscle memory and you must work on these exercises daily to help the muscles " remember " what they are supposed to do. ***** All therapy ***** Have the PT (and ST) work with the caregiver(s) so they can learn the exercises and reasons for the exercise as the patient will get far more good from them if the exercises are done daily Caregiver(s) at some point, also need to learn how to: do transfers (i.e. bed to chair); use a gait belt; turn the patient in bed; and do other things to help the patient. Learn early while the patient is still able to help. An occupational therapist can also help you determine how to make your home as patient (and caregiver) friendly as possible. They can fit the patient for a proper wheelchair (w/c), (and help you decide if you want a motorized or manual w/c). They have a wealth of info on adaptive equipment available. Take care, Bill Werre dpscosmo17 wrote: > is beginning physical and speech therapy and >(of course) none of the therapists have ever heard of >MSA or OPCA. Has anyone found a good resource for these >folks to use? > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 Thank you, Bill for your valuable info re pt. It relates well to some of the problems Bill runs into when taking pt. We have a pedal exerciser that seems to quite helpful in loosening up the leg movements. Winifred Card Re: physical / speech therapy > Hi, > > Some hints for the therapists. If is taking any kind of medicine > to help with movement (such as Sinemet, dopamine agonist, antispasm > meds, etc.) try to time them so she is at her peak when the therapist > gets there. > > **** Physical therapy **** Note: our PT's usually could spot where > my wife needed work. > > * Work on range of motion > * All muscles tend to tighten up so there is a need to work on toes, > feet , ankles, legs, hips, fingers, hands, wrists, elbows, shoulders, > neck (basically any joint). > * Don't work too long at a time (patient should be tired but not in pain > after session) - When therapist is not there, three 20 minute sessions > per day can be better for the patient than one hour long session. Maybe > work on legs one session, arms another session and other joints for the > third session. > > > ***** Speech ***** > > We had a few (not many) speech therapists who concentrated on only > movement. They must work on both range of motion (movement) AND volume > as well as breathing. MSA causes problems with muscle memory and you > must work on these exercises daily to help the muscles " remember " what > they are supposed to do. > > ***** All therapy ***** > > Have the PT (and ST) work with the caregiver(s) so they can learn the > exercises and reasons for the exercise as the patient will get far more > good from them if the exercises are done daily > Caregiver(s) at some point, also need to learn how to: do transfers > (i.e. bed to chair); use a gait belt; turn the patient in bed; and do > other things to help the patient. Learn early while the patient is > still able to help. An occupational therapist can also help you > determine how to make your home as patient (and caregiver) friendly as > possible. They can fit the patient for a proper wheelchair (w/c), (and > help you decide if you want a motorized or manual w/c). They have a > wealth of info on adaptive equipment available. > > Take care, Bill Werre > > > dpscosmo17 wrote: > > > is beginning physical and speech therapy and > >(of course) none of the therapists have ever heard of > >MSA or OPCA. Has anyone found a good resource for these > >folks to use? > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 Thank you, Bill for your valuable info re pt. It relates well to some of the problems Bill runs into when taking pt. We have a pedal exerciser that seems to quite helpful in loosening up the leg movements. Winifred Card Re: physical / speech therapy > Hi, > > Some hints for the therapists. If is taking any kind of medicine > to help with movement (such as Sinemet, dopamine agonist, antispasm > meds, etc.) try to time them so she is at her peak when the therapist > gets there. > > **** Physical therapy **** Note: our PT's usually could spot where > my wife needed work. > > * Work on range of motion > * All muscles tend to tighten up so there is a need to work on toes, > feet , ankles, legs, hips, fingers, hands, wrists, elbows, shoulders, > neck (basically any joint). > * Don't work too long at a time (patient should be tired but not in pain > after session) - When therapist is not there, three 20 minute sessions > per day can be better for the patient than one hour long session. Maybe > work on legs one session, arms another session and other joints for the > third session. > > > ***** Speech ***** > > We had a few (not many) speech therapists who concentrated on only > movement. They must work on both range of motion (movement) AND volume > as well as breathing. MSA causes problems with muscle memory and you > must work on these exercises daily to help the muscles " remember " what > they are supposed to do. > > ***** All therapy ***** > > Have the PT (and ST) work with the caregiver(s) so they can learn the > exercises and reasons for the exercise as the patient will get far more > good from them if the exercises are done daily > Caregiver(s) at some point, also need to learn how to: do transfers > (i.e. bed to chair); use a gait belt; turn the patient in bed; and do > other things to help the patient. Learn early while the patient is > still able to help. An occupational therapist can also help you > determine how to make your home as patient (and caregiver) friendly as > possible. They can fit the patient for a proper wheelchair (w/c), (and > help you decide if you want a motorized or manual w/c). They have a > wealth of info on adaptive equipment available. > > Take care, Bill Werre > > > dpscosmo17 wrote: > > > is beginning physical and speech therapy and > >(of course) none of the therapists have ever heard of > >MSA or OPCA. Has anyone found a good resource for these > >folks to use? > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 yvonne, hope u can read this. sophie CARROT SOUP To serve 4 lib. Carrots. thinl-y sliced (I small bag) 3 T butter 2 T choJ2J2ed onion1 Quart chicken broth 3 T uncooked rice-s-alt 1 tsJ2. sugar Gently cook the carrots) together with the onion) in the butter. when they are tender) add thbroth and the rice.eason with a pinch of salt and the sugar. Simmer for 20 minutes) then puree in food processor. Serve warm. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 yvonne, hope u can read this. sophie CARROT SOUP To serve 4 lib. Carrots. thinl-y sliced (I small bag) 3 T butter 2 T choJ2J2ed onion1 Quart chicken broth 3 T uncooked rice-s-alt 1 tsJ2. sugar Gently cook the carrots) together with the onion) in the butter. when they are tender) add thbroth and the rice.eason with a pinch of salt and the sugar. Simmer for 20 minutes) then puree in food processor. Serve warm. Quote Link to comment Share on other sites More sharing options...
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