Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 My mom has a question regarding where you folks are getting the CO-Q-10 supplements. My dad is a patient of Dr. Tom Chelimsky, who spoke at your recent convention. We thought the dosage of 1,200 mg was a misprint, but he confirmed that is accurate. She only finds 150 mg tablets, 30 count priced at $29.99. If dad is to take 8 tablets a day, she said it will cost a fortune! I told her I'd ask the group where to get this product at best price. Thanks for any info. Have missed much of what goes on, as I struggle with the email volume, but dad is hanging in there (no wheel chair yet) with aggressive PT. Thanks. Cindy, Philadelphia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 My mom has a question regarding where you folks are getting the CO-Q-10 supplements. My dad is a patient of Dr. Tom Chelimsky, who spoke at your recent convention. We thought the dosage of 1,200 mg was a misprint, but he confirmed that is accurate. She only finds 150 mg tablets, 30 count priced at $29.99. If dad is to take 8 tablets a day, she said it will cost a fortune! I told her I'd ask the group where to get this product at best price. Thanks for any info. Have missed much of what goes on, as I struggle with the email volume, but dad is hanging in there (no wheel chair yet) with aggressive PT. Thanks. Cindy, Philadelphia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Hi Cindy, Unfortunately it does cost a fortune if you want to take that high a dose. None of the cost would be covered by medicare or private insurance since this is not a proven therapy for MSA. Carol Langer found this information on the brand of CoQ10 (Vitaline) that was being used in the Parkinson's study where patients took 1200mg per day: Carol wrote: " the supplement used in the study was provided by Vitaline. I called them () and found that they used Co Q-10 wafers. They are 300mg each, so you need 4 a day and you would need 2 bottles a month at $100 a bottle, for a total of $200 a month. " I also found this information on another brand of CoQ10: Tishcon (Q-gels). These are available in 100mg gelcaps. http://www.epic4health.com/qgelmega100.html The cost to take 1200mg of this brand per day would also work out to roughly $200 per month if bought in bulk. Regards, Pam CO-Q-10 My mom has a question regarding where you folks are getting the CO-Q-10 supplements. My dad is a patient of Dr. Tom Chelimsky, who spoke at your recent convention. We thought the dosage of 1,200 mg was a misprint, but he confirmed that is accurate. She only finds 150 mg tablets, 30 count priced at $29.99. If dad is to take 8 tablets a day, she said it will cost a fortune! I told her I'd ask the group where to get this product at best price. Thanks for any info. Have missed much of what goes on, as I struggle with the email volume, but dad is hanging in there (no wheel chair yet) with aggressive PT. Thanks. Cindy, Philadelphia. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Hi Cindy, Unfortunately it does cost a fortune if you want to take that high a dose. None of the cost would be covered by medicare or private insurance since this is not a proven therapy for MSA. Carol Langer found this information on the brand of CoQ10 (Vitaline) that was being used in the Parkinson's study where patients took 1200mg per day: Carol wrote: " the supplement used in the study was provided by Vitaline. I called them () and found that they used Co Q-10 wafers. They are 300mg each, so you need 4 a day and you would need 2 bottles a month at $100 a bottle, for a total of $200 a month. " I also found this information on another brand of CoQ10: Tishcon (Q-gels). These are available in 100mg gelcaps. http://www.epic4health.com/qgelmega100.html The cost to take 1200mg of this brand per day would also work out to roughly $200 per month if bought in bulk. Regards, Pam CO-Q-10 My mom has a question regarding where you folks are getting the CO-Q-10 supplements. My dad is a patient of Dr. Tom Chelimsky, who spoke at your recent convention. We thought the dosage of 1,200 mg was a misprint, but he confirmed that is accurate. She only finds 150 mg tablets, 30 count priced at $29.99. If dad is to take 8 tablets a day, she said it will cost a fortune! I told her I'd ask the group where to get this product at best price. Thanks for any info. Have missed much of what goes on, as I struggle with the email volume, but dad is hanging in there (no wheel chair yet) with aggressive PT. Thanks. Cindy, Philadelphia. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 My father (probable MSA - age 76) has been taking co-enzyme Q 10 for about 2 weeks. The first co-Q-10 I found at a place recommended to me by a friend whose mother had PD and whose brother is a pharmacist, was at The Apothecary in Bethesda, MD, right outside of NIH. I ordered it by phone, but it can be ordered from the internet, as well. Sorry, but I don't have the website. The pills from The Apothecary can be mailed to you and are 100 mg each and have vitamin E contained in them. My father took 4 pills, 3 times a day, with each meal. I had ordered a 10 day supply. It was a lot of pills, but he seemed to do well with them. Then, I learned from this wonderful shydrager group that Vitaline in the midwest had furnished the coQ-10 for the study. I called them and chatted with them. Their pills are 300 mg each and are chewable, maple flavored. But they contain no vitamin E for absorption. I ordered vitamin E separately and my father takes it with the co-Q-10, 1200 mg in all per day of both vitamin E and co-Q-10. Still a lot of pills, if you add in the vitamin E. Now he takes the Vitaline pills. I asked my father which he prefers, because we will have to re-order in 6 weeks. He is a very easygoing southern gentleman and told me that he does not really have a preference. Both places can mail them to you. Personally, and maybe it is wishful thinking, I have seen an improvement in my father's ability to walk around the apartment...less dizzy, less out of balance. He also seems to be more alert and has a little better cognitive ability. My mother, who sees him day in and day out, says there has been no change. Who knows? But as Dr. Reich said in a recent conference, it may not help, but it can't hurt. My father's neurologist from town named Dr. Tornatore confirmed Dr. Reich's view and encouraged my father to continue the regimen. Hope this info is helpful to you. I wish your Dad the best of luck. Colette (from D.C.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 My father (probable MSA - age 76) has been taking co-enzyme Q 10 for about 2 weeks. The first co-Q-10 I found at a place recommended to me by a friend whose mother had PD and whose brother is a pharmacist, was at The Apothecary in Bethesda, MD, right outside of NIH. I ordered it by phone, but it can be ordered from the internet, as well. Sorry, but I don't have the website. The pills from The Apothecary can be mailed to you and are 100 mg each and have vitamin E contained in them. My father took 4 pills, 3 times a day, with each meal. I had ordered a 10 day supply. It was a lot of pills, but he seemed to do well with them. Then, I learned from this wonderful shydrager group that Vitaline in the midwest had furnished the coQ-10 for the study. I called them and chatted with them. Their pills are 300 mg each and are chewable, maple flavored. But they contain no vitamin E for absorption. I ordered vitamin E separately and my father takes it with the co-Q-10, 1200 mg in all per day of both vitamin E and co-Q-10. Still a lot of pills, if you add in the vitamin E. Now he takes the Vitaline pills. I asked my father which he prefers, because we will have to re-order in 6 weeks. He is a very easygoing southern gentleman and told me that he does not really have a preference. Both places can mail them to you. Personally, and maybe it is wishful thinking, I have seen an improvement in my father's ability to walk around the apartment...less dizzy, less out of balance. He also seems to be more alert and has a little better cognitive ability. My mother, who sees him day in and day out, says there has been no change. Who knows? But as Dr. Reich said in a recent conference, it may not help, but it can't hurt. My father's neurologist from town named Dr. Tornatore confirmed Dr. Reich's view and encouraged my father to continue the regimen. Hope this info is helpful to you. I wish your Dad the best of luck. Colette (from D.C.) Quote Link to comment Share on other sites More sharing options...
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