Deborah et al >Re: Cold hands and feet

[Guest guest]

Followed this link and found that (at least what was attached)

brought me to you again Deborah. But, this is really to any

interested.

Bill is right that circulation can be the problem. However, the

symptoms you cite sound more consistent with a neurological problem -

and yes - can be MSA-related. Again, all of this needs to be

presented to the experts you currently trust with your care.

However, there are many with something else... I was diagnosed -

before anything else - with Raynaud's Syndrome. Check it out.

Now, I think they attribute the literally ice-cold hands and feet to

the overall neurological disorder I suffer.

I do have a friend, who has one finger that does this. He is

diabetic, and says that this is a symptom that goes along with his

related system failures (kidney).

Many of his symptoms he complains about, I have too - but are worse.

Again, this does not surprise me, as I was told early on that the

autonomic system often fails in persons with Lupus, diabetes... In

cases like mine - they're simply not sure why it is failing, but it

is.

I would like to ask for some clarification - more just curiosity than

anything else.

For me - Before other symptoms presented nearly so bad... my fingers

started. I would note my pinky coldest, and then warmer toward the

thumb. Temperature would also increase as I went toward the palm

from the fingertips.

Don't know if you've ever checked, and it is admittedly difficult.

But, in an 85 degree house, I have checked my extremity temperatures,

and found them to be below 70. Temperature increases as I get closer

to main trunk. In fact, even at my wrist and forearms, the temp is

significantly higher.

Anyway, I'll see if I can find a link for you on Raynaud's - but it's

pretty common. As implied above, I have problems with this all year -

but must admit that it is more severe in the colder months - as are

all my symptoms (as I simply cannot regulate body temperature

anymore).

By the way, I too get very warm as well - no apparent cause or

pattern. I just attribute it to the autonomic nervous system and

it's control of the hypothalamus. Organ-wise, it is the hypothalamus

which controls body temperature. It causes " involuntary " changes in

the body to regulate temperature. Curiousity strikes again, and I

ask... do you have problems with sweating (either lack or excess)?

problems with goose bumps or shivering?

Interestingly, in reviewing what my Anatomy and Physiology text has

to say about this... it makes parallel references to this system

(thermo-regulation) - which is suppose to be " automatic " and

correlates to homeostasis of blood pressure and blood glucose. As

these all involve different systems, and I experience documented

problems with all - again in my case an autonomic neurological

problem seems evident.

Hopefully I haven't muddied the waters for any. And, either via

group or private email, I welcome any comments. The latter is

probably a better way to get me though - for the next week anyway -

as I do need to get my client's cases closed out.

Right now, gotta get.

All for now (or I'll get hooked on here till sunrise :-).

Pablito

> >

> > >I have been reading this thread and need to pose a question.

Now that I

> > >have conclusive proof that what I have is not PD or MSA, as I

sit here with

> > >hands like ice, the problems that I have with poor temperature

regulation

> > >are still here. Cold when others are hot, hot when others are

cold, not

> > >sweating properly, purple feet and hands... can be running a

temperature and

> > >still have icy cold hands and feet. At other times, my hands

feel like I

> > >put them in the oven and are so hot they are uncomfortable.

Does anyone

> > >know what system controls this and any ideas as to why this is

still a

> > >problem for me?

> > >

> > >Hugs and Warm Fuzzies,

> > >Deborah aka Tenacity

> > >

> > >Personal website & photo's

> > >http://www.pdhangout.com

> > >http://community.webshots.com/user/tenacitywins

> > >

> > >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

[Guest guest]

Followed this link and found that (at least what was attached)

brought me to you again Deborah. But, this is really to any

interested.

Bill is right that circulation can be the problem. However, the

symptoms you cite sound more consistent with a neurological problem -

and yes - can be MSA-related. Again, all of this needs to be

presented to the experts you currently trust with your care.

However, there are many with something else... I was diagnosed -

before anything else - with Raynaud's Syndrome. Check it out.

Now, I think they attribute the literally ice-cold hands and feet to

the overall neurological disorder I suffer.

I do have a friend, who has one finger that does this. He is

diabetic, and says that this is a symptom that goes along with his

related system failures (kidney).

Many of his symptoms he complains about, I have too - but are worse.

Again, this does not surprise me, as I was told early on that the

autonomic system often fails in persons with Lupus, diabetes... In

cases like mine - they're simply not sure why it is failing, but it

is.

I would like to ask for some clarification - more just curiosity than

anything else.

For me - Before other symptoms presented nearly so bad... my fingers

started. I would note my pinky coldest, and then warmer toward the

thumb. Temperature would also increase as I went toward the palm

from the fingertips.

Don't know if you've ever checked, and it is admittedly difficult.

But, in an 85 degree house, I have checked my extremity temperatures,

and found them to be below 70. Temperature increases as I get closer

to main trunk. In fact, even at my wrist and forearms, the temp is

significantly higher.

Anyway, I'll see if I can find a link for you on Raynaud's - but it's

pretty common. As implied above, I have problems with this all year -

but must admit that it is more severe in the colder months - as are

all my symptoms (as I simply cannot regulate body temperature

anymore).

By the way, I too get very warm as well - no apparent cause or

pattern. I just attribute it to the autonomic nervous system and

it's control of the hypothalamus. Organ-wise, it is the hypothalamus

which controls body temperature. It causes " involuntary " changes in

the body to regulate temperature. Curiousity strikes again, and I

ask... do you have problems with sweating (either lack or excess)?

problems with goose bumps or shivering?

Interestingly, in reviewing what my Anatomy and Physiology text has

to say about this... it makes parallel references to this system

(thermo-regulation) - which is suppose to be " automatic " and

correlates to homeostasis of blood pressure and blood glucose. As

these all involve different systems, and I experience documented

problems with all - again in my case an autonomic neurological

problem seems evident.

Hopefully I haven't muddied the waters for any. And, either via

group or private email, I welcome any comments. The latter is

probably a better way to get me though - for the next week anyway -

as I do need to get my client's cases closed out.

Right now, gotta get.

All for now (or I'll get hooked on here till sunrise :-).

Pablito

> >

> > >I have been reading this thread and need to pose a question.

Now that I

> > >have conclusive proof that what I have is not PD or MSA, as I

sit here with

> > >hands like ice, the problems that I have with poor temperature

regulation

> > >are still here. Cold when others are hot, hot when others are

cold, not

> > >sweating properly, purple feet and hands... can be running a

temperature and

> > >still have icy cold hands and feet. At other times, my hands

feel like I

> > >put them in the oven and are so hot they are uncomfortable.

Does anyone

> > >know what system controls this and any ideas as to why this is

still a

> > >problem for me?

> > >

> > >Hugs and Warm Fuzzies,

> > >Deborah aka Tenacity

> > >

> > >Personal website & photo's

> > >http://www.pdhangout.com

> > >http://community.webshots.com/user/tenacitywins

> > >

> > >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >