To Deborah and all - update, plus>Neuroleptic induced Parkinsonism - Deborah

[Guest guest]

Hi Deborah. Glad to see you're back here chatting again.

I'm just popping in briefly, and trying to get updated on what is

going on - with you and overall (though much will still have to wait).

I just wanted to chime in here.

I would not be surprised if symptoms consistent with PD can develop

in persons given PD meds. As someone who has worked in the medical

field for many years, it amazed me to the end how many meds could

present with side-effect symptoms that were exactly the same as the

symptoms they were suppose to be treating!

Of course, what also humored me is that the same symptom side-effect

list often included diarrhea and constipation :-) Guess that just

showed that MSA people do not have the market cornered on

individuality.

Glad - no... VERY GLAD... to hear that you are significantly

improved. I am not. I continue to regress. Contrary to you, I'm on

virtually no meds. The only med I've been on was/is Toprol - which

has helped stabilize my BP (kept the lows from going too low). But,

I haven't even taken that as I'm suppose to. I know... I'm a baaaad

boy :-)

Anyway, all I ever took prior to this was a brief trial of Sinemet (I

think - can't recall now). But, it was only long enough to rule out

it's effectiveness, and was discontinued long before the significant

recent increase in PD symptoms.

By the way, just to prove my point... I just looked up Sinemet in my

PDR. Know what the " more common side effects " are? " confusion,

hallucinations, nausea, uncontrollable twitching or jerking " . Yep -

straight from the text. I'll be glad to research this more if any

want it after I tie up these loose ends.

And... in case your hubby has filled you in at all on me, please let

him know that I have thus far had 2 more Chiari experts chime in that

this is not THE problem with me. I am still due for more tests in

the near future, but think this will be the last round. Pursuing

possibility that I have something spine related that is causing CSF

problems. After that, still may have the PET scans that your hubby

recommended, however, I see little use in it. I continue to regress,

and it is not really all that important to me to know why, as I did

try a trial period of PD meds, and noticed no favorable change.

I do have the scripts though. Have returned to a local primary care

doc, who has been more helpful than my internist in the " big city " of

Tulsa proved to be anymore. No biggie. I'll take whatever help God

sends, and I'd just as soon get it locally.

Well, I'll sign off for now. Still have some closing documentation

I'm working on to enable those I've served to get help elsewhere.

Hopefully by early next week I'll be able to be a regular here

again :-)

Pablito

[Guest guest]

Hi Deborah. Glad to see you're back here chatting again.

I'm just popping in briefly, and trying to get updated on what is

going on - with you and overall (though much will still have to wait).

I just wanted to chime in here.

I would not be surprised if symptoms consistent with PD can develop

in persons given PD meds. As someone who has worked in the medical

field for many years, it amazed me to the end how many meds could

present with side-effect symptoms that were exactly the same as the

symptoms they were suppose to be treating!

Of course, what also humored me is that the same symptom side-effect

list often included diarrhea and constipation :-) Guess that just

showed that MSA people do not have the market cornered on

individuality.

Glad - no... VERY GLAD... to hear that you are significantly

improved. I am not. I continue to regress. Contrary to you, I'm on

virtually no meds. The only med I've been on was/is Toprol - which

has helped stabilize my BP (kept the lows from going too low). But,

I haven't even taken that as I'm suppose to. I know... I'm a baaaad

boy :-)

Anyway, all I ever took prior to this was a brief trial of Sinemet (I

think - can't recall now). But, it was only long enough to rule out

it's effectiveness, and was discontinued long before the significant

recent increase in PD symptoms.

By the way, just to prove my point... I just looked up Sinemet in my

PDR. Know what the " more common side effects " are? " confusion,

hallucinations, nausea, uncontrollable twitching or jerking " . Yep -

straight from the text. I'll be glad to research this more if any

want it after I tie up these loose ends.

And... in case your hubby has filled you in at all on me, please let

him know that I have thus far had 2 more Chiari experts chime in that

this is not THE problem with me. I am still due for more tests in

the near future, but think this will be the last round. Pursuing

possibility that I have something spine related that is causing CSF

problems. After that, still may have the PET scans that your hubby

recommended, however, I see little use in it. I continue to regress,

and it is not really all that important to me to know why, as I did

try a trial period of PD meds, and noticed no favorable change.

I do have the scripts though. Have returned to a local primary care

doc, who has been more helpful than my internist in the " big city " of

Tulsa proved to be anymore. No biggie. I'll take whatever help God

sends, and I'd just as soon get it locally.

Well, I'll sign off for now. Still have some closing documentation

I'm working on to enable those I've served to get help elsewhere.

Hopefully by early next week I'll be able to be a regular here

again :-)

Pablito