Re: physical / speech therapy & MSA Information

[Guest guest]

This article on MSA was published in a physical therapy journal:

http://www.ptjournal.org/pt_journal/PTJournal/May1999/May99/v79n5p488.cfm

-----------------

*** Multiple System Atrophy Information ***

Multiple System Atrophy(MSA) is a complex neurodegenerative disorder that

affects multiple areas of the brain. You may also know it as Shy-Drager

Syndrome(SDS), Striatonigral Degeneration(SND) or Sporadic(non-hereditary)

Olivopontocerebellar atrophy(OPCA). These three disorders have now been

lumped together and are considered one disorder by the MSA research experts.

MSA is considered to be a sporadic (non-hereditary) disorder.

There are now two major groups of researchers in the world dedicated to

studying MSA. The North American Multiple System Atrophy Study

Group(NAMSA-SG) and the European Multiple System Atrophy Study

Group(EMSA-SG) see http://www.emsa-sg.org

Multiple System Atrophy is recognized by several charitable organizations.

The SDS/MSA Support Group in the US

http://www.shy-drager.com

The Matheson Trust for Multiple System Atrophy in the UK

http://www.msaweb.co.uk

The National Ataxia Foundation in the US consider MSA a non-hereditary

(sporadic) ataxia.

http://www.ataxia.org

The National Dysautonomia Research Foundation in the US consider MSA a

dysautonomia (disorder of the autonomic nervous system).

http://www.ndrf.org

As well, various Parkinson Disease Societies and Foundations worldwide

recognize MSA as a " Parkinson-Plus " Disorder.

Information Sheets on MSA:

http://www.emedicine.com/neuro/topic671.htm

http://www.parkinson.org/atrophy.htm

http://www.emedicine.com/neuro/topic282.htm

http://www.ataxia.org/generations/2001summer/gilman.html

http://www.emedicine.com/neuro/topic354.htm

Information Sheets on Parkinson-Plus:

http://www.mayo.edu/fpd/pd-info/parkplus.htm

http://www.parkinson.org/pdquestions.htm

http://www.emedicine.com/neuro/topic596.htm

http://www.parkinsons-information-exchange-network-online.com/archive/091.ht

ml

There is an online support group mailing list for Multiple System Atrophy at

http://groups.yahoo.com/group/shydrager

Past issues of " MSA News " are available at the American Autonomic Society

Website:

http://www.mc.vanderbilt.edu/gcrc/aas

Click on Patient Resources

Regards,

Pam

Multiple System Atrophy Online Support Group

pbower@...

physical / speech therapy

> is beginning physical and speech therapy and

> (of course) none of the therapists have ever heard of

> MSA or OPCA. Has anyone found a good resource for these

> folks to use?

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

This article on MSA was published in a physical therapy journal:

http://www.ptjournal.org/pt_journal/PTJournal/May1999/May99/v79n5p488.cfm

-----------------

*** Multiple System Atrophy Information ***

Multiple System Atrophy(MSA) is a complex neurodegenerative disorder that

affects multiple areas of the brain. You may also know it as Shy-Drager

Syndrome(SDS), Striatonigral Degeneration(SND) or Sporadic(non-hereditary)

Olivopontocerebellar atrophy(OPCA). These three disorders have now been

lumped together and are considered one disorder by the MSA research experts.

MSA is considered to be a sporadic (non-hereditary) disorder.

There are now two major groups of researchers in the world dedicated to

studying MSA. The North American Multiple System Atrophy Study

Group(NAMSA-SG) and the European Multiple System Atrophy Study

Group(EMSA-SG) see http://www.emsa-sg.org

Multiple System Atrophy is recognized by several charitable organizations.

The SDS/MSA Support Group in the US

http://www.shy-drager.com

The Matheson Trust for Multiple System Atrophy in the UK

http://www.msaweb.co.uk

The National Ataxia Foundation in the US consider MSA a non-hereditary

(sporadic) ataxia.

http://www.ataxia.org

The National Dysautonomia Research Foundation in the US consider MSA a

dysautonomia (disorder of the autonomic nervous system).

http://www.ndrf.org

As well, various Parkinson Disease Societies and Foundations worldwide

recognize MSA as a " Parkinson-Plus " Disorder.

Information Sheets on MSA:

http://www.emedicine.com/neuro/topic671.htm

http://www.parkinson.org/atrophy.htm

http://www.emedicine.com/neuro/topic282.htm

http://www.ataxia.org/generations/2001summer/gilman.html

http://www.emedicine.com/neuro/topic354.htm

Information Sheets on Parkinson-Plus:

http://www.mayo.edu/fpd/pd-info/parkplus.htm

http://www.parkinson.org/pdquestions.htm

http://www.emedicine.com/neuro/topic596.htm

http://www.parkinsons-information-exchange-network-online.com/archive/091.ht

ml

There is an online support group mailing list for Multiple System Atrophy at

http://groups.yahoo.com/group/shydrager

Past issues of " MSA News " are available at the American Autonomic Society

Website:

http://www.mc.vanderbilt.edu/gcrc/aas

Click on Patient Resources

Regards,

Pam

Multiple System Atrophy Online Support Group

pbower@...

physical / speech therapy

> is beginning physical and speech therapy and

> (of course) none of the therapists have ever heard of

> MSA or OPCA. Has anyone found a good resource for these

> folks to use?

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Thanks Pam, This is just what I was looking for.

> This article on MSA was published in a physical therapy journal:

>

http://www.ptjournal.org/pt_journal/PTJournal/May1999/May99/v79n5p488.

cfm

>

> -----------------

>

> *** Multiple System Atrophy Information ***

>

> Multiple System Atrophy(MSA) is a complex neurodegenerative

disorder that

> affects multiple areas of the brain. You may also know it as Shy-

Drager

> Syndrome(SDS), Striatonigral Degeneration(SND) or Sporadic(non-

hereditary)

> Olivopontocerebellar atrophy(OPCA). These three disorders have now

been

> lumped together and are considered one disorder by the MSA research

experts.

> MSA is considered to be a sporadic (non-hereditary) disorder.

>

> There are now two major groups of researchers in the world

dedicated to

> studying MSA. The North American Multiple System Atrophy Study

> Group(NAMSA-SG) and the European Multiple System Atrophy Study

> Group(EMSA-SG) see http://www.emsa-sg.org

>

>

> Multiple System Atrophy is recognized by several charitable

organizations.

>

> The SDS/MSA Support Group in the US

> http://www.shy-drager.com

>

> The Matheson Trust for Multiple System Atrophy in the UK

> http://www.msaweb.co.uk

>

> The National Ataxia Foundation in the US consider MSA a non-

hereditary

> (sporadic) ataxia.

> http://www.ataxia.org

>

> The National Dysautonomia Research Foundation in the US consider

MSA a

> dysautonomia (disorder of the autonomic nervous system).

> http://www.ndrf.org

>

> As well, various Parkinson Disease Societies and Foundations

worldwide

> recognize MSA as a " Parkinson-Plus " Disorder.

>

>

> Information Sheets on MSA:

>

> http://www.emedicine.com/neuro/topic671.htm

> http://www.parkinson.org/atrophy.htm

> http://www.emedicine.com/neuro/topic282.htm

> http://www.ataxia.org/generations/2001summer/gilman.html

> http://www.emedicine.com/neuro/topic354.htm

>

> Information Sheets on Parkinson-Plus:

>

> http://www.mayo.edu/fpd/pd-info/parkplus.htm

> http://www.parkinson.org/pdquestions.htm

> http://www.emedicine.com/neuro/topic596.htm

> http://www.parkinsons-information-exchange-network-

online.com/archive/091.ht

> ml

>

>

> There is an online support group mailing list for Multiple System

Atrophy at

> http://groups.yahoo.com/group/shydrager

>

> Past issues of " MSA News " are available at the American Autonomic

Society

> Website:

> http://www.mc.vanderbilt.edu/gcrc/aas

> Click on Patient Resources

>

> Regards,

> Pam

> Multiple System Atrophy Online Support Group

> pbower@a...

>

>

> physical / speech therapy

>

>

> > is beginning physical and speech therapy and

> > (of course) none of the therapists have ever heard of

> > MSA or OPCA. Has anyone found a good resource for these

> > folks to use?

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >

[Guest guest]

Thanks Pam, This is just what I was looking for.

> This article on MSA was published in a physical therapy journal:

>

http://www.ptjournal.org/pt_journal/PTJournal/May1999/May99/v79n5p488.

cfm

>

> -----------------

>

> *** Multiple System Atrophy Information ***

>

> Multiple System Atrophy(MSA) is a complex neurodegenerative

disorder that

> affects multiple areas of the brain. You may also know it as Shy-

Drager

> Syndrome(SDS), Striatonigral Degeneration(SND) or Sporadic(non-

hereditary)

> Olivopontocerebellar atrophy(OPCA). These three disorders have now

been

> lumped together and are considered one disorder by the MSA research

experts.

> MSA is considered to be a sporadic (non-hereditary) disorder.

>

> There are now two major groups of researchers in the world

dedicated to

> studying MSA. The North American Multiple System Atrophy Study

> Group(NAMSA-SG) and the European Multiple System Atrophy Study

> Group(EMSA-SG) see http://www.emsa-sg.org

>

>

> Multiple System Atrophy is recognized by several charitable

organizations.

>

> The SDS/MSA Support Group in the US

> http://www.shy-drager.com

>

> The Matheson Trust for Multiple System Atrophy in the UK

> http://www.msaweb.co.uk

>

> The National Ataxia Foundation in the US consider MSA a non-

hereditary

> (sporadic) ataxia.

> http://www.ataxia.org

>

> The National Dysautonomia Research Foundation in the US consider

MSA a

> dysautonomia (disorder of the autonomic nervous system).

> http://www.ndrf.org

>

> As well, various Parkinson Disease Societies and Foundations

worldwide

> recognize MSA as a " Parkinson-Plus " Disorder.

>

>

> Information Sheets on MSA:

>

> http://www.emedicine.com/neuro/topic671.htm

> http://www.parkinson.org/atrophy.htm

> http://www.emedicine.com/neuro/topic282.htm

> http://www.ataxia.org/generations/2001summer/gilman.html

> http://www.emedicine.com/neuro/topic354.htm

>

> Information Sheets on Parkinson-Plus:

>

> http://www.mayo.edu/fpd/pd-info/parkplus.htm

> http://www.parkinson.org/pdquestions.htm

> http://www.emedicine.com/neuro/topic596.htm

> http://www.parkinsons-information-exchange-network-

online.com/archive/091.ht

> ml

>

>

> There is an online support group mailing list for Multiple System

Atrophy at

> http://groups.yahoo.com/group/shydrager

>

> Past issues of " MSA News " are available at the American Autonomic

Society

> Website:

> http://www.mc.vanderbilt.edu/gcrc/aas

> Click on Patient Resources

>

> Regards,

> Pam

> Multiple System Atrophy Online Support Group

> pbower@a...

>

>

> physical / speech therapy

>

>

> > is beginning physical and speech therapy and

> > (of course) none of the therapists have ever heard of

> > MSA or OPCA. Has anyone found a good resource for these

> > folks to use?

> >

> >

> > If you do not wish to belong to shydrager, you may

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe@y...

> >

> >

> >

> >

> >

[Guest guest]

Thanks Pam,

although if I skip the words I don't understand, I'm left with 'the', 'a'

and 'it', I'm sure my brother (PT) will be very happy to see a source of

info he knows he can trust... (you know PT's..if it hadn't been a PT that

told them Santa wasn't real, they'd still be believers)

Marcel Abraas

Netherlands

At 07:52 AM 11/9/2002 -0400, you wrote:

>This article on MSA was published in a physical therapy journal:

>http://www.ptjournal.org/pt_journal/PTJournal/May1999/May99/v79n5p488.cfm

>

>-----------------

[Guest guest]

Thanks Pam,

although if I skip the words I don't understand, I'm left with 'the', 'a'

and 'it', I'm sure my brother (PT) will be very happy to see a source of

info he knows he can trust... (you know PT's..if it hadn't been a PT that

told them Santa wasn't real, they'd still be believers)

Marcel Abraas

Netherlands

At 07:52 AM 11/9/2002 -0400, you wrote:

>This article on MSA was published in a physical therapy journal:

>http://www.ptjournal.org/pt_journal/PTJournal/May1999/May99/v79n5p488.cfm

>

>-----------------