Re: Hi - - I'm a new member

[Guest guest]

Hi Sharon,

I'm glad you found this group of people who are at the same/different place

and time as you are. This is a marvelous support group of caring,

compassionate MSA patients and their caregivers. So many doctors have no

clue as to what this disease is about (my husband Tom, 65 was, as many. were

first diagnosed with Parkinson' then later MSA. I also live in California so

please contact me and our group if we can answer your questions or be of any

help to you . God Bless you and your family.

Sandy B.

Fremont, CA

[Guest guest]

Hi Sharon,

I'm glad you found this group of people who are at the same/different place

and time as you are. This is a marvelous support group of caring,

compassionate MSA patients and their caregivers. So many doctors have no

clue as to what this disease is about (my husband Tom, 65 was, as many. were

first diagnosed with Parkinson' then later MSA. I also live in California so

please contact me and our group if we can answer your questions or be of any

help to you . God Bless you and your family.

Sandy B.

Fremont, CA

[Guest guest]

Sandy......Thank you for your response. I live in Dublin and work in

Pleasanton so I am not too far from you in Fremont. Does your group meet

together face-to-face or is this just an e-mail group? I am happy to have

found some people who can enlighten me and just give understanding support.

It is very difficult to explain to others the horror of this disease. My

sister's name is and she is 50 years old. She was first diagnosed

with Parkinson's Disease 6 years ago. A year and a half ago she had the

electrodes implanted in her brain, but once the doctors realized she really

was not responding to this, they decided she had MSA. I do not believe my

sister will live much longer....the disease has ravaged her body and her

quality of life is horrible. She is now in a nursing home with a pump

surgically implanted into her spine for pain and a feeding tube surgically

implanted in her stomach. She cannot move at all.....her body is completely

rigid, though when looking at her legs I do see muscle spasms. She has a

difficult time opening and closing her eyes. She may say a word or two

every now and then (not even daily) and those few words are very difficult

to understand. I am ready to let go and let her be with God, but my

brother-in-law is not.....I cannot be angry with him as he loves her so

much and is taking such wonderful care of her. My sister was certainly

blessed when God brought her together with (her husband).

I want to know more as do my Mother and sisters. My brother-in-law is the

forever optimist, which is great but also means he doesn't exactly tell us

how it really is. I am hoping this group can help me to better understand

MSA and maybe explain to me what is possibly down the road for us. I guess

I know, but it is good to " talk " with others who have been there.

Thanks so much - Sharon

~~~~~~~~~~~~~~~~~~~~~~~

Sharon Marsh, CMP

Manager, Internal Events

PeopleSoft, Inc.

4411 PeopleSoft Parkway

P.O. Box 9001

Pleasanton, CA 94588-9001

1-800-380-SOFT (7638)

(tel - direct line)

(fax)

www.peoplesoft.com

~~~~~~~~~~~~~~~~~~~~~~~

" Be who you are and say what you feel, because those who mind don't matter

and those who matter don't mind. "

--Dr. Seuss

sandybierman@...

om To:

shydrager

cc:

11/11/2002 07:33 Subject: Re: Hi - - I'm a

new member

PM

Please respond to

shydrager

Hi Sharon,

I'm glad you found this group of people who are at the same/different place

and time as you are. This is a marvelous support group of caring,

compassionate MSA patients and their caregivers. So many doctors have no

clue as to what this disease is about (my husband Tom, 65 was, as many.

were

first diagnosed with Parkinson' then later MSA. I also live in California

so

please contact me and our group if we can answer your questions or be of

any

help to you . God Bless you and your family.

Sandy B.

Fremont, CA

[Guest guest]

Sandy......Thank you for your response. I live in Dublin and work in

Pleasanton so I am not too far from you in Fremont. Does your group meet

together face-to-face or is this just an e-mail group? I am happy to have

found some people who can enlighten me and just give understanding support.

It is very difficult to explain to others the horror of this disease. My

sister's name is and she is 50 years old. She was first diagnosed

with Parkinson's Disease 6 years ago. A year and a half ago she had the

electrodes implanted in her brain, but once the doctors realized she really

was not responding to this, they decided she had MSA. I do not believe my

sister will live much longer....the disease has ravaged her body and her

quality of life is horrible. She is now in a nursing home with a pump

surgically implanted into her spine for pain and a feeding tube surgically

implanted in her stomach. She cannot move at all.....her body is completely

rigid, though when looking at her legs I do see muscle spasms. She has a

difficult time opening and closing her eyes. She may say a word or two

every now and then (not even daily) and those few words are very difficult

to understand. I am ready to let go and let her be with God, but my

brother-in-law is not.....I cannot be angry with him as he loves her so

much and is taking such wonderful care of her. My sister was certainly

blessed when God brought her together with (her husband).

I want to know more as do my Mother and sisters. My brother-in-law is the

forever optimist, which is great but also means he doesn't exactly tell us

how it really is. I am hoping this group can help me to better understand

MSA and maybe explain to me what is possibly down the road for us. I guess

I know, but it is good to " talk " with others who have been there.

Thanks so much - Sharon

~~~~~~~~~~~~~~~~~~~~~~~

Sharon Marsh, CMP

Manager, Internal Events

PeopleSoft, Inc.

4411 PeopleSoft Parkway

P.O. Box 9001

Pleasanton, CA 94588-9001

1-800-380-SOFT (7638)

(tel - direct line)

(fax)

www.peoplesoft.com

~~~~~~~~~~~~~~~~~~~~~~~

" Be who you are and say what you feel, because those who mind don't matter

and those who matter don't mind. "

--Dr. Seuss

sandybierman@...

om To:

shydrager

cc:

11/11/2002 07:33 Subject: Re: Hi - - I'm a

new member

PM

Please respond to

shydrager

Hi Sharon,

I'm glad you found this group of people who are at the same/different place

and time as you are. This is a marvelous support group of caring,

compassionate MSA patients and their caregivers. So many doctors have no

clue as to what this disease is about (my husband Tom, 65 was, as many.

were

first diagnosed with Parkinson' then later MSA. I also live in California

so

please contact me and our group if we can answer your questions or be of

any

help to you . God Bless you and your family.

Sandy B.

Fremont, CA