Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Tomorrow we'll be celebrating my father's 62nd birthday (officially nov 11th), and apart from a normal birthday present, I want to give him something he'll no doubt receive with mixed feelings: a compilation of as much information about MSA as I can find.. Well, not all of it, I intend to skip as much of the techno-lingo as possible. I want to focus on most/all of the possible symptoms he may develop or that he already has, and mix that with tips I find on this list for dealing with these symptoms, and perhaps mention medication people are trying / have tried as well. I was thinking of making it a work in progress and send him additional pages every now and again, so he'd have a little booklet about it. I want to do this as I realised that already me sister, brothers and me know a *lot* more about MSA than my dad. He's still not seeing a neurologist, although yesterday he was finally referred back to one, with a request for a bunch of new scans, as yesterday he got the result from the test the internist ordered, and they do show the sympathetic and parasympathetic tracts function is abnormal. Still, even if he gets to see a neurologist before december, he won't know what to ask if he has little knowledge about his own condition. What do you think about this idea? Am I going over the top with it and could I be worrying him more than necessary? Of course, 'more than necessary' with MSA sounds a bit weird, but I think you know what I mean. He does not have a computer, so he can't get on this list and his English is not very good, so I'd probably use some net-based translation program to turn most of it into Dutch. Marcel Rotterdam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Tomorrow we'll be celebrating my father's 62nd birthday (officially nov 11th), and apart from a normal birthday present, I want to give him something he'll no doubt receive with mixed feelings: a compilation of as much information about MSA as I can find.. Well, not all of it, I intend to skip as much of the techno-lingo as possible. I want to focus on most/all of the possible symptoms he may develop or that he already has, and mix that with tips I find on this list for dealing with these symptoms, and perhaps mention medication people are trying / have tried as well. I was thinking of making it a work in progress and send him additional pages every now and again, so he'd have a little booklet about it. I want to do this as I realised that already me sister, brothers and me know a *lot* more about MSA than my dad. He's still not seeing a neurologist, although yesterday he was finally referred back to one, with a request for a bunch of new scans, as yesterday he got the result from the test the internist ordered, and they do show the sympathetic and parasympathetic tracts function is abnormal. Still, even if he gets to see a neurologist before december, he won't know what to ask if he has little knowledge about his own condition. What do you think about this idea? Am I going over the top with it and could I be worrying him more than necessary? Of course, 'more than necessary' with MSA sounds a bit weird, but I think you know what I mean. He does not have a computer, so he can't get on this list and his English is not very good, so I'd probably use some net-based translation program to turn most of it into Dutch. Marcel Rotterdam Quote Link to comment Share on other sites More sharing options...
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