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Hi,

I just learned of this group today. I am looking for as much info as

possible. My sister has MSA and I believe her life span is very

short. She is now in a nursing home (having been in the hospital for

6 months). She has a pain pump surgically implanted in her spine and

has a feeding tube in her stomach. She cannot voluntarily move and

can say only a word or two now and then. She was diagnosed with

Parkinson's disease about 6 years ago. Last year the drs decided it

is MSA when the eletrode implants did not help. My sister is in

Texas and I am in CA. I only know what my brother-in-law tells me,

which is sketchy at best. Bless his heart...he is an eternal

optimist. Where can a really learn more about MSA?

Thanks.

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Hi,

I just learned of this group today. I am looking for as much info as

possible. My sister has MSA and I believe her life span is very

short. She is now in a nursing home (having been in the hospital for

6 months). She has a pain pump surgically implanted in her spine and

has a feeding tube in her stomach. She cannot voluntarily move and

can say only a word or two now and then. She was diagnosed with

Parkinson's disease about 6 years ago. Last year the drs decided it

is MSA when the eletrode implants did not help. My sister is in

Texas and I am in CA. I only know what my brother-in-law tells me,

which is sketchy at best. Bless his heart...he is an eternal

optimist. Where can a really learn more about MSA?

Thanks.

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