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Hi Bill,

It's been quite awhile since I first communicated with our MSA group and you

responded with information to me about the difficulty I was having getting

extra large disposables that would fit comfortably for Tom. You suggested I

contact Global Medical Solutions. After some time finding their web site and

ordering system, I did contact them by phone and they were wonderful. I

spoke to the owner, Monahan and he sent me two packs of different

styles to try (sent them free and delivery free--how's that for wonderful?).

We tried them both and I called in an order for a case of the best fitting

ones.

I'm sorry it took me so long to act on this and to respond to you. I find

that it takes me awhile to do the 'go ahead' on things related to the

problems of this disease. There seems to be so much to solve on an

hour-to-hour/day-to-day basis that it's just difficult to add other and

necessary things to my daily to do list.

Got another question...Tom lost a large (old) filling from a back upper

molar. Since he's bed bound and I cannot get him to a dentist, does anyone

know of a dental service that makes home calls? (We live in northern Calif.)

His dentist suggested an epoxy I can get at a drug store, mix the powder

with water and put the putty in the hole but this sounds like it's only a

temporary solution. Any suggestions would be so welcome.

Thank you for being there in so many ways for all of us Bill.

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Hi Bill,

It's been quite awhile since I first communicated with our MSA group and you

responded with information to me about the difficulty I was having getting

extra large disposables that would fit comfortably for Tom. You suggested I

contact Global Medical Solutions. After some time finding their web site and

ordering system, I did contact them by phone and they were wonderful. I

spoke to the owner, Monahan and he sent me two packs of different

styles to try (sent them free and delivery free--how's that for wonderful?).

We tried them both and I called in an order for a case of the best fitting

ones.

I'm sorry it took me so long to act on this and to respond to you. I find

that it takes me awhile to do the 'go ahead' on things related to the

problems of this disease. There seems to be so much to solve on an

hour-to-hour/day-to-day basis that it's just difficult to add other and

necessary things to my daily to do list.

Got another question...Tom lost a large (old) filling from a back upper

molar. Since he's bed bound and I cannot get him to a dentist, does anyone

know of a dental service that makes home calls? (We live in northern Calif.)

His dentist suggested an epoxy I can get at a drug store, mix the powder

with water and put the putty in the hole but this sounds like it's only a

temporary solution. Any suggestions would be so welcome.

Thank you for being there in so many ways for all of us Bill.

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Thanks for the reply Bill. I spoke with Tom's dentist and he told me about a

product I could get at the pharmacy. It's a powder you mix with water to

make a dough and put it into the hole left by the missing filling. I will

have him rinse with peroxide first then apply it.

Unfortunately there is no way I could get him into the dentist and back to

the car. He is 6'3 " and over 300 lbs. The firemen have come to the house

twice when he has landed on the floor and it took 3 of them a difficult time

to get him back into bed. His legs will just not hold him up anymore. I'm

also trying to find someone to come to the house to give him a flu shot. His

doctor could offer no help.

There are quite a number of challenges with this miserable disease as I am

sure you experienced with Charlotte. Thanks for all your help and input.

Sandy B. CA

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Thanks for the reply Bill. I spoke with Tom's dentist and he told me about a

product I could get at the pharmacy. It's a powder you mix with water to

make a dough and put it into the hole left by the missing filling. I will

have him rinse with peroxide first then apply it.

Unfortunately there is no way I could get him into the dentist and back to

the car. He is 6'3 " and over 300 lbs. The firemen have come to the house

twice when he has landed on the floor and it took 3 of them a difficult time

to get him back into bed. His legs will just not hold him up anymore. I'm

also trying to find someone to come to the house to give him a flu shot. His

doctor could offer no help.

There are quite a number of challenges with this miserable disease as I am

sure you experienced with Charlotte. Thanks for all your help and input.

Sandy B. CA

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Sandy,

Glad I could be of some help. I don't know what to tell you about the

dentist, except see if you can get a friend, church member, relative or

someone else to help you get him to the dentist. Charlotte had a great

deal of problems with her teeth, much of it caused by MSA, which can

cause problems with saliva production (both too much and too little)

which causes tooth problems. Ask your dentist for prescription

toothpaste which has higher floride content and helped Charlotte greatly

with prevention. Can you hire a young strong high school student to

help you out for a day? Don't try to do it all by yourself, ask around.

Note too that most volunteer fire depatments will help you get him out

of the house into the car (mine also helped me get Charlotte from the

car back into the house when I got home). You would have to get him

from the car into the dentist's office and back to the car (but my

dentist helped me there).

Take care, Bill Werre

====================================================

sandybierman@... wrote:

>Hi Bill,

>

>It's been quite awhile since I first communicated with our MSA group and you

>responded with information to me about the difficulty I was having getting

>extra large disposables that would fit comfortably for Tom. You suggested I

>contact Global Medical Solutions. After some time finding their web site and

>ordering system, I did contact them by phone and they were wonderful. I

>spoke to the owner, Monahan and he sent me two packs of different

>styles to try (sent them free and delivery free--how's that for wonderful?).

>We tried them both and I called in an order for a case of the best fitting

>ones.

>I'm sorry it took me so long to act on this and to respond to you. I find

>that it takes me awhile to do the 'go ahead' on things related to the

>problems of this disease. There seems to be so much to solve on an

>hour-to-hour/day-to-day basis that it's just difficult to add other and

>necessary things to my daily to do list.

>

>Got another question...Tom lost a large (old) filling from a back upper

>molar. Since he's bed bound and I cannot get him to a dentist, does anyone

>know of a dental service that makes home calls? (We live in northern Calif.)

> His dentist suggested an epoxy I can get at a drug store, mix the powder

>with water and put the putty in the hole but this sounds like it's only a

>temporary solution. Any suggestions would be so welcome.

>

>Thank you for being there in so many ways for all of us Bill.

>

>

>

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Sandy,

Glad I could be of some help. I don't know what to tell you about the

dentist, except see if you can get a friend, church member, relative or

someone else to help you get him to the dentist. Charlotte had a great

deal of problems with her teeth, much of it caused by MSA, which can

cause problems with saliva production (both too much and too little)

which causes tooth problems. Ask your dentist for prescription

toothpaste which has higher floride content and helped Charlotte greatly

with prevention. Can you hire a young strong high school student to

help you out for a day? Don't try to do it all by yourself, ask around.

Note too that most volunteer fire depatments will help you get him out

of the house into the car (mine also helped me get Charlotte from the

car back into the house when I got home). You would have to get him

from the car into the dentist's office and back to the car (but my

dentist helped me there).

Take care, Bill Werre

====================================================

sandybierman@... wrote:

>Hi Bill,

>

>It's been quite awhile since I first communicated with our MSA group and you

>responded with information to me about the difficulty I was having getting

>extra large disposables that would fit comfortably for Tom. You suggested I

>contact Global Medical Solutions. After some time finding their web site and

>ordering system, I did contact them by phone and they were wonderful. I

>spoke to the owner, Monahan and he sent me two packs of different

>styles to try (sent them free and delivery free--how's that for wonderful?).

>We tried them both and I called in an order for a case of the best fitting

>ones.

>I'm sorry it took me so long to act on this and to respond to you. I find

>that it takes me awhile to do the 'go ahead' on things related to the

>problems of this disease. There seems to be so much to solve on an

>hour-to-hour/day-to-day basis that it's just difficult to add other and

>necessary things to my daily to do list.

>

>Got another question...Tom lost a large (old) filling from a back upper

>molar. Since he's bed bound and I cannot get him to a dentist, does anyone

>know of a dental service that makes home calls? (We live in northern Calif.)

> His dentist suggested an epoxy I can get at a drug store, mix the powder

>with water and put the putty in the hole but this sounds like it's only a

>temporary solution. Any suggestions would be so welcome.

>

>Thank you for being there in so many ways for all of us Bill.

>

>

>

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Our yellow pages have a mobile dental service listed. Our dentist

mentioned it, but I have not called on them at this time. We live near

Philadelphia, which certainly isn't California, of course. Also, you

might call the local dental society. Good luck. Lou ReynoldsAt 10:57

PM 11/11/2002 -0500, you wrote:

>Hi Bill,

>

>It's been quite awhile since I first communicated with our MSA group and you

>responded with information to me about the difficulty I was having getting

>extra large disposables that would fit comfortably for Tom. You suggested I

>contact Global Medical Solutions. After some time finding their web site and

>ordering system, I did contact them by phone and they were wonderful. I

>spoke to the owner, Monahan and he sent me two packs of different

>styles to try (sent them free and delivery free--how's that for wonderful?).

>We tried them both and I called in an order for a case of the best fitting

>ones.

>I'm sorry it took me so long to act on this and to respond to you. I find

>that it takes me awhile to do the 'go ahead' on things related to the

>problems of this disease. There seems to be so much to solve on an

>hour-to-hour/day-to-day basis that it's just difficult to add other and

>necessary things to my daily to do list.

>

>Got another question...Tom lost a large (old) filling from a back upper

>molar. Since he's bed bound and I cannot get him to a dentist, does anyone

>know of a dental service that makes home calls? (We live in northern Calif.)

> His dentist suggested an epoxy I can get at a drug store, mix the powder

>with water and put the putty in the hole but this sounds like it's only a

>temporary solution. Any suggestions would be so welcome.

>

>Thank you for being there in so many ways for all of us Bill.

>

>

>

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Our yellow pages have a mobile dental service listed. Our dentist

mentioned it, but I have not called on them at this time. We live near

Philadelphia, which certainly isn't California, of course. Also, you

might call the local dental society. Good luck. Lou ReynoldsAt 10:57

PM 11/11/2002 -0500, you wrote:

>Hi Bill,

>

>It's been quite awhile since I first communicated with our MSA group and you

>responded with information to me about the difficulty I was having getting

>extra large disposables that would fit comfortably for Tom. You suggested I

>contact Global Medical Solutions. After some time finding their web site and

>ordering system, I did contact them by phone and they were wonderful. I

>spoke to the owner, Monahan and he sent me two packs of different

>styles to try (sent them free and delivery free--how's that for wonderful?).

>We tried them both and I called in an order for a case of the best fitting

>ones.

>I'm sorry it took me so long to act on this and to respond to you. I find

>that it takes me awhile to do the 'go ahead' on things related to the

>problems of this disease. There seems to be so much to solve on an

>hour-to-hour/day-to-day basis that it's just difficult to add other and

>necessary things to my daily to do list.

>

>Got another question...Tom lost a large (old) filling from a back upper

>molar. Since he's bed bound and I cannot get him to a dentist, does anyone

>know of a dental service that makes home calls? (We live in northern Calif.)

> His dentist suggested an epoxy I can get at a drug store, mix the powder

>with water and put the putty in the hole but this sounds like it's only a

>temporary solution. Any suggestions would be so welcome.

>

>Thank you for being there in so many ways for all of us Bill.

>

>

>

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Sandy,

A public nurse can give the flu shot. Call your local public health

agency and set it up, be insistant.

Take care, Bill Werre

===============================

sandybierman@... wrote:

>Thanks for the reply Bill. I spoke with Tom's dentist and he told me about a

>product I could get at the pharmacy. It's a powder you mix with water to

>make a dough and put it into the hole left by the missing filling. I will

>have him rinse with peroxide first then apply it.

>Unfortunately there is no way I could get him into the dentist and back to

>the car. He is 6'3 " and over 300 lbs. The firemen have come to the house

>twice when he has landed on the floor and it took 3 of them a difficult time

>to get him back into bed. His legs will just not hold him up anymore. I'm

>also trying to find someone to come to the house to give him a flu shot. His

>doctor could offer no help.

>There are quite a number of challenges with this miserable disease as I am

>sure you experienced with Charlotte. Thanks for all your help and input.

>

>Sandy B. CA

>

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Sandy,

A public nurse can give the flu shot. Call your local public health

agency and set it up, be insistant.

Take care, Bill Werre

===============================

sandybierman@... wrote:

>Thanks for the reply Bill. I spoke with Tom's dentist and he told me about a

>product I could get at the pharmacy. It's a powder you mix with water to

>make a dough and put it into the hole left by the missing filling. I will

>have him rinse with peroxide first then apply it.

>Unfortunately there is no way I could get him into the dentist and back to

>the car. He is 6'3 " and over 300 lbs. The firemen have come to the house

>twice when he has landed on the floor and it took 3 of them a difficult time

>to get him back into bed. His legs will just not hold him up anymore. I'm

>also trying to find someone to come to the house to give him a flu shot. His

>doctor could offer no help.

>There are quite a number of challenges with this miserable disease as I am

>sure you experienced with Charlotte. Thanks for all your help and input.

>

>Sandy B. CA

>

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