Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi all, Pain killers are not the best thing to use for MSA patients as the side effects of most pain killers are similar to MSA symptoms. Neurontin and Baclofen work on the cause of most MSA pain and usually do more good. Botox shots can also relieve cramping and associated pain. Unfortunately most pain killers are addictive and can lead to greater use. In some cases painkillers are needed, but since most MSA pain is caused by cramped muscles - it is better to start with anti spasm meds first. Take care, Bill Werre ============================================= Maciejewski wrote: >Hi Dawn, > >Jeff also has problems with excruciating pain. He has been on the >Duragesic patch for about 7 months. They started him at 75 mcg, but it >totally screwed up his nervous system, which he really doesn't need any >help in that department! SO they put him down to 50 and then as the pain >has increased, his dosage has as well. He seems to tolerate the increased >dosages now, I believe because his body is used to it. He takes Vicodin >occasionally for breakthrough pain. He's on 100 mcg now, and the doctor >just upped his dosage of Neurontin to 2400 mg/day. Neurintin does seem to >help more with the leg and extremity pain, while the duragesic helps most >with the back pain. >Best wishes, > > > >Dawn Wrote: >Subject: Celeste & Pain > >For those who responded, Celeste's pain seems to be all over but it >is worst in her legs. The pain is so excruciating and I guess I just >don't get the idea like other people on the list have that much >pain. Am I wrong about that? or have I just not been listening well >enough. The pain comes in waves. She gets relief and then it comes >on and lasts for hours..and she likens it to electrocusion. Does >anybody else experience this or is a caretaker who has an ill person >they are taking care of who explains this. The pain is actually >worse since she has been in the hospital I think. One of the >residents put her on Urecholine (sp?) which she took for 2 days and >she felt worse after that. My friend looked it up and it is >contraindicated in with Parkinsonism (duh!!). I don't know how long >this drug will stay in her body. I think she took it for 2 or 3 days. >Best Regards and thanks for your concern. It is heartbreaking.... >Dawn Morley > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi all, Pain killers are not the best thing to use for MSA patients as the side effects of most pain killers are similar to MSA symptoms. Neurontin and Baclofen work on the cause of most MSA pain and usually do more good. Botox shots can also relieve cramping and associated pain. Unfortunately most pain killers are addictive and can lead to greater use. In some cases painkillers are needed, but since most MSA pain is caused by cramped muscles - it is better to start with anti spasm meds first. Take care, Bill Werre ============================================= Maciejewski wrote: >Hi Dawn, > >Jeff also has problems with excruciating pain. He has been on the >Duragesic patch for about 7 months. They started him at 75 mcg, but it >totally screwed up his nervous system, which he really doesn't need any >help in that department! SO they put him down to 50 and then as the pain >has increased, his dosage has as well. He seems to tolerate the increased >dosages now, I believe because his body is used to it. He takes Vicodin >occasionally for breakthrough pain. He's on 100 mcg now, and the doctor >just upped his dosage of Neurontin to 2400 mg/day. Neurintin does seem to >help more with the leg and extremity pain, while the duragesic helps most >with the back pain. >Best wishes, > > > >Dawn Wrote: >Subject: Celeste & Pain > >For those who responded, Celeste's pain seems to be all over but it >is worst in her legs. The pain is so excruciating and I guess I just >don't get the idea like other people on the list have that much >pain. Am I wrong about that? or have I just not been listening well >enough. The pain comes in waves. She gets relief and then it comes >on and lasts for hours..and she likens it to electrocusion. Does >anybody else experience this or is a caretaker who has an ill person >they are taking care of who explains this. The pain is actually >worse since she has been in the hospital I think. One of the >residents put her on Urecholine (sp?) which she took for 2 days and >she felt worse after that. My friend looked it up and it is >contraindicated in with Parkinsonism (duh!!). I don't know how long >this drug will stay in her body. I think she took it for 2 or 3 days. >Best Regards and thanks for your concern. It is heartbreaking.... >Dawn Morley > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 THANK U FOR MENTIONING THE ANTI-SPASMOTIC. EARLY IN THE DISEASE i DID TAKE THE ANTI-SPASMODIC MEDS FOR REFLUX/ GERD/ DIGESTION (BENTYL). ALEVE, ECT. FOR LEG PAIN. I DO ASK ABOUT ADDICTION AND WAS TOLD IN ESSENCE ' RIGHT NOW NOT TO WORRY ABOUT THAT ISSUE.' I DON'T TAKE THE PAIN PILLS EVERYDAY BECAUSE IN THE BACK OF MY MIND I THINK OF THE ADDICTION. NANCY M. Werre wrote: > > Hi all, > > Pain killers are not the best thing to use for MSA patients as the side > effects of most pain killers are similar to MSA symptoms. Neurontin and > Baclofen work on the cause of most MSA pain and usually do more good. > Botox shots can also relieve cramping and associated pain. > Unfortunately most pain killers are addictive and can lead to greater > use. In some cases painkillers are needed, but since most MSA pain is > caused by cramped muscles - it is better to start with anti spasm meds > first. > > Take care, Bill Werre > > ============================================= > > Maciejewski wrote: > > >Hi Dawn, > > > >Jeff also has problems with excruciating pain. He has been on the > >Duragesic patch for about 7 months. They started him at 75 mcg, but it > >totally screwed up his nervous system, which he really doesn't need any > >help in that department! SO they put him down to 50 and then as the pain > >has increased, his dosage has as well. He seems to tolerate the increased > >dosages now, I believe because his body is used to it. He takes Vicodin > >occasionally for breakthrough pain. He's on 100 mcg now, and the doctor > >just upped his dosage of Neurontin to 2400 mg/day. Neurintin does seem to > >help more with the leg and extremity pain, while the duragesic helps most > >with the back pain. > >Best wishes, > > > > > > > >Dawn Wrote: > >Subject: Celeste & Pain > > > >For those who responded, Celeste's pain seems to be all over but it > >is worst in her legs. The pain is so excruciating and I guess I just > >don't get the idea like other people on the list have that much > >pain. Am I wrong about that? or have I just not been listening well > >enough. The pain comes in waves. She gets relief and then it comes > >on and lasts for hours..and she likens it to electrocusion. Does > >anybody else experience this or is a caretaker who has an ill person > >they are taking care of who explains this. The pain is actually > >worse since she has been in the hospital I think. One of the > >residents put her on Urecholine (sp?) which she took for 2 days and > >she felt worse after that. My friend looked it up and it is > >contraindicated in with Parkinsonism (duh!!). I don't know how long > >this drug will stay in her body. I think she took it for 2 or 3 days. > >Best Regards and thanks for your concern. It is heartbreaking.... > >Dawn Morley > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 THANK U FOR MENTIONING THE ANTI-SPASMOTIC. EARLY IN THE DISEASE i DID TAKE THE ANTI-SPASMODIC MEDS FOR REFLUX/ GERD/ DIGESTION (BENTYL). ALEVE, ECT. FOR LEG PAIN. I DO ASK ABOUT ADDICTION AND WAS TOLD IN ESSENCE ' RIGHT NOW NOT TO WORRY ABOUT THAT ISSUE.' I DON'T TAKE THE PAIN PILLS EVERYDAY BECAUSE IN THE BACK OF MY MIND I THINK OF THE ADDICTION. NANCY M. Werre wrote: > > Hi all, > > Pain killers are not the best thing to use for MSA patients as the side > effects of most pain killers are similar to MSA symptoms. Neurontin and > Baclofen work on the cause of most MSA pain and usually do more good. > Botox shots can also relieve cramping and associated pain. > Unfortunately most pain killers are addictive and can lead to greater > use. In some cases painkillers are needed, but since most MSA pain is > caused by cramped muscles - it is better to start with anti spasm meds > first. > > Take care, Bill Werre > > ============================================= > > Maciejewski wrote: > > >Hi Dawn, > > > >Jeff also has problems with excruciating pain. He has been on the > >Duragesic patch for about 7 months. They started him at 75 mcg, but it > >totally screwed up his nervous system, which he really doesn't need any > >help in that department! SO they put him down to 50 and then as the pain > >has increased, his dosage has as well. He seems to tolerate the increased > >dosages now, I believe because his body is used to it. He takes Vicodin > >occasionally for breakthrough pain. He's on 100 mcg now, and the doctor > >just upped his dosage of Neurontin to 2400 mg/day. Neurintin does seem to > >help more with the leg and extremity pain, while the duragesic helps most > >with the back pain. > >Best wishes, > > > > > > > >Dawn Wrote: > >Subject: Celeste & Pain > > > >For those who responded, Celeste's pain seems to be all over but it > >is worst in her legs. The pain is so excruciating and I guess I just > >don't get the idea like other people on the list have that much > >pain. Am I wrong about that? or have I just not been listening well > >enough. The pain comes in waves. She gets relief and then it comes > >on and lasts for hours..and she likens it to electrocusion. Does > >anybody else experience this or is a caretaker who has an ill person > >they are taking care of who explains this. The pain is actually > >worse since she has been in the hospital I think. One of the > >residents put her on Urecholine (sp?) which she took for 2 days and > >she felt worse after that. My friend looked it up and it is > >contraindicated in with Parkinsonism (duh!!). I don't know how long > >this drug will stay in her body. I think she took it for 2 or 3 days. > >Best Regards and thanks for your concern. It is heartbreaking.... > >Dawn Morley > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 , Aleve is not an addictive medicine, I was writing about prescription type painkillers which are opiate or man-made opiate type drugs. Aleve, Motrin, Tylenol, aspirin and things like that are not addicitive. Aspirin and other over the counter drugs CAN cause side effects especially if the directions are not followed. Sorry for any confusion, Bill Werre ========================== nm wrote: >THANK U FOR MENTIONING THE ANTI-SPASMOTIC. EARLY IN THE DISEASE i DID >TAKE THE ANTI-SPASMODIC MEDS FOR REFLUX/ GERD/ DIGESTION (BENTYL). >ALEVE, ECT. FOR LEG PAIN. I DO ASK ABOUT ADDICTION AND WAS TOLD IN >ESSENCE ' RIGHT NOW NOT TO WORRY ABOUT THAT ISSUE.' I DON'T TAKE THE >PAIN PILLS EVERYDAY BECAUSE IN THE BACK OF MY MIND I THINK OF THE >ADDICTION. > >NANCY M. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 , Aleve is not an addictive medicine, I was writing about prescription type painkillers which are opiate or man-made opiate type drugs. Aleve, Motrin, Tylenol, aspirin and things like that are not addicitive. Aspirin and other over the counter drugs CAN cause side effects especially if the directions are not followed. Sorry for any confusion, Bill Werre ========================== nm wrote: >THANK U FOR MENTIONING THE ANTI-SPASMOTIC. EARLY IN THE DISEASE i DID >TAKE THE ANTI-SPASMODIC MEDS FOR REFLUX/ GERD/ DIGESTION (BENTYL). >ALEVE, ECT. FOR LEG PAIN. I DO ASK ABOUT ADDICTION AND WAS TOLD IN >ESSENCE ' RIGHT NOW NOT TO WORRY ABOUT THAT ISSUE.' I DON'T TAKE THE >PAIN PILLS EVERYDAY BECAUSE IN THE BACK OF MY MIND I THINK OF THE >ADDICTION. > >NANCY M. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.