Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi Dawn, Jeff also has problems with excruciating pain. He has been on the Duragesic patch for about 7 months. They started him at 75 mcg, but it totally screwed up his nervous system, which he really doesn't need any help in that department! SO they put him down to 50 and then as the pain has increased, his dosage has as well. He seems to tolerate the increased dosages now, I believe because his body is used to it. He takes Vicodin occasionally for breakthrough pain. He's on 100 mcg now, and the doctor just upped his dosage of Neurontin to 2400 mg/day. Neurintin does seem to help more with the leg and extremity pain, while the duragesic helps most with the back pain. Best wishes, Dawn Wrote: Subject: Celeste & Pain For those who responded, Celeste's pain seems to be all over but it is worst in her legs. The pain is so excruciating and I guess I just don't get the idea like other people on the list have that much pain. Am I wrong about that? or have I just not been listening well enough. The pain comes in waves. She gets relief and then it comes on and lasts for hours..and she likens it to electrocusion. Does anybody else experience this or is a caretaker who has an ill person they are taking care of who explains this. The pain is actually worse since she has been in the hospital I think. One of the residents put her on Urecholine (sp?) which she took for 2 days and she felt worse after that. My friend looked it up and it is contraindicated in with Parkinsonism (duh!!). I don't know how long this drug will stay in her body. I think she took it for 2 or 3 days. Best Regards and thanks for your concern. It is heartbreaking.... Dawn Morley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Hi Dawn, Jeff also has problems with excruciating pain. He has been on the Duragesic patch for about 7 months. They started him at 75 mcg, but it totally screwed up his nervous system, which he really doesn't need any help in that department! SO they put him down to 50 and then as the pain has increased, his dosage has as well. He seems to tolerate the increased dosages now, I believe because his body is used to it. He takes Vicodin occasionally for breakthrough pain. He's on 100 mcg now, and the doctor just upped his dosage of Neurontin to 2400 mg/day. Neurintin does seem to help more with the leg and extremity pain, while the duragesic helps most with the back pain. Best wishes, Dawn Wrote: Subject: Celeste & Pain For those who responded, Celeste's pain seems to be all over but it is worst in her legs. The pain is so excruciating and I guess I just don't get the idea like other people on the list have that much pain. Am I wrong about that? or have I just not been listening well enough. The pain comes in waves. She gets relief and then it comes on and lasts for hours..and she likens it to electrocusion. Does anybody else experience this or is a caretaker who has an ill person they are taking care of who explains this. The pain is actually worse since she has been in the hospital I think. One of the residents put her on Urecholine (sp?) which she took for 2 days and she felt worse after that. My friend looked it up and it is contraindicated in with Parkinsonism (duh!!). I don't know how long this drug will stay in her body. I think she took it for 2 or 3 days. Best Regards and thanks for your concern. It is heartbreaking.... Dawn Morley Quote Link to comment Share on other sites More sharing options...
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